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Jen Curran Aug 12
Replying to @jencurran
So that’s how not into weight loss I am. That’s how not into lose-weight-and-the-problem-will-go-away I am. And even though part of me wanted to jump head first into that doctor’s weight loss prescription, I knew in my gut something else was wrong. 21/
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Jen Curran Aug 12
Replying to @jencurran
Finally I decided to get a second opinion about this protein which would supposedly disappear with weight loss. This time I got a recommendation for a kidney doctor from my OB (the one who was first concerned about the protein.) 22/
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Jen Curran Aug 12
Replying to @jencurran
I’m saying protein a lot. 23/
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Jen Curran Aug 12
Replying to @jencurran
The NEW kidney doctor took one look at my lab tests and said, “This is not good. And there’s nothing diet or exercise can do to touch it.” I was surprised BUT ALSO NOT. She was clearly concerned. She told me we needed to biopsy my kidneys. And I hoped for the best. 24/
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Jen Curran Aug 12
Replying to @jencurran
For the sake of getting to the point, you’ll just have to trust me that a kidney biopsy is not fun. Do not recommend. Would not endorse. Unsubscribe. 25/
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Jen Curran Aug 12
Replying to @jencurran
When the preliminary biopsy results came back, they hadn’t found anything wrong. Yay! But then more detailed results came back a while later, and it showed something bad. I had too many kappa light chains in my blood. 26/
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Jen Curran Aug 12
Replying to @jencurran
[As far as I can tell, kappa and lambda light chains are made by your immune system. If your body starts making more of one or the other, the extras can start showing up in your blood, urine, organs, etc., and it’s not good.] 27/
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Jen Curran Aug 12
Replying to @jencurran
So this new kidney doctor referred me to a hematologist-oncologist who then biopsied my bone marrow. Another experience I highly suggest you avoid. You’d have more fun at a kidney biopsy. 28/
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Jen Curran Aug 12
Replying to @jencurran
WELL 🥁🥁🥁 the bone marrow biopsy came back and I have multiple myeloma! Bone marrow cancer. 29/
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Jen Curran Aug 12
Replying to @jencurran
Shocking. Gut wrenching. I have a 5 month old baby. I’m not even 40 years old. I’m not even caught up on Big Little Lies. 30/
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Jen Curran
No other tests came back abnormal. I wasn’t and still am not feeling unwell. They barely found it. If I hadn’t had the baby, they wouldn’t have found it until it was possibly way too late. 31/
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Jen Curran Aug 12
Replying to @jencurran
And if I hadn’t gotten a second opinion? Duh. I‘ll already be weeks into chemo by the time the followup with that first kidney doctor rolls around. And who knows how much longer it would have taken her to diagnose me? 32/
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Jen Curran Aug 12
Replying to @jencurran
So here we are and here we go. I’m 38 and I have a new baby and I have bone marrow cancer. Definitely not what I expected. Definitely don’t wanna have to deal with this. But I’m going to beat it. 33/
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Jen Curran Aug 12
Replying to @jencurran
I’m not that nice and I don’t fuck around and I simply refuse to let this shit take over my body. I have a very very lot to live for. (You should see my baby.) 34/
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Jen Curran Aug 12
Replying to @jencurran
The advances in treating this particular cancer have been incredible in the last decade. I’m so lucky. I’m also so so deeply grateful for and humbled by the support we’ve gotten since this began. It’s incredible. 35/
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Jen Curran Aug 12
Replying to @jencurran
From friends and strangers alike, we’ve received beautiful gifts, donations, resources, advice, been introduced to other young people who have multiple myeloma. 36/
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Jen Curran Aug 12
Replying to @jencurran
We’ve been spending quality time with our sweet kid and our family, and my husband and I are feeling so loved by our village. I’m truly ready to tackle this thing head on. Chemo starts August 13th 💪💋 37/
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Jen Curran Aug 12
Replying to @jencurran
TBH a bunch of other crazy shit has happened since the diagnosis that has been a stark reminder that a) this American healthcare system is effed beyond belief and b) women’s health STILL isn’t a priority for a lot of the medical field. But that’s another thread. 38/
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Jen Curran Aug 12
Replying to @jencurran
Here’s the moral of this particular story. Lose weight if you want to. But if you think something is seriously wrong with your body, and a doctor tells you weight loss is the key to fixing it, get a goddamn second opinion. 39/
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Jen Curran Aug 12
Replying to @jencurran
Also, advocate for yourself. Get to know your body, trust your body, and listen to your instincts. And don’t be intimidated to question your doctor! This last one has been really hard for me but I’m getting better at it all the time. 40/
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