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Carole Perron-Thivierge Nov 16
was hospitalized for 10 Days, back home yesterday told by doctors that exercice would help me. They did not listened to my explanations
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Karen McAulay Nov 19
Hopefully near the end of my first crash, a year lost, still a lot gained. I still feel very lucky and after watching and seeing the work of I'm inspired to do something positive.
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Ellen's Tea for M.E. 6m
Hello wonderful 😊 Today my lovely Mum and I made this choccy cake and it reminded me of a canny that makes my life easier. I use a mezzaluna to chop ingredients, like these scummy bits of dark choc and dried apricots! Give it a go 🤓
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#MEAction Network Nov 19
Read this story of a Finnish mother and her 12-year-old son with ME. Then sign the petition to help all people with ME in Finland as they are facing the familiar claim that this illness is a "functional disorder." Please sign & share!
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Rei Alexandra 4m
That moment when you settle in to bed, all set to rest for a while, and then realize you left something on the other side of the room. Damn.
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#MEAction Network 24m
Person with ME and ME advocate needs help. She is becoming dangerously low weight, has increasing symptoms & is seeking medical care. Nevra has been very active in the community including arranging local screening.
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#MEAction Scotland 48m
"Any new guidance will not be well-served by a committee that appears stacked with promoters of the very treatments whose failing reputation triggered this overhaul in the first place." outlines some of main problems in NICE review.
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ME Awareness Hour 23m
has now begun. Please all feel free to participate and I shall re-tweet.
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Lucy Graham Nov 15
housework or shower guys?
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Amy Clarkin Nov 16
I got ready to go out for a few hours but the getting ready tired me out so much I can’t go out.
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ME Life In a Tweet Nov 16
My tinnitus is so bad today I feel like the aliens are trying to communicate.
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Grace 20h
He went to too! Him and Dr Davis could go down in history for the good they’ve done even more, when they find a cause and cure for this horrible illness!!!! 💙
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Natasha 🍒 15h
'the heck is going on with my body?! Still awake (5:02am) and had another nose bleed. Had like 2 my whole life and now 2 in 12hrs. Don't feel stressed, nothing on my mind, symptoms are fairly usual. Bizarre
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Lucy Graham 4h
I don't trust today, I feel unusually ok.
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Alexandra Watt 8h
Replying to @InTheLifeOfAlex
I'd love to hear opinions on this from other and if you think I can do anything about this because I have no clue at the moment /5
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It’s M.E., Ade... Nov 18
As a gamer, having is so frustrating. I am curious to know how gaming affects other ..?
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Hannah Rebecca Nov 16
Finished wrapping Christmas presents- using my energy when I have it so I can watch movies in December!
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Action for M.E. 5h
What is Payback? by "I feel like a limp wet rag that's been wrung out & left to dry. I talk like a drunk person because the muscles in my mouth & jaw simply don't work properly. I lay on my bed unable to move due to a kind of paralysis"
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Jess Sylvie 1h
Replying to @JennySRP @NsuMecfs
It made sense with me. I can't do cow's milk or gluten. It showed likely lactose intolerance & coeliac (been tested for it but still, makes sense with intolerance to gluten). Also used our to join the study which will benefit all Also interesting genes genealogy.
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Christopher Grant Nov 20
Has anyone else experienced heavy metal detoxing as they heal and improve? I continually see lead and mercury in my system especially on full moons. It really messes with my hormones and anxiety...
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