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Jennifer atypical poliomyelitis Brea
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Jennifer atypical poliomyelitis Brea retweeted
All Things Considered 48m
The team of astronomers was originally trying to track down a giant planet they think may be lurking at the outer reaches of our solar system. Along the way they found 12 new moons orbiting Jupiter, bringing the total number of Jovian moons to 79.
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Jennifer atypical poliomyelitis Brea retweeted
Robin Justice 3h
Hi Hope today is one of your better days. Would you be willing to RT our GoFundMe campaign for Robin, sick for over 20 years? We all watched your film and admire you. Sending you love and thanks Diana (Robin's, aka Nathalie Newton's, mom).
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Jennifer atypical poliomyelitis Brea 5h
Replying to @NLizaki @JanetDafoe
Oh wow.
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Jennifer atypical poliomyelitis Brea 5h
Replying to @NLizaki @JanetDafoe
And to be clear, I'm not saying this necessarily has anything to do with polio vaccination. The "atypical poliomyelitis" describes the early outbreaks, which were most likely caused by a different enterovirus.
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Jennifer atypical poliomyelitis Brea 5h
Replying to @NLizaki @JanetDafoe
Vast majority of people exposed to enteroviruses (including polio) asymptomatic. In case of polio, only 0.5% infected w/ virus go on to have permanent paralysis. Question is always, what is different about that X %? Age and gender are also risk (or protective) factors.
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Jennifer atypical poliomyelitis Brea 5h
Replying to @NLizaki @JanetDafoe
As with most disease, it's because people have different environmental exposures (infectious disease, allergens, chemicals, lifestyle, diet, in utero environment) and different genes.
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Jennifer atypical poliomyelitis Brea 9h
Replying to @SusanMora3
I also know personally of a few family clusters where one person got ME, spouse T1D, others in family only acute illness or no sx at all.
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Jennifer atypical poliomyelitis Brea 9h
Replying to @SusanMora3
They frequently did during the outbreaks, though. Majority of people w/ enteroviral infections (including polio) never have symptoms. Obviously there are genetic, age, and gender factors re: who is susceptible to developing acute and, later, chronic symptoms.
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Jennifer atypical poliomyelitis Brea 12h
Replying to @SusanMora3
I think that’s right with exception that sometimes there are also just *really* nasty strains of virus:
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Jennifer atypical poliomyelitis Brea 21h
Is it the method (neutralization) or the lab’s specific parameters? If you are curious, John Chia, an ID doc in LA, uses this lab clinically and for clinical research. I am sure he knows everything about this particular assay and its limits.
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Jennifer atypical poliomyelitis Brea 21h
Replying to @Melissa_StatSig
To get the best care, you roobabky want to “join” both communities and see what works for you. This group might help:
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Jennifer atypical poliomyelitis Brea 21h
Replying to @Melissa_StatSig
No there is not. A *part* of this is probably two names/attempts to describe the same condition. But not all people with POTS have PEM or some of the other symptoms that can accompany ME.
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Jennifer atypical poliomyelitis Brea 23h
Replying to @SusanMora3
Of all the possible mediums, Twitter is the worst for conversations like this.
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Jennifer atypical poliomyelitis Brea 23h
Replying to @SusanMora3
The point re: not being in the CSF if it's an old infection that is latent within cells, there's wouldn't it eventually disappear from the CSF if not replicating or really doing anything other than hanging out inside the cell? In this sort of state:
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Jennifer atypical poliomyelitis Brea 23h
Replying to @SusanMora3
"The best science is miles ahead of the best clinical tests." Ain't that the truth! It makes it hard to connect what I can possibly find out about my case clinically with what is happening in research.
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Jennifer atypical poliomyelitis Brea 23h
Oh that is so awesome! If you would like to dip your toe, I can point your way toward many interesting (maddening!) aspects of this relevant to ID.
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Jennifer atypical poliomyelitis Brea 23h
ARUP does a neutralizing antibody test that is specific. My normal clinical labs (complement fixation assay) all made it seem like I had gotten every type of Coxsackie A + B virus at some point in my life. The ARUP lab is able to distinguish which sub-type.
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Jennifer atypical poliomyelitis Brea Jul 16
Replying to @SusanMora3
My understanding is that that is frequently not the case with chronic, non-cytolytic infections, but I don't know if that's a question of "it's never gonna be there" v. sensitivity of the test. I appreciate the info.
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Jennifer atypical poliomyelitis Brea Jul 16
Replying to @PKhakpour
I truly believe that one day we will be a historical curiosity, like late stage syphillis.
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Jennifer atypical poliomyelitis Brea Jul 16
The number of people replying that they have the same symptoms and can’t find adequate help is enraging.
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