Twitter | Search | |
This is the legacy version of twitter.com. We will be shutting it down on 15 December 2020. Please switch to a supported browser or device. You can see a list of supported browsers in our Help Center.
MND Campaigns
Campaigning on behalf of people with motor neurone disease , by . Join us at . Monitored weekdays 9am-5pm.
13,320
Tweets
1,536
Following
7,466
Followers
Tweets
MND Campaigns retweeted
JL Wilkinson 8h
1 in 300 people get mnd? I thought it was a lot lower than that!
Reply Retweet Like
MND Campaigns 8h
research into causes and treatments is progressing. But it's dependent on sufficient Gov't investment. Very soon, , & will be launching the campaign to ask Gov't for £50m over 5 years. Read more 👇🏽
Reply Retweet Like
MND Campaigns 11h
Today is . Unpaid have faced huge extra pressures during , impacting their health, well-being and finances. 💁🏽👩🏽‍🤝‍👨🏻 We want to see an urgent, more generous increase to to better reflect their contribution.
Reply Retweet Like
MND Campaigns 15h
Thank you to Lord MacKenzie & Patron Baroness Finlay for raising access to vaccines for people with in the Lords today. We’re calling for people with to be given higher priority on the list & are writing to the Joint Committee. 💉🖊️
Reply Retweet Like
MND Campaigns Nov 25
Replying to @mndcampaigns
Big announcements on Public Sector pay freeze. Whilst some professions will be protected, we are disappointed that it appears essential workers will not receive a pay increase 🏥(5/5)
Reply Retweet Like
MND Campaigns Nov 25
Replying to @mndcampaigns
Short term investment in seems to be minimal compared with the struggles the system is facing. Once again proposals for long-term reform to create a sustainable system have been pushed back. 🧑🏽‍⚕️(4/5)
Reply Retweet Like
MND Campaigns Nov 25
Replying to @mndcampaigns
We're disappointed to see no commitment to extend the uplift to the basic rate of by £20 beyond Spring next year or to extend the uplift to legacy benefits. No announcement as yet on 💰(3/5)
Reply Retweet Like
MND Campaigns Nov 25
Replying to @mndcampaigns
£15 billion in research and development funding have been announced, but no details available. We continue to call for specific investment in 🧑🏽‍🔬 (2/5)
Reply Retweet Like
MND Campaigns Nov 25
📢Important announcements and missed opportunities in today’s . These include £573m for Disabled Facilities Grants & £71m for the Care and Support Specialised Housing Fund, supporting people to live independently. Read the thread for more ⬇️(1/5)
Reply Retweet Like
MND Campaigns retweeted
susie rabin Nov 25
Great to have taken part & talk about progress at Westminster - looking forward working together to in NI
Reply Retweet Like
MND Campaigns retweeted
BBC Breakfast Nov 23
"At the moment on the table there is no cure" Former Scotland rugby union player, Doddie Weir tells what difference new funding into motor neurone disease will make.
Reply Retweet Like
MND Campaigns retweeted
Ammar Al-Chalabi Nov 23
We need to find a cure for . It will kill 1 in every 300 people. In the UK, most research funding currently comes from charities like , and . Now we need to step up and build on the huge progress the ice bucket challenge generated.
Reply Retweet Like
MND Campaigns retweeted
MND Association Nov 23
Our Director of External Affairs will be on very soon to reflect on Pat Quinn, co-founder of the Ice Bucket Challenge, who has died. The viral challenge was vital for ALS/MND organisations across the world. Click below 📻
Reply Retweet Like
MND Campaigns Nov 23
Signed this letter to on the 👊
Reply Retweet Like
MND Campaigns Nov 23
Reply Retweet Like
MND Campaigns Nov 20
We're pleased that a motion asking to renew their commitment to the passed unanimously yesterday, when it was raised by and seconded by . This is a great step towards improving home adaptations locally. 👏🏾👏🏼
Reply Retweet Like
MND Campaigns retweeted
Nur Nov 19
Hi . hope you are well! I wanted to follow-up if you have received next steps/actions from housing & regeneration teams in regards to the campaign? Again thanks for the support.
Reply Retweet Like
MND Campaigns retweeted
David Ward Nov 18
A very good meeting with great presentations . Thanks for inviting & myself to participate & share our experience with our much loved son Alex Ward who passed away in July.
Reply Retweet Like
MND Campaigns retweeted
APPG on Motor Neurone Disease Nov 19
Thank you and for attending and sharing a small part of Alex’s story. We look forward to hearing more about his journey in due course.
Reply Retweet Like
MND Campaigns Nov 19
Replying to @mndcampaigns
1⃣ Increase funding for home adaptations 2⃣ Fund a new MND Research Institute 3⃣ Uplift disability benefits to match 4⃣ Scrap the six month rule and reform access to benefits for terminally ill people 5⃣ Grow a sustainable funding solution for (2/2)
Reply Retweet Like