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Lucia Farfan May 13
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Princess, The Tower May 14
“Don’t take it personally…understand that I don’t cancel plans because I want to. It’s because I have to. I want to go but sometimes I just can’t and I already feel guilty about that.” 10 Ways To Be A Better Friend To Someone With
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hope henderson May 16
hey folks, can we talk about ? this is new for me and NO THANK YOU. how do you all deal?
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Jed Finley 11h
you know how we have those things that we never want the able-bodied people to see because it just shows that we're "not as disabled as we say we are"? This is my thing! What's yours?
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caitlin 🌙⭐ May 19
Anyone have tips to decrease nausea? I have peppermint and ginger candies/tea, I have anti nausea OTC pills, etc. Do those bands you wear on your wrist help?
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Frances Downey May 14
Do you have flu-like symptoms when you are flaring? Thanks for understanding our symptoms & making others aware!
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Kayleigh Kavanagh May 12
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Chrysty Hendrick May 15
for flexibility when I have to cancel because of my illness.
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VenZenix May 14
For the most part I'm here to support and be supportive. I love the and community. But today I let a judgemental person hurt me. I made a comment about my life and apparently she was horrified by it. Thanks a lot for making me feel like crap lady.
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Impalpablegirl May 16
I’m having a really hard time with depression and anxiety right now. If anyone is going through something similar or just wants a friend to talk to or check in with please drop me a message ❤️.
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loafingcactus 3h
This is a good one - when you are having a very clear-headed day and then you take a nap and then you’re body is like sorry we don’t know how to turn the brain back on and you get to be a 25% awake person for the rest of the day.
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~ anne with an e ~ 3h
life is being sent to hospital and admitted overnight only to get home and read that the ER doctor's initial assessment was "appears fine" 😂. As if this is my first time carrying on a civil conversation in excruciating pain. I don't know if I should be angry or proud 🤷‍♀️
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LJ May 20
Mission of the day Take a shower 🚿 A daily 😂🙈🗣️🗣️🗣️🙏💯🏁
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Ashley 22h
How long do you guys usually let a flare go before seeing your doctor?
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🥄SpoonieCult 🧟‍♀️ May 17
Does anyone ever get full body small nerve/muscle twitching?? If so how to fix? It's almost like seizure activity but of all the small nerves. It's body wide. Having trouble w/fine motor skills. If feels like electricity / lightening coursing through body.
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Amy Barrett 5h
Had planned to work on the this evening, but I’m low on spoons and have the beginnings of a cold, which will mean I’m on limited energy the next few days anyway 😔 Instead, I’ll be having a nice long bath and reading 🛁📖 Any other self care tips?
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Impalpablegirl 5h
friends, I’m currently working full time and it’s draining me, how do I cope. Any advice, article links etc would be so helpful.
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Julie Pintozzi 32m
Wasn't daytime TV much better before the advent of DNA testing?
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Marisa Zeppieri 10m
LupusChick Fan Question time! Feel free to respond if you have any experience of advice in the following (answers are not to be a substitute for medical advice):
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Berin 2h
Coming up on 1am Eastern European Time. This is late for me. Hopefully I'm sufficiently beat to sleep well. Hopefully I can finally finish this MS tomorrow and move on to the rest of the stack of almost-complete work.
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