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Rare Disease Day
28 February 2019 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases.
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Rare Disease Day 20h
Out now! Download the official poster for 2019 now available via . Share it today to show your support for the rare disease community.
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Rare Disease Day Jan 14
Just over a month ago to Rare Disease Day! Let us know what event you have planned today >>
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Rare Disease Day Jan 11
‘A strong support network, especially my mum has helped me so much. She has become my rock and it's so important for any person with a rare condition to have someone.’ Read about Owen’s story living with Kallmann syndrome >>
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Rare Disease Day Jan 7
This year’s theme is ‘Bridging health and social care’. Be part of a global movement calling for the better coordination of care for rare disease patients! >>
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Rare Disease Day Jan 4
'My battle with this illness has taught me some very useful things. I have learned a lot about my body.’ Read about Sibylle’s story living with Guillain-Barré syndrome >>
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Rare Disease Day Jan 3
Anyone can get involved in Rare Disease Day 2019! Show your support for by becoming a friend today! >
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Rare Disease Day Jan 1
Happy New Year! Not long to go now until 2019. Let's make it the biggest success yet! Find out all the ways to get involved in this year's campaign
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Rare Disease Day Dec 30
Only 60 days to go till Rare Disease Day 2019! Add your event to the map now! >>
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Rare Disease Day Dec 27
‘The hardest part about the three years was schooling [...] I made it my mission that come November 2017 I was going to walk at my graduation without any frame support.’ Read about Jessica’s story living with Lambert-Eaton myasthenic syndrome >>
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Rare Disease Day Dec 24
‘If there is no cure for me now, then I will do my best to help find the best medications for now and for the future and I would like to encourage all of you to do the same.’ Read about Maartje’s story living with Diffuse cutaneous systemic sclerosis >>
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Rare Disease Day Dec 20
After much demand we are pleased to announce the launch of the new Rare Disease Day shop! Take a look at the official merchandise! >>
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Rare Disease Day Dec 18
The 2019 official theme has been announced as ‘Bridging health and social care’ To find out more, read the full announcement >>
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Rare Disease Day Dec 17
'I will never forget the kindness of strangers I met while on this journey. When you have a rare disease, you rely on others who have walked the same path for support and guidance.’ Read about Jody’s story living with ocular melanoma >>
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Rare Disease Day retweeted
Rare Diseases Europe Dec 13
Do you or someone you know live with a ? Have you captured a special moment in their life in a photo? Enter your photo to the EURORDIS Photo Award by 7 January
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Rare Disease Day Dec 13
Add your event for Rare Disease Day 2019 to the map today! >>
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Rare Disease Day Dec 11
Did you know that your organisation can support Rare Disease Day 2019 by becoming a friend today? >>
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Rare Disease Day Dec 7
Planning on hosting an event for Rare Disease Day 2019? Post it on the map today to share it with the global community! >>
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Rare Disease Day Dec 6
'Bella never showed any obvious signs of pain, but we later worked out that she just didn't know any other way of feeling.’ Read about Bella’s story living with Eosinophilic esophagitis >>
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Rare Disease Day Dec 4
New for the 2019 campaign, Rare Disease Day has just opened a brand new online shop! Check it out now! >>
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Rare Disease Day Nov 30
Live from - filming of the 3rd 2019 video! Big thanks to Lorena, her brother Victor, their family, and We can’t wait to share the videos with you in the lead up to 28 February!
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