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Lee Millard
1/ 300 is the lifetime risk of developing . My living with Motor Neurone Disease blog. My just giving page
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Lee Millard Aug 1
New to my blog? If you are interested in treatment research challenges take a read of my Devil detail series subjects like the need for placebo trials currently and more. I am publishing a new one this week on the UK Drug regulatory pathways.
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Lee Millard 18h
Gene therapy is really gaining its ‘spurs’ now for neurodegenerative diseases with a 3rd therapy approved by the FDA for Spinal muscular atrophy (SMA). Treatments for are now only a matter of time. Technology is now mainstream.
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Sean McGrath Aug 6
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Mark Gately Aug 6
Taking part in the National Motor Neurone Disease Association Policy Session for Campaigners with many friends and colleagues around the country to name a few
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Prof. Peter Doherty Aug 5
It's far from completely safe and clinical trials so far haven't supported the perception of efficacy. The reason we do blinded trials is that it's so easy for even experienced investigator to be fooled, especially with an infection where there's such a broad range of symptoms.
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Lee Millard Aug 5
Replying to @SkyNews
No surprise. Were a dying brand before crisis. Shops gloomy and everything acquirable elsewhere.
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Lee Millard Aug 4
Very good session on polygenics in . A lot still to discover.
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Lee Millard Aug 2
If you have taking riluzole is a no brainer if you can tolerate (blood tests will validate) You mustn’t think it’s not doing anything because you don’t see/feel symptom change. I know a lot have discontinued for this reason.
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Lee Millard Aug 1
New to my blog? If you are interested in treatment research challenges take a read of my Devil detail series subjects like the need for placebo trials currently and more. I am publishing a new one this week on the UK Drug regulatory pathways.
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Lee Millard retweeted
Lee Millard Jul 24
This is a major step forward in trial platform improvement. Platform trials alone are nothing without essential new tools/targeting/stratification. Great news!
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Lee Millard May 3
‘Post Analysis’ in disease clinical trials (eg ) is a ‘Hypothesis generation tool’ & NOT, critically, a ‘Hypothesis proving tool’. This important distinction is often overlooked by observers. This & more I discuss in my “devil detail series”...
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Lee Millard retweeted
Sabrina Paganoni, MD, PhD Jul 30
Phenomenal opportunity for spearheaded by with the UK based Cullen Education and Research Fund -new medical prize - €1 million to incentivize See email info@cerfprize.com for info 👏
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Lee Millard retweeted
MND Research Jul 25
Find out how neuroscientist, Sophie Nyberg (previous researcher from ), has been helping with testing during lockdown at in in our new guest blog 🧠👩‍🔬
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Lee Millard May 26
Hi readers! It’s onein300 here back with another post of “guff” whilst living with . Dare you break lockdown & visit Fantasy Island? I’ll be back soon with a serious post but for now...
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Lee Millard Jun 16
In this week of awareness you might like to start to read my blog - both serious research posts and also weekly British guff! - 1 in 300? That’s the lifetime risk for anyone of developing and .....
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Lee Millard Jul 24
This is a major step forward in trial platform improvement. Platform trials alone are nothing without essential new tools/targeting/stratification. Great news!
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Dr Ahmad Al-Khleifat Jul 22
Fantastic news. will be taking part of phase 3 SOD1 gene therapy 🎉
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Lee Millard Jul 22
. thank you for saying if you had billions to spare to setup a centre to just cure 1 disease in phone in re Jeff Bezos wealth! But to be honest we only need £50m/£100m when you consider the gov only gives £3m a year to research currently! Help us?
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Lee Millard Jul 20
It was a dodgy lasagne from memory!!!
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Lee Millard Jul 19
I was flabbergasted you gave airtime for this. You might as well try banana milkshake!
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