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Jack Croxall Oct 27
Last night I saw + Q&A with . Wonderful, heart-wrenching film. My thoughts here:
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Chris Evans MP Oct 24
Attended today's viewing of the film Unrest - a must watch. The condition ME urgently needs more research funding
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Dragonflies & Dreams May 7
is a severe, debilitating chronic neuro-immune disease with more than 60 symptoms that worsen after even minimal physical, emotional or mental activity, but do not improve with rest. ME is NOT just "feeling tired".
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Simone Jan 24
A cousin messaged me tonight to say that she watched on Netflix. She said she was sad to see what I'm going through. She said that I'm not forgotten, that she sees me, that I am not invisible. I cried.
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Dragonflies & Dreams Feb 19
"...the level of functional impairment in people who suffer from [ME/]CFS is comparable to multiple sclerosis, AIDS, end-stage renal failure, chronic obstructive pulmonary disease...”
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Leanie W Feb 23
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A Londoner's London Mar 13
7 days before my 50th year begins & my took 1 1/2 days away from me yesterday. trying to prevent me from organising my . It's been a 30 year battle, so please raise a glass with me on 20th March 2018 I'll win by hook or by crook.
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Sonya May 13
Me: We need more funding! NIH: Last year I gave you 6 pennies, and this year I gave you 12. So I doubled your funding. Me:
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Jackie May 12
I'm Jackie, I just turned 18, and I'm one of the . ME patients need and deserve health equality and proper research and treatment.
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Dragonflies & Dreams May 5
A bed is no place to live. 1 i4 people with (ME) have symptoms so severe that they're confined to their homes/beds. Most can't find a single doctor who understands this disease or knows how to treat it.
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A Londoner's London Feb 2
Not only did I win my fight against in relation to & my at the but the agreed to watch & included it in her notes in order to understand the better
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linnea therese Jan 20
I’m in tears from watching Unrest on Netflix. The most moving documentary I have seen in a long time. Everyone should se it.
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Neglected Chronic Illnesses Foundation Apr 30
"It never occurred to me that one day I would get sick and never get better."
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Dragonflies & Dreams May 6
I am one of the . Millions with (ME) are missing from our careers, social lives, families and hobbies. We miss having a life. Please support the OMF ().
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Jennie Spotila Feb 13
Every day people with wait for to fund enough scientists to save our lives and reverse disability. And wait. And wait. And wait.
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Hannah Radenkova May 12
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Emily ◟̽◞̽ misses H Nov 25
Finally watched and it was incredibly honest and heartbreaking but reassuring knowing that there are people who working on this illness and who believe us. If you have time please watch it.
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Louise de Sousa 🇬🇧 Feb 6
In the UK, 75% of ME sufferers are women or girls. And it's a disease that's hard to diagnose for which there is, as yet, no cure. Definitely .
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Nat💎 Nov 14
Looking to speak to people w experience of 'pervasive refusal syndrome' diagnosis or similar after not getting better from ME or withdrawing from treatment. I don't have to publish your story and can keep anon otherwise. Pls get in touch
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Fran WH May 12
We’re making the from society due to visible on . Great turn out in Manchester, UK 👠👟👞😎👍🏼 We need better awareness, more biomedical research, and equal access to care for .
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