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Rare Disease Day
28 February 2019 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases.
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Rare Disease Day retweeted
Rare Diseases Europe Feb 19
Members of the rare disease platform in Paris including EURORDIS, join the campaign for 2019 on 28 February! Get involved and today!
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Rare Disease Day Feb 19
With little over a week to go, tell us today how you will mark the occasion of Rare Disease Day 2019 >>
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Rare Disease Day retweeted
NeuroSphinx Feb 18
💥[JOURNÉE INTERNATIONALE DES MALADIES RARES]💥⏱J-10 Le 28 février, retrouvez nous dans les gares pour cette grande journée 🎤🎧 Le groupe de musique "Les pieds sur Terre" sera avec nous 🚂 A 11h à la gare St-Lazare 🚂 A 15h à la gare du Nord
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Rare Disease Day retweeted
The XLH Network, Inc. Feb 18
Rare Disease Day is February 28th! For more info on RDD and to get involved go to . Pictured here are members from the XLH Alliance joining in the campaign to "Show Your Rare."
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Rare Disease Day Feb 18
Learn more about Lorena, living with Phelan-McDermid syndrome, who stars in one of the patient testimonial videos. Lorena’s favourite activities include riding her bike around the garden and doing jigsaw puzzles >>
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Rare Disease Day Feb 15
Share with the world how you will get involved in 2019 ! Put your events on the world map today
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Rare Disease Day Feb 15
Get involved in the campaign for Rare Disease Day 2019! Are you feeling up to a challenge? Try painting the Rare Disease Day logo! Check out the other ways to Show Your Rare for
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Rare Disease Day retweeted
ngorarediseases Feb 14
One week from today we will be in for the Rare Disease Day Policy Event at the , a Second High-Level Event of the NGO Committee for Rare Diseases. Watch live here:
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Rare Disease Day retweeted
Allianz Chronischer Seltener Erkrankungen e.V. Feb 12
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Rare Disease Day retweeted
Holm Graessner Feb 14
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Rare Disease Day Feb 13
New - watch and share Karlo's story of living with type 1! His video is the second official patient video created for 2019. Share the video now to raise awareness of the impact of rare diseases on daily life.
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Rare Disease Day Feb 12
There are many ways to for 2019. Find out how you can join in today >>
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Rare Disease Day retweeted
Rare Voices Australia Feb 9
Our Social Media officer Amy got into the face paints and glitter today to show her support for . You too can get involved during the month of February by painting your face and sharing a photo using the hashtag
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Rare Disease Day retweeted
Rare Disease Ghana Initiative Feb 10
We are pleased to announce our collaboration with the Health Innovation of , and the West African Center for Genomic Medicine to host in . With support from we are hosting a symposium on .
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Rare Disease Day Feb 11
Karlo from Croatia lives type 1. He and his family feature in one of the 2019 patient testimonial videos (coming soon!) Read more about his story >>
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Rare Disease Day Feb 8
Still looking for ways to get involved in Rare Disease Day this year? Check out all the different things you can do to be a part of the campaign>>
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Rare Disease Day Feb 7
Out now - New official 2019 video! Watch and share Filip and Alina's story. Filip is from Romania and lives with . Share the video to raise awareness of rare diseases!
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Rare Disease Day retweeted
Rare Diseases Europe Feb 6
The EURORDIS team is getting ready for Rare Disease Day 2019. Get inspired to join the campaign!
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Rare Disease Day retweeted
Rare Diseases SA Feb 6
Now's the time to for 2019! Get inspired to paint your face and share a selfie to ANY social media network using the hashtags and to show your support for the rare disease community!
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Rare Disease Day Feb 6
Getting ready for the big day? Check out the new shop to find official merchandise >>
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