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Retrophin
@
RetrophinRare
San Diego, CA
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We identify, develop and deliver life-changing therapies to people living with #raredisease.
Community Guidelines:
retrophin.com/community-guid…
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81
Tweetovi
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144
Pratim
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547
Osobe koje vas prate
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GFPD
@thegfpd
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16. pro 2015. |
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.@Retrophin to fund 3 #Intervener scholarships for professionals working with students w/ PBD-ZSD. Very cool! #rare pic.twitter.com/i7UrLNFlTC
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Harmony 4 Hope
@harmonize4hope
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1. pro 2015. |
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@Retrophin is rockin' #raredisease with #H4H on #GivingTuesday. #RazooGT15. Be a #rarerockstar with us. Donate Here: goo.gl/9U1Soz
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Retrophin
@RetrophinRare
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12. stu 2015. |
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Aries Merritt shares his story at the @Nephcure #CountdownToACure Thank You pic.twitter.com/O50ElWX1GA
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Rare Disease UK
@rarediseaseuk
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6. stu 2015. |
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Together #rarediseases affect more people than AIDs and cancer combined #raredisease
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Retrophin
@RetrophinRare
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22. lis 2015. |
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We're thrilled to participate in #NORDSummit2015 Day 2 kickoff with Stephen Ostroff, MD, Acting Commissioner, FDA pic.twitter.com/fCYfn20Km6
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Harmony 4 Hope
@harmonize4hope
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29. ruj 2015. |
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@Retrophin thx 4 being #rarerockstars. Your #music hits the road to turn up the volume 4 #Epidermolysis #Bullosa pic.twitter.com/E6lmuC4iDP
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Retrophin
@RetrophinRare
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24. ruj 2015. |
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What a fantastic and informative discussion on patient consent and data sharing #2015GGSummit #thankyou pic.twitter.com/KK0AMrAXPK
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Retrophin
@RetrophinRare
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24. ruj 2015. |
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@BradMargus provides advocates with reasons to NOT fund a research project at the #2015GGSummit pic.twitter.com/TItNs9dCUN
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Retrophin
@RetrophinRare
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24. ruj 2015. |
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@GlobalGenes Of course, we are honored to be here!
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Retrophin
@RetrophinRare
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24. ruj 2015. |
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So honored to be able to listen to this parent advocate's story to help his daughter and other children #2015GGSummit pic.twitter.com/ufDqaxR6WX
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Retrophin
@RetrophinRare
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24. ruj 2015. |
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Today we are learning from Pat Furlong, PPMD, how to do advocacy right at the #2015GGSummit @GlobalGenes
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Retrophin
@RetrophinRare
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21. ruj 2015. |
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The official #RareDiseaseDay 2016 theme and slogan have been announced! ow.ly/Suvow @RareDayUS @RareDiseases
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Retrophin
@RetrophinRare
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17. ruj 2015. |
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Help make September Dystonia Awareness Month by signing this petition @DystoniaAware #dystoniapetition #raredisease petition.dystoniaaware.org
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Inspire
@teaminspire
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2. ruj 2015. |
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Strangers bond through social media to cope with rare disease shar.es/1vYUpE via @abcactionnews #RareDisease #hcsm
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Retrophin
@RetrophinRare
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2. ruj 2015. |
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September is #NewbornScreening Awareness month. Share your screening story with @geneticalliance #raredisease ow.ly/RHUmX
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Retrophin
@RetrophinRare
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26. kol 2015. |
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Raremark
@RaremarkHealth
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26. kol 2015. |
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Heartwarming video shows boy with #raredisease dural arteriovenous fistula scoring touchdown go.cbs4indy.com/1hEGFlz via @cbs4indy
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Rare Disease Report
@RareDR
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25. kol 2015. |
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Who's Who of Rare Disease Community speaking at NORD Conference raredr.com/news/whos-who-… @ncats_nih_gov @RareDiseases pic.twitter.com/3Jfb7oIKFV
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Global Genes
@GlobalGenes
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20. kol 2015. |
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New #RAREtoolkit: covers ways to better advocate for your rare child's individual needs at school. Learn more: bit.ly/1HYByRW
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NORD
@RareDiseases
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14. kol 2015. |
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We submitted comments 4 @NIH's Strategic Plan 2 show importance of #raredisease programs, esp 4 undiagnosed patients ow.ly/QVrkG
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