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FoxRube Jul 14
I'm really for real friends
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FoxRube Jul 14
My wife was diagnosed with cancer at the same time my son was diagnosed with . I thought my wife and kid were going to die at the same time.
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FoxRube Jul 14
When my son was diagnosed with I went on a big crusade to sign people up for thinking it would be so easy to get like 500 people to do it. I got about 55 and it was like convincing people to let me pull their 2 front teeth out.
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Dr. Lenora Noroski Jul 6
Yes❣️Severe Combined Immunodeficiency is ~1:50,000 live births|SCID newborns wud be missed becuz they look ‘healthy’ at birth|now all US states screen babies for T-cells|no one can survive w/out T-cells & w/out them, prompt stem cell transplant needed💥
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Brad Crittenden Jul 12
First Alberta baby diagnosed with severe combined immunodeficiency through
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Prof. Bobby Gaspar Jul 10
Thank you! It was a wonderful occasion to celebrate this moving and inspiring book
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Immunodeficiency Canada Jul 8
A new book by Mona Dash, about her experiences as a mum of a child affected by severe combined immunodeficiency.
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Christina Brown Jul 10
Today, 7.10 is as 7/10 people have some sort of chronic illness in America. While this can range from to to like or and even…
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IDF Jul 12
The Newborn Screening Saves Lives Reauthorization Act of 2019 will ensure federal newborn screening programs continue for the next five years, helping infants born with life-threatening conditions like Severe Combined Immunodeficiency (SCID).
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Rafael J Yáñez-Muñoz 26 Sep 17
. shows in massive improvement in survival made by in : 90% from 39.9%.
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Shereen Tadros Jul 9
Lovely launch of ’s brilliant book, tonight. Beautiful reading by Mona and such a moving talk by . Always great when clinicians show the humanity the drives them.
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UCSF Benioff SF Apr 17
Exciting news! Our doctors have been working with researchers at on a new gene therapy to cure babies born without immune systems. The first 10 children in the study have experienced life-changing results.
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Francisco Marty, MD Jun 11
Very interesting case: using haploidentical specific T-cells for treatment of drug-resistant retinitis in a child with who had undergone haploidentical T-cell depleted Approach discussed full text open link:
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Tom Folan Apr 18
In a world which can increasingly seem like it is tethered to a one way ticket to hell in a handbasket, we need more news like this: “An experimental gene therapy has cured eight infants with the so-called Bubble Boy Disease...”
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NIAID News Apr 17
NEWS: can safely correct the immune systems of infants newly diagnosed with the rare X-linked , researchers report in . Scientists from & co-developed the therapy.
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Health First Europe 🇪🇺 Feb 28
In over 30 million people are affected by , including Severe Combined Immune Deficiency 👉 is crucial to ensure babies are diagnosed as early as possible to access life-saving treatment
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Prof. Bobby Gaspar 13 Dec 17
Great to have the opportunity to talk about and on tonight’s . Important to highlight this terrible disease and how we can save lives by
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Yoni Maisel 15 Oct 17
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Prof. Bobby Gaspar Jul 10
Thank you Congratulations on this wonderful and moving book of your life fighting Let your story be an inspiration for other parents
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Bray Hockey Club Mar 4
We are absolutely thrilled to announce that we raised €4,033 last Saturday night for Baby Juniper. A huge thank you to everyone involved in anyway for your support, donations, organising, designing and everything else.
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