Twitter | Search | |
Search Refresh
Chronically Hopeful ๐ŸŒป Char Apr 11
That moment all your blood tests came back normal and you realise that isn't good news because that means you are a and they don't know what to do with you. Left to manage alone.
Reply Retweet Like
Chris Evans MP Oct 24
Attended today's viewing of the film Unrest - a must watch. The condition ME urgently needs more research funding
Reply Retweet Like
Dragonflies & Dreams May 7
is a severe, debilitating chronic neuro-immune disease with more than 60 symptoms that worsen after even minimal physical, emotional or mental activity, but do not improve with rest. ME is NOT just "feeling tired".
Reply Retweet Like
Fatigo_MECFS Aug 17
I'm sick of the 'No physical abnormalities in ' thing, while there is not one biomarker, there are a number of testable metabolic and immune abnormalities in patients that together can indicate or point towards ME
Reply Retweet Like
A Londoner's London Mar 13
7 days before my 50th year begins & my took 1 1/2 days away from me yesterday. trying to prevent me from organising my . It's been a 30 year battle, so please raise a glass with me on 20th March 2018 I'll win by hook or by crook.
Reply Retweet Like
Peter Tatchell Apr 7
Patients with ME are demanding justice. There are political, social & medical issues surrounding the trial. READ:
Reply Retweet Like
Fran WH May 12
Weโ€™re making the from society due to visible on . Great turn out in Manchester, UK ๐Ÿ‘ ๐Ÿ‘Ÿ๐Ÿ‘ž๐Ÿ˜Ž๐Ÿ‘๐Ÿผ We need better awareness, more biomedical research, and equal access to care for .
Reply Retweet Like
๐ŸŒน Witch, Hunting ๐Ÿ’€ Jan 15
Whether or not you think you know anything about Chronic Fatigue Syndrome, I urge you to watch on Netflix. It's beautifully made and incredibly eye-opening. CFS is not what I thought it was.
Reply Retweet Like
Simone Jan 24
A cousin messaged me tonight to say that she watched on Netflix. She said she was sad to see what I'm going through. She said that I'm not forgotten, that she sees me, that I am not invisible. I cried.
Reply Retweet Like
Neglected Chronic Illnesses Foundation Apr 30
"It never occurred to me that one day I would get sick and never get better."
Reply Retweet Like
M.E. myself and I Nov 11
I used to have 'good' minutes, then 'good' hours, and now I can have whole mornings/afternoons or even 'good' days. I must remember that. Slow progress is better than no progress
Reply Retweet Like
linnea therese Jan 20
Iโ€™m in tears from watching Unrest on Netflix. The most moving documentary I have seen in a long time. Everyone should se it.
Reply Retweet Like
Elisabeth R Apr 21
I want to thank everyone who are fighting together for each other ๐Ÿ’™ itโ€™s
Reply Retweet Like
Hannah Radenkova May 12
Reply Retweet Like
Athanasia Mowinckel Jan 22
Watched with SO that has and there was so much relating, tears, and even some laughter. Its so much our lives, and those we know who suffer's loves. It's so bold and truthful, and makes me want to shout in anger for all the injustice.
Reply Retweet Like
Lauraโ€™s Pen Dec 18
Why I would love my friends to watch Unrest, a film about ME
Reply Retweet Like
A Londoner's London Aug 16
Totally beaten by today. takes hours, The barriers to moving like , , infrequent all too much. If I had a bed would crawl into it, as it is, just stuck where I am.
Reply Retweet Like
Sonya May 13
Me: We need more funding! NIH: Last year I gave you 6 pennies, and this year I gave you 12. So I doubled your funding. Me:
Reply Retweet Like
Jennie Spotila Feb 13
Every day people with wait for to fund enough scientists to save our lives and reverse disability. And wait. And wait. And wait.
Reply Retweet Like
Jackie May 12
I'm Jackie, I just turned 18, and I'm one of the . ME patients need and deserve health equality and proper research and treatment.
Reply Retweet Like