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Retrophin
We identify, develop and deliver life-changing therapies to people living with . Community Guidelines:
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GFPD 16. pro 2015.
. to fund 3 scholarships for professionals working with students w/ PBD-ZSD. Very cool!
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Harmony 4 Hope 1. pro 2015.
is rockin' with on . . Be a with us. Donate Here:
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Retrophin 12. stu 2015.
Aries Merritt shares his story at the Thank You
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Rare Disease UK 6. stu 2015.
Together affect more people than AIDs and cancer combined
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Retrophin 22. lis 2015.
We're thrilled to participate in Day 2 kickoff with Stephen Ostroff, MD, Acting Commissioner, FDA
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Harmony 4 Hope 29. ruj 2015.
thx 4 being . Your hits the road to turn up the volume 4
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Retrophin 24. ruj 2015.
What a fantastic and informative discussion on patient consent and data sharing
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Retrophin 24. ruj 2015.
provides advocates with reasons to NOT fund a research project at the
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Retrophin 24. ruj 2015.
Odgovor korisniku/ci @GlobalGenes
Of course, we are honored to be here!
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Retrophin 24. ruj 2015.
So honored to be able to listen to this parent advocate's story to help his daughter and other children
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Retrophin 24. ruj 2015.
Today we are learning from Pat Furlong, PPMD, how to do advocacy right at the
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Retrophin 21. ruj 2015.
The official 2016 theme and slogan have been announced!
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Retrophin 17. ruj 2015.
Help make September Dystonia Awareness Month by signing this petition @DystoniaAware
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Inspire 2. ruj 2015.
Strangers bond through social media to cope with rare disease via
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Retrophin 2. ruj 2015.
September is Awareness month. Share your screening story with
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Retrophin 26. kol 2015.
Don't miss out on signing up for the summit on Sep 14.
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Raremark 26. kol 2015.
Heartwarming video shows boy with dural arteriovenous fistula scoring touchdown via
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Rare Disease Report 25. kol 2015.
Who's Who of Rare Disease Community speaking at NORD Conference
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Global Genes 20. kol 2015.
New : covers ways to better advocate for your rare child's individual needs at school. Learn more:
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NORD 14. kol 2015.
We submitted comments 4 's Strategic Plan 2 show importance of programs, esp 4 undiagnosed patients
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