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patty spears
Cancer Research Patient Advocate
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patty spears 21h
Congrats Danny Welch on a great pub. “There is nothing more important—it is metastases that kill patients,” Welch said. Four Hallmarks of Metastasis - CANCER RESEARCH Catalyst
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Maryam Lustberg MD MPH Jun 22
The Great Survivorship Debate has concluded great arguments on both sides particularly our patient advocates
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Yvonne Heung MD, MS Jun 22
Patient-reported outcomes is associated with survival. When clinicians and patients communicate vs. when they don’t. There are two-sides to every story during treatment. Let’s start listening to our patients.
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Kate Secombe Jun 22
The PRO-CTCAE is available to use publically now 🎉
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William Dale #TheRedHat Jun 22
When PROs are e-shared with clinicians, the agreement between patients and clinicians goes WAY up. How surprising, at least to clinical trialists.
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Dr. Kelly Shanahan Jun 22
This slide from shows that docs really aren’t capturing our experience as patients
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NEJM Jun 22
Original Article: Clinical and Genomic Risk to Guide the Use of Adjuvant Therapy for Breast Cancer
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patty spears Jun 22
Highly recommend. Language does matter and the thoughtfulness of and in this conversation is right on point
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patty spears Jun 21
Thank you This is a great resource for patient advocates of every cancer.
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ASCO Jun 20
. shares how a productive and collaborative working relationship with biostatisticians can make the cancer research team stronger
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OncoBites Jun 19
So far, a lot of the articles on Oncobites have been revolving around bench research regarding and . Today, we focus on the economic burdens of cancer care. By
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Jo Taylor Jun 18
Replying to @IBCResearch
Thank you & I need to update that as I’ve added an old infographic 🙄these are the right ones with link 👇🏼👇🏼
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TRUtalks Jun 17
Ever wonder how long it actually takes for a drug to make it from the lab to the market? Here's your chance to find out! On 6/24 at 6:30pm, will discuss the drug development process over $4 pints at TRU! Learn more here:
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patty spears Jun 17
I challenge every inclusion/exclusion criteria (ask for justification) and insist on using the new ASCO/FOCR guidance for those criteria. Men in all studies, brain mets in all studies, etc...
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patty spears Jun 17
T3 - stay engaged, be aware, learn more, have empathy, don't run away from what is scary, speak up, speak loud, don't give up being an advocate for breast cancer --
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patty spears Jun 17
The metastatic voice is so important because of this--as I hear a friend tell researchers...I AM going to need the new drug you are developing. bc never goes away - always needs to be 'treated'..we need better treatments that are less toxic and are active longer.
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Jo Taylor Jun 17
Complications with any standard op have a small % risk, explained you may die BUT you are TOLD about every poss issue - yet ~30% will get incurable BC with a median life expectancy 2-3 yrs but people dont know red flags -here they are for ductal & lobular
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patty spears Jun 17
I also think the graphic that has on cancer needs to go viral. I retweet every time I see it. It is something every bc patient needs to know... what happens when your bc goes to other parts of your body? How will you know?
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patty spears Jun 17
Replying to @stage4kelly
Agree... having so many friends think they are 'done' with cancer become metastatic...we all need to make this a priority and learn as much as we can from those with breast cancer...pay attention to what is going on... especially when talking research!
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patty spears Jun 17
Replying to @danielle_dk
I agree... unfortunately.... so many are still afraid of saying the word ... ... it still needs to be vocalized by the entire bc community to amplify and make THE topic of research conversations.
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