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Jennifer Brea
Filmmaker , fighting for Wife of /AAI/TC. Views here mine, not official
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Jennifer Brea retweeted
Jennie Spotila Jan 6
My friend Anne Ortegren died a year ago today. I bless her memory and those who love her. May we all take care of each other:
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Jennifer Brea retweeted
jelani cobb Jan 5
"Likeable" for female politicians seems to be akin to “articulate” for black people — even if people say you possess this quality it only means you’ve passed a test you shouldn’t have had to take in the first place and which has kept most of your peers out of contention.
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Jennifer Brea Jan 6
Sorry...losing steam ATM.
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Jennifer Brea Jan 6
There’s some basic info here re: surgery and anesthesia that links to various outside resources. May be a starting point: I believe there is a list of pain meds that trigger MCAS (and that my doc has this) but I’d need to dig it up.
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Jennifer Brea Jan 6
There are tons of lists re: mast cell triggers but they are really just starting points as everyone is different.
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Jennifer Brea Jan 6
Would rather not get into the details of my specific meds as everyone is different and I already get enough flak for talking publicly about my personal, individual experience.
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Jennifer Brea Jan 6
If private companies had to internalize the costs of the damage and death they have wreaked on the environment and human health...
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Jennifer Brea Jan 6
It also COSTS a lot of money. Recognizing the extent of the problem...the renovations, the tear downs, the toxic water cleanups, direct medical costs, lost wages, lifetime disability. In short, the lawsuits.
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Jennifer Brea Jan 6
Replying to @disabilisaur
LOL, as soon as I wrote that I thought, wait, am *I* allergic to lavendar? I actually can’t remember. I think I’m fine with the thing that actually grows in the ground but that whereas a few years ago I was fine w/ lavendar essential oils, I may no longer be able to tolerate them
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Jennifer Brea Jan 6
Some pain meds make my MCAS worse. But pain itself definitely makes my MCAS worse, too!
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Jennifer Brea Jan 6
...but like everything, it’s probably going to have to be bespoke and highly tailored to each individual patient’s set of genetic, environmental and infectious issues. I have no idea how we create a medical system remotely capable of doing that.
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Jennifer Brea Jan 6
Which is why I think increasingly it’s possible to use meds (and other treatments) that already exist to help create internally reinforcing, virtuous cycles if we understood all of this better...
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Jennifer Brea Jan 6
E.g., my MCAS meds have significant effects on my pain. Both my pain meds and pain itself on my mast cell degranulation. My antivirals on my inflammation. My anti-inflammatories on ability to fight infection.
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Jennifer Brea Jan 6
And how when I think I am taking a drug for one reason, it is having crazy broad effects (for good or ill) across or in interaction with every bucket.
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Jennifer Brea Jan 6
...there is a lot more reading I need to do but I’ve been so struck over the last many months re: how closely related pain, inflammation, MCAS, and “exercise” (really energy expenditure) are.
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Jennifer Brea Jan 6
There is so much we don’t know about how any of this works, but these interrelationships are so important...
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Jennifer Brea Jan 6
Similarly, I would not be surprised if effective control of your MCAS, PK, would improve your immune system’s innate ability to fight Lyme *and* make all your treatments more effective.
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Jennifer Brea Jan 6
...the Coxsackie B4 that I may have as a persistent infection, and which we have no way of directly treating, takes advantage and starts acting up.
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Jennifer Brea Jan 6
Another example: one of my ID doctors is pretty certain (and I think there is some logic to this) that when I go off antivirals and HSV-1 (and presumably other herpesviruses) increase their replication...
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Jennifer Brea Jan 6
So for example, one of the first things when I started antivirals was that it reduced my MCAS reactivity to mold. In other words, inhibiting replication made me less overreactive.
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