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liz blows
Founder of SPS Charity and Support Group For Stiff Person Syndrome
183
Tweets
227
Following
136
Followers
Tweets
liz blows 12 May 19
Replying to @LibbieRead
Fab, I will look tomorrow. Thanks Libbie.🤣
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liz blows 12 May 19
Replying to @ZoeTheBall
Hi Zoe, U prb forot me. No charity card with me in Brighton Please look at (Hope you can respond). Luv & Stuff, Liz.
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liz blows 22 Mar 19
So worthy!
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liz blows 13 Mar 19
Replying to @MRoseRoberts
Hi Mary Rose, your cat is always in the sink because you are out doing the fabulous work which helps so many people, (but not your cat). lol
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liz blows 7 Mar 19
Any group will do well with Eleonora on your side. She was a tremendous mentor for Stiff Person Syndrome last year.
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liz blows 1 Mar 19
Replying to @TheMightySite
Both my adopted son and my nephew have autism, but not savants (French for 'to know') which is what 'Shaun' has in the Good Doctor.
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liz blows 1 Mar 19
Replying to @findacure_fdn
Well done all. I was at Westminster on Wednesday.
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liz blows 26 Feb 19
Replying to @rarediseaseuk
1 in a million - are we not worth saving?
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liz blows 20 Feb 19
Prime Minister Theresa May: Stop the NHS Denying Patients Access to Medical Cannabis - Sign the Petition! via
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liz blows 19 Feb 19
I’m supporting by sharing my rare disease experience, to offer comfort and hope to other patients and their families. Illuminate the Read my story and add your star for
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liz blows 17 Feb 19
It's the 27th in England. (Brexit meetings need the rooms).
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liz blows 5 Feb 19
Replying to @rarediseaseuk
Sorry I missed it. Will it be available soon?
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liz blows 30 Jan 19
Stiff Person Syndrome support Group; One in a million worlwide. We provide help, support to sufferers and their families.
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liz blows 30 Jan 19
No need for arguing, Patent groups ARE the strongest wepon against Rare Diseases. Who wants to be alone and feel alone with a Rare Disease?
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liz blows 28 Jan 19
This is my pic for RDD 2019
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liz blows 18 Jan 19
Replying to @findacure_fdn
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liz blows 18 Jan 19
Replying to @findacure_fdn
Thanks, it's on our website under 'photo's. x
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liz blows 12 Jan 19
I have been in touch with the Genetic Alliance, but they said "No" to Stiff Person Syndrome. Bar stewards.
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liz blows 12 Jan 19
Replying to @findacure_fdn
Already got train tickets!
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liz blows 8 Jan 19
Please look at our website and once you have emailed me at liz.blows@smssupportgroup.co.uk you can be added to the world map. Perhaps there is someone close by with SPS you don't even know!
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