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Martin Robertson
Young dementia, loud and proud about it! Blog:
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Martin Robertson 2h
Replying to @BryonyShannon
I, as a person with dementia, complained to LA about letter demanding payt of total amount that actually could be paid monthly, no mention of that. Many people had told me of their fear and difficulty in stumping up full amount. Letter changed:result!
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Martin Robertson 3h
I will write a comment on the blog when brain wakes?
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Martin Robertson 19h
Very worrying that Greenpeace has been labelled an extremist organisation. Used to be a street activist with them and Friends of the Earth in 90’s. Great fun, but not very consequential! 1984 here we come...
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Martin Robertson Jan 16
Got diagnosis, kicked out into empty waiting rm at 6.30pm, now working with local nhs to get posters up signposting.
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Martin Robertson Jan 16
What about those who require/apply for care but get turned away? Shouldn’t you be fighting for more, much more resources. Too much self congratulations.
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Martin Robertson Jan 14
Replying to @agescotland
In my opinion Partnership Boards don’t want to know personal experiences that would show them how to be more efficient..plenty of stories to tell about this..
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Martin Robertson Jan 14
My take on holidays and how they affect those with Dementia and their carers.
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Martin Robertson Jan 14
In hindsight, glad to not get on Partnership Board, at interview they asked if I networked enough! Boy, the stories I could tell them of the dysfunctionality within the system! I don’t know where to start with complaints or whether it is even worth it...
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Martin Robertson Jan 14
I live in Aberdeenshire, aged 61, with dementia. I thought we had got the name changed from “older people...”, what about us under retirement age? When I first saw consultant I saw title on letter and was enraged, he admitted it was wrong. Pls learn..
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Martin Robertson Jan 13
We are not sufferers!
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Martin Robertson Jan 11
2; Groups such as Strategy Grp, but they don’t even have a timetable for appointing onto this. Will still work with staff, but equally will inform Board if meeting minutes show lack of awareness. Sad, but have plenty of time (too much?) to do this..
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Martin Robertson Jan 11
1; Tried to get on Partnership Board, that decides spending priorities for health and social care, pitched that I wanted members to hear the human consequences first hand. Did not get it, more suitable in other groups they said.
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Martin Robertson Jan 8
Replying to @distantfins
I know I am no professional expert, but these skills are essential for all pros, especially in my area of dementia. I always say we are the experts because we live with it 24/7/365, and the pros should encourage us to talk and then listen.
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Martin Robertson Jan 6
Replying to @lisawad34250630
Christmas is a terrible time of year for those grieving and/or lonely. I have been both in the past, it can (no false promises) get better. I still hate it as it is so false mostly. I have early dementia and will follow u to give encouragement.
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Martin Robertson Jan 5
Replying to @BrokenByWar
My dogs, walking them..
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Martin Robertson Jan 3
Replying to @TraceyShorty28
2; council has put me in touch with local charity “st Vincent de Paul”, catholic, but not preachy. Think nationwide, man helps with garden but also phones for a chat; helps both of us. Look for them locally!
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Martin Robertson Jan 3
Replying to @TraceyShorty28
1; Yeah, we have a mental health outreach nurse too, my wife/carer uses her as a shoulder to cry on. The long break sticking us together has been hard for her, not so much for me. Our dtr lives half mile away so that helps a bit.
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Martin Robertson Jan 3
Replying to @TraceyShorty28
I only know you thru Twitter, someone is always here, AlzScot have a 24 hr/365 helpline to talk to, I presume Alzengland do too. Always remember you have your cats to talk to! Me and my dogs have lots of conversations, always what I want to hear..
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Martin Robertson Jan 3
Replying to @GailGre59728262
I tell people where I am going that I might/will need a quiet room to go to for a while, so far all have understood.
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Martin Robertson Dec 27
Hope you are both spiritually revived and physically, ready for the new year and new challenges.
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