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Chris Evans MP Oct 24
Attended today's viewing of the film Unrest - a must watch. The condition ME urgently needs more research funding
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Fatigo_MECFS May 13
The reality of for patients with who managed to attend yesterday, is that today they will be in a crashed, exhaustion state for atleast a day, maybe 2-3, maybe a week or the most severe for month/s
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Chris P Ponting Jan 11
Beautifully wrought film () by awash with loss due to ME/CFS. Note to scientist self: when ignorant, admit this. Note to science funders: when ignorant of cause, pump-prime to generate testable hypotheses.
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Dragonflies & Dreams May 7
is a severe, debilitating chronic neuro-immune disease with more than 60 symptoms that worsen after even minimal physical, emotional or mental activity, but do not improve with rest. ME is NOT just "feeling tired".
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Sonya May 13
Me: We need more funding! NIH: Last year I gave you 6 pennies, and this year I gave you 12. So I doubled your funding. Me:
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Simone Jan 24
A cousin messaged me tonight to say that she watched on Netflix. She said she was sad to see what I'm going through. She said that I'm not forgotten, that she sees me, that I am not invisible. I cried.
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☘️ME Amanda🌷 May 11
We are finding each other online, and in doing so, finding our voices. Let this be the last generation of humans who struggle to find a doctor who believes, or has even heard of, ME!
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Evelyn Feb 26
Today a medical professional asked me if I had seen Unrest. It was pretty cool. Congrats !
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Rajiv Sondhi May 11
Missing millions action starts today, in Auckland
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Je Banach Jan 23
I know that some feel disheartened about 's not continuing on in the Oscars race, but today we are featured in Vogue's Beauty & Health e-newsletter; we're also about to hit 11,000 shares on a single Facebook post--And we're just getting started!
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Dragonflies & Dreams May 6
I am one of the . Millions with (ME) are missing from our careers, social lives, families and hobbies. We miss having a life. Please support the OMF ().
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Dragonflies & Dreams Feb 19
"...the level of functional impairment in people who suffer from [ME/]CFS is comparable to multiple sclerosis, AIDS, end-stage renal failure, chronic obstructive pulmonary disease...”
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Sonya May 13
LOVE these amazing ladies who came all the way down from Phx to attend our Intl Day of Action event in Tucson yest!
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Jack Croxall Oct 27
Last night I saw + Q&A with . Wonderful, heart-wrenching film. My thoughts here:
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Neglected Chronic Illnesses Foundation Apr 30
"It never occurred to me that one day I would get sick and never get better."
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Leanie W Feb 23
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Jackie May 12
I'm Jackie, I just turned 18, and I'm one of the . ME patients need and deserve health equality and proper research and treatment.
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A Londoner's London Mar 13
7 days before my 50th year begins & my took 1 1/2 days away from me yesterday. trying to prevent me from organising my . It's been a 30 year battle, so please raise a glass with me on 20th March 2018 I'll win by hook or by crook.
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Steve Topple Mar 22
"The mainstream medical community just declared war on people living with ME". My article on the latest research, and the response from the SMC. Please read/share widely
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A Londoner's London Feb 2
Not only did I win my fight against in relation to & my at the but the agreed to watch & included it in her notes in order to understand the better
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