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Princess, The Tower Jul 16
“There’s a lot to grieve—the loss of the ability to be as productive…the loss of friends…cherished activities and independence. Grief comes in waves, and can arrive unexpectedly. One moment, we can feel accepting…the next…overcome by sadness.”
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Fibromychelle™ Jul 16
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The Chronically Unimaginable Jul 18
Do you find yourself getting angry or 'paingry' when in a large amount of pain? I'm usually good at controlling my emotions. However, if pain comes along, then everything goes out the window.
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Surviving As Mom Jul 20
Being at someone else’s house all day is very stressful when you are and have to eat often because of . Are they gonna have food I can eat? Are they gonna think I’m rude if I can’t eat it? I’m gonna have to pack my own food.
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Colitis Boy Jul 16
I am officially in clinical remission! 🙌
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Princess, The Tower Jul 21
“Missing out on life and feeling the weight of disappoint is a crippling side effect of all these symptoms… We mourn the lives we've lived and who we once were. I have always been the one to take care of everybody—now I struggle just to keep up.”
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Scarlett Franks 🏳️‍🌈 Jul 14
today I had pre-admission for surgery & HEALTH PROFESSIONALS LISTENED TO ME & respected my concerns & didn't treat me like an idiot or condescend me 😭😭😭 I can die happy now (but I won't cause my surgery is gonna go great & my health professionals are...professional!)
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jenny holzer truism machine Jul 22
i need opinions on how bad of an idea it would be to get piercings (on my ear cause nose and lips are sadly out of question due to chronic inflammation) when i have illnesses that prolong my healing process and make me prone to infections 🤔
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Amy Harbottle Jul 18
I can’t be the only who still sleeps with their heated underblanket on in the Summer can I?
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ME&MHinHE Jul 19
Fellow and academics is there something that you wish colleagues and managers understood better about academic life with a chronic illness?
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anna Jul 20
I've had the nicest few days and it's sunny but my body still hates me and I'm having the shittiest fibro flare on the train so I am sad☹
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💛 𝙼𝕩 𝚊𝚞𝚝𝕚𝕤𝕥 🏳️‍🌈 Jul 21
I realized yesterday I have to go out for several hours today. I am still exhausted and in pain, and very short on spoons from the move. I’m getting nauseated just thinking about going out today.
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Amy M. Young Jul 20
Today is why I don't use the term anymore. It's become so useless because people seem to think that you can "bank" spoons. So far from the truth. I took it easy for two days before the concert last night. I am still exhausted and sore.
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DC 4h
Tired, hungry and sore are just permanent states for me lately 🙄
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Kait Jul 21
Can feel a migraine starting. 🤦‍♀️ Prepping, hoping to get ahead of it. My body cannot handle another night of vomitting 😭. Praying to the migraine gods tonight.
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Liz Jul 20
great afternoon's entertainment on Night of the Demon,The Devil Rides out and now Day of the Triffids .some days it pays off being a
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MsShellEarlyYears 7h
Supposed to be going to Cambridge on Thursday for a day out with the eldest, she has an interview for an internship. I will die in this heat. We spoonies don't function in the hotness 🔥🔥🔥😒
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Linda Tannock 🏴󠁧󠁢󠁳󠁣󠁴󠁿⛸👑❄ Jul 21
Aaaand....shingles. Again. Been waiting for the rash all week. Headaches, severe back pain, upset tummy etc. I knew it was coming. Hey-ho! Par for the course, after my holiday! 🙈😣
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wonkyshree 5h
Replying to @kateandcrps
I can't tell you the asinine recommendations I've gotten.
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Magical Buffet 17h
It's not even 7:30 pm and I'm already in bed with a book. Just living my best life!
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