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Sally Clare R 🌻 May 18
A friend is popping over this afternoon and she asked if she could bring anything from the shops for me because she had read my latest article on how to help a loved one with 💜 She is now hunting for a present for my husband for his birthday 💜
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🌼Hayley Date🌼 May 18
Son been crashing for 2wks after attempting a 2hr a day schedule at school. He's now got insomnia as one of his symptoms which is new for him. Does anyone know of any herbal sleeping tablets he could take? He's 14 and nearly all I've seen are for over 18
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It can't rain all the time May 18
No words can express my respect and gratitude to Merryn Croft's family for their strength in telling Merryn's story so publicly. I can't imagine how hard it's been on top of losing her. We must have proper research to fight this horrendous illness.
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Natasha 🍒 May 14
😢 My little girl just broke my heart a lil more. We were chatting & she said "I remember when you weren't so poorly & we used to run in the fields & have picnics" she was happy & smiley then burst into tears and said she wishes that would happen again 💔
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Not Just Tired May 18
Inside I'm still the person who wants to rush around getting jobs done before I allow myself to rest. Having to rest, pace myself & turn a blind eye to most jobs, is sometimes sooo frustrating, yet absolutely essential in managing life with .
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justME May 16
Some legal issues that generally need addressed: 1. 'Militant Activist' libel - False representation in media; 2. NHS guidelines continuing to harm patients despite mounting evidence - medical negligence; 3. EC's libel - falsely claiming she received threat letter in public
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💐 Ms Russell  🍃🐿🙌🏼🥄 May 18
I feel at a loss as to what to say anymore... 💭 - Sad lack of understanding by all - Brutal treatment by professionals - Lonely, in the relentless silence - Exhaustion in maintaining positivity in the face of adversity
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Rob May 18
Doctor - The tests didn't find anything,you must be ok. Me - I don't feel ok. Maybe the tests are inadequate and fail to sufficiently diagnose the problem. Doctor - You're silly. I believe in numbers on a screen. Not patient input. Now off you go!
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Gabby Klein May 18
NOTHING ABOUT US WITHOUT US: .
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Sten Helmfrid May 19
Replying to @StenHelmfrid
Ganglionitis can have multiple causes. I don’t know how to diagnose the condition or how to treat it. There have been relatively few autopsies, so we don’t know how common it is in . Point is that the findings suggest pathophysiological processes in the nervous system.
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M.E. Australia May 12
Wishing everyone who took to the streets for yesterday for , a restful day today (and days, weeks but hopefully not months it takes you to recover). Thinking of you and thanking you!
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Jessica May 18
It's been confirmed today via an inquest that my darling friend Merryn passed away from ME. Why did such a beautiful friend have to die for people to believe in . My dearest Merryn, up in the sky, know that you did not die in vain. 💖
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Dr Mark Guthridge May 16
widely misunderstood, suffer from 'post-exertional malaise' (PEM) where even moderate activity causes a worsening of symptoms patients should avoid PEM as it increases proinflammatory cytokines and may delay potential recoveries
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@meactnet
Richard Vallée May 16
The obvious next question is how appropriate it is for a government to force a "treatment" on disabled for which it has no data on efficacy. UK national clinical care guidelines are entirely based on "information not available". Not surprising but highly scandalous.
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Sully May 12
Because the morons decided to name ME, CFS, my family threw me away. My father died recently believing that name meant I was a “f*cking lazy *ss”. Never put 1 of the symptoms in the name of a disease, it only mocks it.
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MEpedia May 18
Did you know that a 1989 study found M.E. patient red blood cells were more cup-formed and less flat than in healthy controls?
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Nicola May 12
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Berlijntje May 13
INVITATION TO MY ONLINE BIRTHDAY PARTY! May 14th: Birthday! Recovering from Berlin, I cannot invite any friends. So I´ld love to celebrate with you! Just let me know you´re there and we´ll toast with a glass of delicious virtual champagne on health for all
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Dr Mark Guthridge May 16
4 days after and events, many will suffer 'post-exertional malaise' (PEM) which can be triggered by even moderate activity Many studies have shown that PEM is an and response to exertion in
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Natasha 🍒 May 18
Replying to @NVintageCherry
What can do to fight the system, the health care professionals who don't believe us or don't treat us fairly, the people who roll their eyes at the mention of ME/fibro/chronic pain? Our suffering is bad but our pain is worsened by lack of compassion 😔
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