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ERN-EYE Feb 28
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HTC_Olivia T Mar 1
It’s Rare Disease Awareness day! Wiliams syndrome was something I didn’t know until this sweet girl came into my families lives. She is the most kind and loving little angel! Everything about her is amazing!
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NORD Feb 28
What an incredible way to close out 2019 in the United States! Thank you for lighting up New York City in honor of the biggest day of the year for 350 million people around the globe impacted by .
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AVROBIO Feb 28
RareDiseaseDay is in full swing at AVROBIO!
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Melanie Pendergraft Feb 28
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Blueprint Genetics Feb 28
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anilraina@rarediseases Feb 28
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NISHA SHARMA Feb 28
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Rare Patient Voice Feb 28
2019 is today! What action are you taking to raise the awareness of rare diseases today? How about joining and let your voice be heard! Together we can make a difference!
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Catabasis Feb 28
We are proud to support the community today on !
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Wayne Critchley Feb 28
Great turnout for Rare Disease Day on Parliament Hill. ⁦⁩ Thx to ⁦⁩ ⁦⁩ ⁦ other MPs and our own Maureen Smith!!
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CRBPS Feb 28
Supporting at CRB. Thanks to our face painters and to all who donated.
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Chief Terence Monahan Feb 28
Truly inspired to see our NYPD family come together in support of one another’s children for at One Police Plaza. Kudos to Maxim Rezmik for kicking it off with the national anthem!
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HeparCentarBitola 🇲🇰 Feb 28
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EDS Northwest Feb 28
So thankful for the important work does for patients across the globe. 🙏🏻🦓❤️🌎
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Mark Lewis Mar 2
Meet Priscilla the Peacock, the multi-hued mascot for patients with multiple endocrine neoplasia syndromes. We are all different and yet united as birds of a feather sticking together!
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Starlight Feb 28
Starlight kid, Avery, lives with a rare disease that elevates her cholesterol levels by 10x the normal rate. Read about on and how Starlight Gowns bring smiles during hour long procedures.
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MillendoTherapeutics Feb 28
Millendo supports congenital adrenal hyperplasia awareness on .
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NORD Feb 28
How cool is this?! attended a special Event for today at & the police cruisers were decked out in branding! Thank you NYPD for getting involved.
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Rare Disease Live Feb 28
I’m so lucky to have the chance to serve patients and caregivers affected by rare diseases every day. offers us an extra opportunity – if you haven’t yet, !
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