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michael sharpe 8 Apr 18
This is what researchers who are studying aspects of CFS/ME that activists don't want studied are up against.
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ME Vereniging NL 8 Apr 18
Replying to @profmsharpe
Don't you worry about this. A disease named CFS/ME does not exist.
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michael sharpe
I do agree that this terminology is unclear. It is what official bodies in the UK offer use. I apologise and agree that CFS and ME are best kept separate.
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Becky Hatfield 25 Apr 18
Oh! My daughter is under Bath specialist, they use both in their letters to me!
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michael sharpe 25 Apr 18
Many people - including David Tuller do use combined terms. Just my opinion that they are better separated, for research at least. As they were in the PACE Lancet report.
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mary dimmock 25 Apr 18
Can you clarify what you see as the difference between CFS and ME? Honestly interested in knowing.
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michael sharpe 25 Apr 18
Certainly. the definitions used to define patients differ. kind regards
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Heath 29 Apr 18
Why was ME & CFS not kept separate in UK? And which CFS, eg: Oxford CFS?
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michael sharpe 29 Apr 18
Really simple: research needs reliable defintions. There are no valild definitions because there are no accepted biomarkers. At that time CFS provided a reliable definition to select patients for research as it was simply operationalized. That's all.
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Jane Giakoumakis 1 May 18
Tactical move to save PACE and authorship credibilty
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michael sharpe 1 May 18
Replying to @JaneM10 @ME_Vereniging
Err. No. Simply trying to be helpful by answering questions. Kind regards
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Heath 29 Apr 18
So those if a patient is diagnosed with CFS but actually has . defined Myalgic Encephalomyelitis G93.3, have they received a misdiagnosis?
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michael sharpe 29 Apr 18
Sadly I am afraid it is more difficult than that. Diagnosis based on symptoms is always problematic. And ICD doesn't really provide research diagnoses.
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