Twitter | Search | |
liz blows
Founder of SPS Charity and Support Group For Stiff Person Syndrome
183
Tweets
227
Following
130
Followers
Tweets
liz blows May 12
Replying to @LibbieRead
Fab, I will look tomorrow. Thanks Libbie.🤣
Reply Retweet Like
liz blows May 12
Replying to @ZoeTheBall
Hi Zoe, U prb forot me. No charity card with me in Brighton Please look at (Hope you can respond). Luv & Stuff, Liz.
Reply Retweet Like
liz blows Mar 22
So worthy!
Reply Retweet Like
liz blows Mar 13
Replying to @MRoseRoberts
Hi Mary Rose, your cat is always in the sink because you are out doing the fabulous work which helps so many people, (but not your cat). lol
Reply Retweet Like
liz blows Mar 7
Any group will do well with Eleonora on your side. She was a tremendous mentor for Stiff Person Syndrome last year.
Reply Retweet Like
liz blows Mar 1
Replying to @TheMightySite
Both my adopted son and my nephew have autism, but not savants (French for 'to know') which is what 'Shaun' has in the Good Doctor.
Reply Retweet Like
liz blows Mar 1
Replying to @findacure_fdn
Well done all. I was at Westminster on Wednesday.
Reply Retweet Like
liz blows Feb 26
Replying to @rarediseaseuk
1 in a million - are we not worth saving?
Reply Retweet Like
liz blows Feb 20
Prime Minister Theresa May: Stop the NHS Denying Patients Access to Medical Cannabis - Sign the Petition! via
Reply Retweet Like
liz blows Feb 19
I’m supporting by sharing my rare disease experience, to offer comfort and hope to other patients and their families. Illuminate the Read my story and add your star for
Reply Retweet Like
liz blows Feb 17
It's the 27th in England. (Brexit meetings need the rooms).
Reply Retweet Like
liz blows Feb 5
Replying to @rarediseaseuk
Sorry I missed it. Will it be available soon?
Reply Retweet Like
liz blows Jan 30
Stiff Person Syndrome support Group; One in a million worlwide. We provide help, support to sufferers and their families.
Reply Retweet Like
liz blows Jan 30
No need for arguing, Patent groups ARE the strongest wepon against Rare Diseases. Who wants to be alone and feel alone with a Rare Disease?
Reply Retweet Like
liz blows Jan 28
This is my pic for RDD 2019
Reply Retweet Like
liz blows Jan 18
Replying to @findacure_fdn
Reply Retweet Like
liz blows Jan 18
Replying to @findacure_fdn
Thanks, it's on our website under 'photo's. x
Reply Retweet Like
liz blows Jan 12
I have been in touch with the Genetic Alliance, but they said "No" to Stiff Person Syndrome. Bar stewards.
Reply Retweet Like
liz blows Jan 12
Replying to @findacure_fdn
Already got train tickets!
Reply Retweet Like
liz blows Jan 8
Please look at our website and once you have emailed me at liz.blows@smssupportgroup.co.uk you can be added to the world map. Perhaps there is someone close by with SPS you don't even know!
Reply Retweet Like