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Emelia Moray 1 h
Ayr Hospital where Dr Cheung promises a frail patient an MRI x3, & then doesn’t do one. Says No infection & his Jnr finds one. Gives No meds, and decides to discharge. , let’s pray nothing goes wrong eh?
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feesplace189@gmail 2 h
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Rachel Martens 3. velj
EXCELLENT knowledge nuggets on and being I look forward to hearing more from you at the conference Susannah! I've been trying to bring Canadian families/patients together myself for more knowledge exchange on how to get involved in legacy data creation.
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Tracy Gohrick 3. velj
Chalk talk Today’s topic: Is your negative self talk always yours? via #undiagnosedhelp
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Smith Genomic Clinic 3. velj
Did u know? 25-35 million Americans are living with a . That’s why the Smith Family Clinic was established – to find answers for those suffering from rare & diseases w/ the power of . Get in touch today 256-327-9640
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Kayla Cook 2. velj
Come Back In 2 Weeks (You Can Be Seen in 6 Weeks) via
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Arctic Paul 1. velj
I wonder what the expected number of cases of are based on the number cases diagnosed anyone know?
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Start Living Today PD Heidi 1. velj
Well last night I had a good cry. . & a little too much wine 🍷😬 We all need to relieve that pressure valve. Strength isn’t always battling on. Strength is the ability to let go too 💚
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Isabell Hale 31. sij
.I saw comments on and he is RIGHT. has deep and serious problems first and foremost he is a pathological among many issues, and other mental issues.
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undiagnosedhan 31. sij
The pain is what keeps me going daily. I wanna know what and why my body is going through all of this. I won’t give up until I have a answer
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Emily 31. sij
I don’t know why I’m having such a hard time right now, but I know a few things need to change. I’m just trying to figure too much out at once and I can’t slow down or it’ll never happen.
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UDN 30. sij
3 years ago today, the UDN PEER held its first face-to-face meeting here at ! Learn more about the PEER at
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Share4Rare 30. sij
By sharing your experience about your child's you help other parents that are going through the same process. Share4Rare collects all that knowledge to advance research and this might even help patients:
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Ritu Kapadia 30. sij
" is the of the . " - As we know that do not occur but happen after a period of . Today is – (1/2) @ClaireJathanna
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Matthew Graybosch 30. sij
Odgovor korisniku/ci @ostential
Shit like this makes me glad I went until middle age. This looks like for people. It's barbaric.
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Stop the Corruption 30. sij
Odgovor korisniku/ci @oufenix @WildPalmsLtd @Jhogan552
Positive-he WILL COMMUTE his sentence either when ousted or in Nov. TRUE tragedy. I understand especially a child or young adult whom has a related disability;& live in nonreality state 24/7/365. They can have homicidal thoughts, etc. THIS IS REAL & COMMON
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Violeta Astratinei 29. sij
rare diseases remain, unfortunately, a challenge for both patients and research
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Share4Rare 29. sij
Knowledge is paramount to advance in research. But how do you map so scarce that it might affect just one person in the world? Welcome to the world of rare diseases:
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