Twitter | Search | |
Search Refresh
lumpkim 🌹 1m
love these postcards. that broken egg held together with tape captures ME/CFS for me, trying to function alongside the non-broken eggs. sending the out to my local docs!
Reply Retweet Like
Kaiser ME Neglect Aug 15
NO physicians anywhere in Kaiser system to treat 63,000 -127,000 ME/CFS severely ill Kaiser patients. Kaiser REFUSES. These HAVE NO MEDICAL CARE for this extremely complex illness with a complicated disease-specific biochemistry. offers lifestyle tips. Wow. .
Reply Retweet Like
Not Just Tired Aug 16
✨New on my blog: Pondering acceptance & chronic illness. “I have found that working towards of my , has brought me a lot of peace.. However, that doesn’t mean that it is easy. Not in the slightest.”
Reply Retweet Like
A Journey Through the Fog Aug 17
Do you ever find yourself consumed with guilt, or feeling like a burden because of your chronic illness or ? I explore the reasons behind these negative feelings, & discuss my own experiences, in the following post.
Reply Retweet Like
UK ME/CFS Biobank 9h
~ Samples Release! ~ Another confirmed delivery of samples to Dr Francisco Westermeier . His project is titled “Role of Sirt1/NOS axis in vascular and immune homeostasis: A missing piece in the ME/CFS puzzle?” Read more:
Reply Retweet Like
#MEAction Network UK Aug 16
Replying to @MEActNetUK
Read more about Gigi's story below and please share far and wide!
Reply Retweet Like
Vivid Phoenix 17h
Falling into P.E.M. while feeling like I'm clawing onto hubby/care giver. The guilt of needing help, the tragic feeling as you metabolism crashes, remembering the terror of being unable to move. Quick as my hands get more and I'll work on it as I can
Reply Retweet Like
Chris Evans💙 8h
Wow 10 years I’ve been on twitter.... over 14 thousand tweets.... a couple of followers... an I still can’t fully understand how it works some days lol 😂... mostly about
Reply Retweet Like
Action for M.E. Aug 15
Dear knitters, could you knit an angel? This is part of our Christmas Angels project which supports to share cards with each other Angels will be sent to severely affected members in our community. The pattern is simple to knit & is available here:
Reply Retweet Like
#MEAction Network Aug 18
ME activist Anna Kerr shares her story in this article sharing news of the new Australian biobank. "Before the 48-year-old was struck down by the disease she was a clinical psychologist for 15 years and a busy, active mother of two young boys."
Reply Retweet Like
Mabeth's World Aug 18
Hi . Can I ask how many people suffer with really vivid dreams? Had a cracking one last night. My fiancé left me. Took me 10 mins of sobbing to realise it had been a dream. I’ve also been know to go looking for the dream baby I gave birth to... 🤷🏻‍♀️😢
Reply Retweet Like
Neunistiva 4h
Something sufferers know all too well about.
Reply Retweet Like
Ben Marsh Aug 15
So what do u say to explain how actually makes you feel? A delivery guy actually asked me why I looked so crap today!! ‘I’m on nights’🤷‍♂️ Long version: ‘Imagine running 2 marathons, then having an all night drinking sesh, getting concussed, then eating 2 Xmas dinners’
Reply Retweet Like
Kaiser Patient With No Medical Care Aug 16
LIFESTYLE TIPS are all you offer STILL after years of not hiring experienced doctors and denying referrals. This is NOT medical care for one of the most disabling illnesses that exists. NOT in compliance. Immoral and unethical: You've HARMED 63,000-127,000 severely ill .
Reply Retweet Like
ME Association Aug 18
"If I don't look sick to you, it's because you don't see me on my bad days." Can you relate? Image Credits: Beth Wilson []
Reply Retweet Like
#MillionsMissingDenmark 8h
From court in Kolding today: Dr. Unden (witness): “I believe and hope he gets acquitted. If he is deprived of the right to be a doctor, all clinically relevant rules on how to act as a doctor will be violated if he is convicted on this basis" 6
Reply Retweet Like
HealingCFSME 1h
'Our findings show clearly that [CFS] is an inflammatory disease' Dr Davis
Reply Retweet Like
ME Foggy Dog Aug 17
Question. I've had lower abdo/pelvic dull achey pressure 'pain' for a few weeks. Kind of like you get with Cystitis but without the peeing issues/burning. are prone to UTIs so I haven't bothered going to GP. But. Should I? Would you?
Reply Retweet Like
Tom Kindlon 22h
My new blog post: "Should donating to ME/CFS research be left to millionaire sufferers and ex-sufferers? I'm not convinced"
Reply Retweet Like
A Journey Through the Fog Aug 18
I decided to try & shower by myself this morning. My husband prepped everything last night. I bought some small, easy to squeeze silicone shampoo bottles, & we installed a shelf. Well, I managed it, but it's completely broken me. I won't be trying that again anytime soon
Reply Retweet Like