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Cambridge Rare Disease Network 11h
Collaboration, co-operation & mobility. Values we fully support as essential to scientific research & development in . Please consider signing this petition. Keep the & collaborating in science - Online petition
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Yoni Maisel Jun 20
RNA, "the lesser-known cousin of DNA," is providing unique insight into ...facilitating both their discovery & Dx
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Better Science Better Health Jun 17
PODCAST Better Science, Better Health: ’ Simone Boselli Discusses the OMP Review and Access to Medicines in the EU ->
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JV Public Relations NY 55m
With phase 2 update, Krystal Biotech eyes phase 3 for rare skin disease gene therapy
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SmilingAngels 18h
Don't give up on love. There is hope and help.
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Shazia Ahmad 3h
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Blu Genes Foundation Jun 22
💡DID YOU KNOW? 95% of don’t have FDA-approved treatments, meaning that healthcare providers must treat a majority of their rare disease patients with drugs and therapies that are not treating their disease, just treating symptoms as best they can.
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Paul Melmeyer Jun 7
Some bittersweet news: today is my last day with . Starting shortly, I’ll be leading ’s policy efforts on drug development. I’ll miss my NORD family dearly, but I’m not going far! I’ll still be fighting for treatments for all with .
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Prasanna Shirol Jun 19
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Raquel Peck 4h
Great read on how the community is embracing true collaborative work to advance progress in the field; goes great with a nice cup of tea (or hot beverage of choice!)
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Leslie Baldwin-Ruthven 20h
Living Rare, Living Stronger
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ERN EuroBloodNet 8h
Following the internal meeting of coordinators, the 8th Coordinators Group Meeting continues with the agenda for today, so many points to discuss!
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Yoni Maisel 21m
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Alexion 4h
Fearless. We encourage our employees to be in their pursuit of better ways to serve patients living with . Visit our careers page at to learn how you can embrace your ‘fearless’ too.
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AKU Society Jun 21
RNA'S role in diagnosing : RNA sequencing can pin down roots of rare diseases - have a read if you want more of an insight into how RNA works
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Leslie Baldwin-Ruthven 20h
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Princess, The Tower 17h
“Each spread is like losing a piece of myself. Each spread feels like is winning and I am losing.” when the road gets rougher: how to deal with a CRPS/ spread | Ship With No Sails
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Keeley 14h
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Mònica Mercadé Pons Jun 19
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Hope the Zebra Jun 21
So excited to be in Houston!
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