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Singlerheum ♿ 6m
Not been out today, but this just popped up from 2012 - taken in Pitchcombe village where I was living. Very pretty cotswold stone cottages, with that beautiful clear winter light ☀️
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margedillon 18h
I. Am. In. Agony.
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Fruitless searches Myalgic Encephalomyelitis Jan 11
So exhausted just from taking or trying to haul groceries on the bus. Never ending all encompassing crushing exhaustion. And my coworker never stops talking to herself It's her fault and others junkies that the govt makes it so
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M.E. Highland & Islands Jan 13
Replying to @CMonaghanSNP
Does the prime minister agree that have been mistreated, humiliated and harmed by the UK medical profession's misguided trust in G.E.T. and that the current NICE Riview of should consign all treatments based on the psychological school of thought to the history books
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Sam Pearce 1h
This is another vitally important contribution from to the activism movement. , please save up your energy to read and digest it, before the next round of 'the revolution from our beds'. Thanks for the effort and the insights Valerie. Xxx ✊
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It'sME(Jaime) Jan 13
THREAD: The qualitative study out by the UK quotes one : "I almost feel like on my record there's so much. I actually found a lump and I delayed for a year going because... I actually said, “I can't have another thing, like I can't, they'll ban me.”
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Singlerheum ♿ 3h
I have flu. Very unimpressed 😩 Never easy to tell when living , but yep, feel extra crappy. Bollix. Not what I needed but I am prepared.... Blankets, paracetamol, honey, lemon & ginger, Vicks & throat pastilles all at hand 🍯🍋💊🤒
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Lorna 1h
Just tried one of ’s recipes after seeing his video yesterday about his experiences with Cheap ingredients, relatively easy prep, free from dairy, wheat, gluten, refined sugar and egg. Perfect for those with limited energy 👌🏾
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Sandy 4h
Replying to @ME_Suffolk
I agree. Healthy people mistaken think their tire is what is experiencing. Mitochondrial disfunction is hard to describe.
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Paula Knight 6h
How to write a conference proposal while bedbound with a brain fried by withdrawal? (sort of)
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🌼Hayley Date🌼 23h
Today I've been to hospital to have an x-ray on my knee. I didn't run there nor did I do a marathon after but my legs now seem to think different. So painful from hip to toe & gnawing aching like flipping toothache in my bones😫🙄
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Not Just Tired Jan 13
Grateful my husband & I had some rare time out together yesterday enjoying a spa day! What a treat! And I felt well for it which is always a bonus/relief/rarity!! Also grateful to my sister for looking after our son who had a fab time with his cousins 😍
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Aineemac 3h
An excellent article describing life with Severe M.E, like Sally I'm 36 & have been severely effected for over a decade but told it wasn't serious & I would feel better soon...still waiting! For anyone who doesn't understand M.E please read this!
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Keir Jan 14
I've just filled this in, and felt angry all over again that I was told, while doing an NHS CBT/GET program, that I shouldn't say I was feeling worse on the feedback forms because it was 'the only treatment on offer' 1/2
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Hannah Jan 14
Well, I've never had my face break out in hives before for no reason. New experiences are good, right?!?
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Its ME Matina 12h
I don’t trust cleveland clinical and it’s use of functional. I hope you stay away until they are educated on our disease
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Action for M.E. Jan 15
Local Government and Social Care Ombudsman has made a ruling against Cornwall Council over lack of access to education for 16yr old Maddie. The Council were seen to have made several failures on her behalf. Read full article:
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Veronica Jones 8h
Try giving friends, family, everyone, comic strip showing effect of PEM and leaflet for general public (larger print, bold,boxes so quick to read) Download from Ask to put in library,noticeboards,church,waiting rooms..
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ME Life In a Tweet Jan 13
Downstairs my family, parent's friends and best mates are busy planning the ME fundraiser quiz. They are all here for me, yet I am too ill to see anyone. So like a ghost, I listen from afar, out of sight, trapped between the living and the dead.
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Alice Lewis 3h
Replying to @RyanCarrTweets
“The world is my oyster “ Doesn’t *quite* fit, 🧐 But ohhhhh, Wouldn’t that be grand For all us 🤓 Kind of U 2 ask 😊
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