Twitter | Search | |
Search Refresh
Laura Elliott Mar 19
A response to the latest misinformation surrounding , and why columnists like Rod Liddle are the ones who are anti-science.
Reply Retweet Like
Snowy Mar 16
I'd like to reiterate, most ME & CFS patients would be overjoyed if CBT or GET actually had some benefit. The idea that we dismiss these treatments because it implies the illness is mental is a deliberate mischaracterisation of our views.
Reply Retweet Like
only ME innit Mar 17
Deliberate mischaracterisation of our views... ...our experiences. ...our lives. If only there were somewhere scholars were bringing us new information about M.E. Bringing us hope... Oh wait. this past week. Plenty of real science for
Reply Retweet Like
Andrea VedelerπŸ₯„ Mar 18
Shoutout to all the amazingly resilient out there who for the last week have continued to stand up for good science, supported each other in every way they can manage, and in general been superhero online warriors in spite of gaslighting and biased misrepresentation πŸ¦ΈπŸ½β€β™€οΈπŸ¦ΈπŸΏβ€β™‚οΈ
Reply Retweet Like
Diane Cullimore 33m
On top of everything else this week I've got a chest infection and the added asthma mate is looking after me though,he won't stop licking me.Bless his sweet heart.Animals know.
Reply Retweet Like
Char πŸŽ€ Chronically Hopeful 12m
Compression socks arrived today. 4 pairs. 😍 They feel like a firm hug on my legs and feet. Relieves the aching. So good!
Reply Retweet Like
Mookpixie ✨ Mar 16
Replying to @CMonaghanSNP
Thank you so much Carol for all you do for . We need allies like you onside to help fight against people like Sharpe with powerful friends in the media. This false, damaging narrative can't continue. So many of us have already been harmed by PACE.
Reply Retweet Like
UK ME/CFS Biobank 25m
-- Samples released! -- We're delighted to confirm delivery of samples to Professor Faisel Khan, Professor of Cardiovascular Medicine at @unidundee. His study looks at regulatory proteins in . All of our collaborators can be found here:
Reply Retweet Like
Diane Cullimore 22h
I am absolutely rock bottom and I just cannot find a way to cope right now.Nobody asks about my illness .Nobody acknowledges it.This week has made this 10 times worse.A life taken away but not acknowledged is horrendous to live with.Things need to change for
Reply Retweet Like
Jenny B Mar 21
People make me sick. No offence, it is really sad, but also really true. I wonder how many other have to self isolate in order to attempt prevention of flares and crashes.
Reply Retweet Like
dov 13h
Reply Retweet Like
Diane Cullimore 38m
Replying to @nosdrahcirharas
Thank you Sarah I really feel for you and your daughter.This continuous damaging of must stop!Its horrible abuse and I hope one day it will be looked on for the terrible scandal that it is xxx
Reply Retweet Like
foggy_westerner Mar 16
Maybe you didn’t notice my first tweet About this severe Staying alive, because he is trying to prevent others from killing themselves. What did you do for today ?
Reply Retweet Like
dov Mar 15
Question for Do you ever get weird sore spots on your skin that feel somewhere between a bruise and a burn? It hurts on its own and it definitely hurts to the touch. I get these sometimes- have a spot like that on my arm right now and just curious if it happens to others.
Reply Retweet Like
ChonkyUnicorn 8h
I managed to vacuum and take the kids to the park. I'm now laying down waiting for my body to stop quivering. I feel like I'm made of jelly. Anxious jelly.
Reply Retweet Like
ME & FM in DKR πŸ‡ΈπŸ‡³πŸ§Ÿβ€β™€οΈπŸ’ƒπŸ½ Mar 21
He s faced abuse bc his work is crap. We, , aren t against research, we re against crap research. Pretty simple really.
Reply Retweet Like
Phoebe Mar 20
I get a big ’s delivery once a month to give me the opportunity to shop independently (not have my mum do all my grocery shopping) and it usually works well. Today’s delivery however has left me in tears. I’m in for a huge crash tomorrow.
Reply Retweet Like
Saving Cheryl Mar 21
Replying to @LOWBATTERYMAN
English subtitles much appreciation 29 yrs survivor here. Barely
Reply Retweet Like
zippy (zipster) ⭐️🍰⚽️ πŸ”΄πŸ€« πŸ€£πŸŽ— 16h
Replying to @DrunkisaurusRex
That is the worst bit & being so enclosed, I have noise intolerance so it just makes it worse . I just hope I manage to see it through. Anyway enough of that how are you ? πŸ˜‰
Reply Retweet Like
Salishsea_me 15h
You know you’re crashing when ur not even aware that u dropped ur electric toothbrush, and the thing is just sitting on the bathroom floor shaking saliva and toothpaste all over the place for like forever. πŸ€¦πŸ»β€β™€οΈπŸ€·πŸ»β€β™€οΈ
Reply Retweet Like