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ME awareness Oct 25
Here is the transcript of Simon Wessely being interviewed on Radio 4 in 2017
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ME Foggy Dog Oct 26
ANy patients with Long Covid. I found the CT scanner very noisy this morning, to the point that it made me feel 'heady'. Unsurprisingly, I was asked if I had any other conditions/symptoms that could be affected by the scanner but not asked if I was noise sensitive. .....
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Sasha Oct 27
Mason Foundation have funded a large proportion of Australia’s research into ME and CFS. Good they are asking researchers to use ICC or CCC instead of overly-broad ‘chronic fatigue’.
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ME Research UK 19h
Latest exciting ME Research UK-funded study results have been published by Cara Tomas & colleagues. Study explored the metabolic abnormalities in muscle cells from people with ME/CFS - cells ability to use glucose in the production of energy
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#MEAction Network Oct 20
Many with are experiencing extreme fatigue & distressing symptoms. Studies are showing that 10-12% will meet ME diagnostic criteria. That's why has launched the campaign. Join us at
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Katy Bruce Oct 24
The community really are remarkable. Every single day every one of you shows the most extraordinary levels of courage, resilience, empathy & compassion. & determination, to achieve what we all so desperately need. Thank you all so much 💙
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ME Foggy Dog 11h
Repost. Message for newly-diagnosed patients. Take a look-
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Penny Miller Oct 27
I really need and want to be looked after #Fibro#EDS#CFS#ChronicIllness 😔
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Grace Wilkie Oct 21
This is me before I got sick. This year I have only left the house for medical appointments and been well enough to speak to family 6 times. Who in their right mind would think there are secondary gains to this illness?
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Carole Bruce 11h
499 people have replied to this question. It’s a heartbreaking thread. Decades of suffering, unseen, unheard. “How long have you been ill? Weeks, months, years, decades?”
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Dan Wyke Oct 25
1956: "A general practitioner in Surrey recently reported that, over a five-year period, 21 per cent of the patients whom he visited in their homes were suffering from virus diseases." (Back when GPs did home-visits to people suffering from virus-related illnesses.)
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#MEAction Network Oct 27
Announcing 's new, practical guide to pacing that you can use & share with your clinical provider. From PEM & how it differs from fatigue to hands-on guidance for pacing in everyday life, we added everything we wish we'd known.
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Not Just Tired 11h
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Dan Wyke 11h
"The psychiatric BPS model of ME/CFS may negatively bias how physicians approach the illness, with doctors directed to view patients’ complaints as manifestations of psychological distress, rather than physical symptoms that require medical investigation or intervention."
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Petit Feu 10h
You definitely become more understanding as a . 😂
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MEFMDKR 🇸🇳🧟‍♀️💃🏽 12h
I promised my daughter I'd take her to a restaurant tonight. It's abt 300 m from our house. I'm dreading having to walk there.
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Sheffield ME & Fibromyalgia Group Oct 23
The recording of the talk from the Workwell Foundation on Energy Management in Chronic Illness is now available on our website: Many thanks to Staci and Mark and to all who attended!
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Jo Hunt Oct 24
Thoughts on BACME position paper on : Increasingly suspect that NHS, NICE, BACME etc. will co-construct a new term for GET& tweak it a bit, so we essentially have ‘GET through the back door’ for – BACME’s ref to “grading activity strategies” is suspicious (1)
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Anna / M.E. myself and I Oct 27
Incase you missed my Instagram stories last week about my new
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Andrew Kantor 8h
An evening with Jennifer Brea, luminary behind knockout film 'Unrest'
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