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patty spears
Cancer Research Patient Advocate
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patty spears 25m
Nice welcoming remarks by at Livestreaming now at
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Meg Doerr Feb 21
Once more for the folks at the back: research testing is not clinical testing!
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Anirban Maitra Feb 20
Meta analysis of barriers to participation amongst cancer patients. There are barriers at every step in the accrual process but the highest appears to be lack of trial availability & ineligibility (77%). Lots of lessons here for changes.
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patty spears Feb 18
Replying to @StoverLab
Thanks. Just hoping we continue the hard work and not jump on everything that eventually gets published... very cautiously optimistic... there were “issues” with IMPassion 130 too.. imho...
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patty spears Feb 18
Replying to @StoverLab
Hi been wanting to ask... re PANACEA... small study... 15% OR in PD-L1pos... doesn't look that great (to me).... I saw lots of positive tweets about it though... is the bar for br ca IO really that low? Educate us!!
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Sarah Temkin Feb 16
"When patients are able to participate in a regardless of their background and financial means, existing disparity gaps for disease outcomes can narrow."
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patty spears Feb 16
Article ... PRO “Among trials that provided interpretable PRO completion information, completion rates were high. Most trials had comparable completion rates between arms. However...“ blind vs open compared...
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UNC-Chapel Hill Feb 15
Having grown up in Puerto Rico, Hector L. Franco believes "innovation is driven by diversity.” See how he and his team are using that mindset to explore the human genome in search of novel cancer treatments:
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patty spears Feb 15
Yes. Need to look at patient level data over time. Lots of data is ‘lost’ in averaging... the info that matters to patients is “missing”. Need to do better... the right PRO to the right patient at the right time... precision PROs.
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Katherine OBrien Feb 10
These guidelines for patients include an overview of the disease, subtype specific treatments and a chart of MBC drugs
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ASCO Jan 31
New to Clinical Cancer Advances this year, we’re debuting our list of Research Priorities, specific areas where progress is most needed and most promising
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Dena Battle Feb 1
Research shows that distrust in the medical system is too high among patients. Inflated news about cancer cures only exacerbates that problem. Thanks for giving me an opportunity to shed some light on the dangers of false hope.
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UNC Lineberger Jan 28
We have great news to share. has formed a “Dream Team” of leading researchers to develop (CAR-T) therapies for T-cell lymphoma. Gianpietro Dotti, MD, will co-lead the team, which was awarded an $8 million grant to conduct its research.
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UNC Lineberger Jan 24
Researchers led by UNC Lineberger's Charles M. Perou, PhD, and Susana Garcia-Recio, PhD, recently identified a driver of a key change in metastatic breast cancer, which could lead to better treatments for patients.
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patty spears Jan 28
Next step is to make sure those designing trials read these pubs and believe in broadening eligibility. Still a long way to go - they still seem to want 'homogeneous' patient populations.....so much more work to be done!
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patty spears Jan 28
Replying to @IBCResearch
I was going to say exactly this, but got distracted. Agree, most patients join a clinical trial because their doc recommended it.
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patty spears Jan 27
I found the table of FY18 funded research grants. Not sure if it will link .... Abstracts are available too... here you go. .
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Paul Kluetz Jan 24
Several people have asked whether are having a 2019 workshop to advance PRO and clinical outcomes in cancer trials... YES WE ARE. Save the date - July 12, 2019 on FDA campus in Silver Spring, MD. We are working closely with and have secured fantastic panelists
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patty spears Jan 17
This is a great resource... Thank you
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patty spears Jan 11
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