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Rare Disease Day
28 February 2019 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases.
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Rare Disease Day Mar 21
2019 was nearly a month ago! What was your highlight from this year’s campaign? Read about the success of Rare Disease Day 2019
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Rare Diseases Europe Mar 7
Survey now live! Is there a treatment available for your rare disease? Are you able to access it? Has the treatment resulted in a positive or negative experience for you? Take our new survey, available in 23 languages.
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Rare Disease Day Mar 7
Did you take part in an event for 2019? Share your photos with the international rare disease community and upload them to the website
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lucyimber Feb 26
Staff from showing their support for with some enthusiastic jazz hands
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Rare Disease Day Mar 1
An enormous thank you to everyone who took part in 2019! Thousands of events were held in a record 100 countries! All your actions immensely supported the rare disease community around the world.
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Rare Disease Day Mar 1
The Empire State building in New York was lit up in the colours of – sending a powerful message of solidarity to the worldwide rare disease community! Thank you to our friends at for sharing!
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Rare Disease Day Feb 28
. Director-General of the World Health Organization supporting the global community on 2019!
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Rare Disease Day Feb 28
2019 is today! What action are you taking to raise awareness of rare diseases today? Join the global movement for rare diseases.
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FILFOIE Feb 28
Le collectif Les pieds sur Terre interprète en direct de Gare du Nord sa chanson « Un autre regard », bien entouré par un public curieux et nos tee-shirts roses sur l'espace des filières de santé Maladies Rares.
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Françoise Grossetête Feb 28
C’est aujourd’hui la journée des maladies rares L’Europe s’engage aux côtés des malades, notamment pour encourager la recherche et faciliter l’accès aux traitements. Nous ne lâchons rien !
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InfomedCuba 🇨🇺 Feb 28
En el la le propone consultar , el Portal sobre enfermedades raras y medicamentos huérfanos, donde podrá encontrar información relacionada con esta temática. Incluimos sugerencias.
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Great Ormond Street Hospital Feb 28
This , GOSH patients and staff have been learning about how research helps find treatments for rare and complex conditions.
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Vall d'Hebron Institut de Recerca Feb 28
La investigación es fundamental para encontrar nuevos tratamientos y mejorar los que ya existen para las más de 7.000 enfermedades minoritarias descritas. Diferentes grupos de investigación del VHIR están implicados en este reto.
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EJP RD Feb 28
Today's the day! We asked the EJP RD members to show their rare. Check our mosaic featuring every person involved in the project. Happy everyone!
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Rare Disease Day Feb 28
The 4 official 2019 videos are available in over 30 languages! Watch and share the videos in your language
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Department of Health and Social Care Feb 28
Health Minister and our policy team take part in for Here's our latest update to the rare disease implementation plan: 📸 Take part for
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Arlene Phillips CBE Feb 28
Today is and want to raise awareness about childhood rare diseases so they can research better treatments. Learn how they're improving the lives of children and young people with rare diseases.
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CORD Feb 28
. Showing support for rare disease patients today at at Queen’s Park
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Haemophilia Nigeria Feb 28
Students of All Saints International School, Kaduna showing support to mark
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Rare Disease Ghana Initiative Feb 28
Symposium on Genomics & Rare Disease in honour of Rare Disease Day at Korle Bu just starte.
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