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pns-pcd (amanda)
Paraneoplastic Cerebellar Degeneration. Wheelchair. Spoonie. Breast Cancer. @ pnspcd_ on Instagram.
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317
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301
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Tweets
pns-pcd (amanda) May 19
We were planning on going to wrestlemania in America next year but I really don’t want to spend my tourist dollars there..
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pns-pcd (amanda) retweeted
Natalie Mirosch May 18
"Your crush is coming act natural"
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pns-pcd (amanda) May 18
Broken and in bed! But happily watching Eurovision!
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pns-pcd (amanda) May 18
In bed, with my leg elevated, waiting for
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pns-pcd (amanda) May 16
I made a info graphic on Paraneoplastic. Please share for awareness.
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pns-pcd (amanda) retweeted
laney May 13
He’s so grateful 😭
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pns-pcd (amanda) May 12
I do not recommend breaking your leg while having an essential tremor and twitches. Every little jerk HURTS. I’m not allowed to get up from bed for a week! Pfft
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pns-pcd (amanda) May 10
there is competition for rare diseases in the illness/medical/research community Awareness for pns is everything because its related to cancer.
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pns-pcd (amanda) May 1
Replying to @fromsarahlex
They will lose them quickly! I gain and lose normal followers quickly lol!
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pns-pcd (amanda) Apr 11
Replying to @fromsarahlex
Ok, what is holly oaks? I see a lot of people talking about it online and I’m an Aussie in The Netherlands so I have never seen it!!
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pns-pcd (amanda) Apr 8
Replying to @fromsarahlex
I find it a little cringe but during chemo I had a lot of people praying for me and I grew it accept it more! It’s not about them wanting to heal you as much as them thinking about you and hoping for the best outcome though their beliefs.
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pns-pcd (amanda) Apr 2
Do you know much about Paraneoplastic syndromes or do you focus on anti nmdar encephalitis?
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pns-pcd (amanda) Apr 2
Replying to @softsoulcomplex
I fully understand! I’m looking for a swim up pool with a view for my 40th in a few years but they don’t have accessible showers in those expensive rooms. I guess accessibly aids are ugly!
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pns-pcd (amanda) Apr 1
Deciding between accommodation with an accessible shower or a view. Apparently you can’t enjoy luxury and be disabled.
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pns-pcd (amanda) Mar 31
So many great tweets about Anti NMDA receptor encephalitis! It even mentions Paraneoplastic! I can’t wait to listen to the talk. Paraneoplastic is the next step during the conversation.
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pns-pcd (amanda) Mar 31
Replying to @fromsarahlex
That happened over here too! We chose the only one who quoted us and he moved country and didn’t finish!!
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pns-pcd (amanda) Mar 28
A restaurant said they are wheelchair friendly but only do reservation for groups. It’s always busy on weekends. I get panicked thinking about finding a table when it’s crowded! Why can’t restaurants do reservations for wheelchairs?
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pns-pcd (amanda) Mar 26
Replying to @fromsarahlex
Omg there’s nothing more scary than a raging mumabear!
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pns-pcd (amanda) Mar 20
I’m so frustrated. I’m looking for luxury accommodation that’s wheelchair accessible for an important birthday! It seems you can’t have a view and an accessible shower. I really like showering.
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pns-pcd (amanda) Mar 17
People really suck. That’s what it comes down to
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