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The Osteosarcoma Project
Launched February 28, 2020 A initiative to partner directly with patients to accelerate and share discoveries in osteosarcoma.
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87
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The Osteosarcoma Project retweeted
MIB Agents Apr 6
MIB OsteoBites Webinar 9Apr 3pm: Grab a snack and sit down with Corrie Painter, PhD and Taylor Cusher of the of MIT and Harvard to talk about the The Osteosarcoma Project, and how this new platform will help OS research. Reg (max 100):
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The Osteosarcoma Project Mar 26
Update regarding the Osteosarcoma Project and COVID-19:
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The Osteosarcoma Project retweeted
MIB Agents Mar 10
OsteoWarriors talk about being empowered by the to use their experience to help other OsteoWarriors. Since launching at , over 125 patients have said ! Are you in? Click below for more info.
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The Osteosarcoma Project Mar 11
Participation in the is easy. You can allow the study team to send you a saliva collection kit and request copies of your medical records, and opt-in to sharing a blood sample and/or allowing the team to request a portion of tumor tissue.
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The Osteosarcoma Project Mar 9
Interested in learning more about the or want to know how you can spread the word? Please email us at info@osproject.org
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The Osteosarcoma Project Mar 9
Since launching, we've had >125 patients, parents, & loved ones say "Count Me In." Participants are from across the country, with patients (in purple) and loved ones (in orange). Help us continue to reach the osteosarcoma community, share the project:
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The Osteosarcoma Project Mar 6
. worked in partnership with patients and parents to develop this project. Learn more about our Project Advisory Council (PAC) members and how their lives have been impacted by osteosarcoma.
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The Osteosarcoma Project Mar 4
The goal of the is to generate data; including de-identified genomic, clinical, & patient-reported data to share with the biomedical community to accelerate discoveries & better therapies for patients. Learn more:
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The Osteosarcoma Project Mar 2
Patients with osteosarcoma have the power to transform research in a way no one else can. Find out how:
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The Osteosarcoma Project retweeted
Brian Crompton Mar 2
Update - Since Friday, 56 patients and 30 loved ones have registered for . Just amazing!
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The Osteosarcoma Project retweeted
Brooke Gabster Mar 1
Exciting announcement at : just launched . Tremendous opportunity for patients and families to contribute to a new, comprehensive database desperately needed to drive discoveries for this rare disease.
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The Osteosarcoma Project retweeted
MIB Agents Feb 29
and the Team launched the yesterday at MIB ! 35 patients and 13 loved ones have used their powers for good for their fellow peeps! 🙌 🧬 💫 Sign up
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The Osteosarcoma Project retweeted
Brian Crompton Feb 28
So excited to share that has launched the project bringing patient-driven research to pediatric . Honored to be a part of this with and many others.
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The Osteosarcoma Project retweeted
MIB Agents Feb 28
What if we could get all the data from patients in one place? Oh - we can! Starting today at and at home.
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The Osteosarcoma Project retweeted
Brian Crompton Feb 28
To learn more about movement or if you are a patient, parent, or loved one who wants to join - go to 16 patients and 7 loved ones registered in the first 4 hours! Just amazing.
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The Osteosarcoma Project retweeted
quadwfoundation Feb 28
Check out , a research study open to patients across the US/Canada aimed at generating a clinical and genomic database of osteo patients to share with the research community! Learn more at
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The Osteosarcoma Project retweeted
Osteosarcoma Institute Feb 28
Replying to @the_osproject
Excited for , a research study open to patients across the US/Canada aimed at generating a clinical and genomic database of osteo patients to share with the research community to accelerate the pace of research. Learn more at
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The Osteosarcoma Project Feb 28
Have questions about the during ? You'll find members of our team outside the main ballroom on Friday and Saturday. Please stop by and say hello! We're happy to tell you about the project and answer any questions you may have.
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The Osteosarcoma Project Feb 28
. team are at 's Conference 2/28 to 3/1. We are looking forward to getting to know the osteosarcoma community and answering any questions about the project. Let us know if we will see you there.
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The Osteosarcoma Project Feb 28
Please help us spread awareness for our new project in by sharing the URL. The more patients that sign up, the more chances the entire community has to make discoveries.
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