Twitter | Search | |
Search Refresh
Amy Harbottle May 17
I’m tired. I’m tired of fighting medical neglect. I’m tired of fighting for my life. I’m tired of fighting for fair, just funding. I’m tired of fighting stigma. When I should just be fighting my severe illness, that’s hard enough.
Reply Retweet Like
A Journey Through the Fog May 23
I have to admit I've been pretty anxious about this being published, but the Daily Mail has actually written a sympathetic piece which I hope will raise awareness about the neglect of ME patients, and reach a wider audience
Reply Retweet Like
supportinginvestinme May 24
Incredibly sad. Jennifer Chittick who runs the Screw ME page and campaigns for MEA has sadly passed away. This was only published yesterday. Rest easy Jennifer 💙 Three ME patients reveal the accusations they have endured
Reply Retweet Like
Jack Croxall May 21
People with ! I’m writing an article for about escapism 😊 I’m looking for ME-friendly activities and how you undertake them without bringing on symptoms/flares. EG I watch films in 25 min bursts over 2-3 days. Please share yours!!
Reply Retweet Like
S4ME.info 20m
Our weekly roundup of all that is new and noteworthy on the forum for w/c 20th May. Brief headlines and links to further reading mean these posts can be a useful way to catch up for who find the forum too busy. Thanks to Kalliope and Trish as usual.
Reply Retweet Like
Jenny B May 24
Jen was one in a million. Caring, funny and an absolute joy to know. To many she was a friend in the darkness, a beacon of defiance in the face of M.E and she will be so very sadly missed. Sleep tight Jen 💔
Reply Retweet Like
ME Association May 24
Rest in Peace Jennifer Chittick. ME sufferer, campaigner, beloved daughter and sister. It is with much shock and sadness that we report Jennifer died on Tuesday after a ten-year battle with M.E.
Reply Retweet Like
Dan Wyke May 19
'Dr. David Bell... has compared ME/CFS to a slow, chronic version of sepsis. The commonalities between these two conditions include low blood pressure, low blood volume, a loss of energy production at the cellular level + widespread inflammation.'
Reply Retweet Like
ME Association 23m
“The most severe sufferers are often the most hidden. They are some of the sickest people receiving the worst service. People need to take M.E. seriously, even though they might not have heard of it.” .
Reply Retweet Like
Amy Barrett 1h
I don’t know if this is a thing or a thing but when I am bad I start to ‘lose’ functions one by one. As in, I can often tell I’ve done too much when my legs start to wobble and I need to use my cane/someone for support.
Reply Retweet Like
elisha🧚🏼‍♀️ May 24
I’m extremely exhausted and completely worn out from everything to tweet all that I want to say but I just wanted to share that I’VE FINALLY COMPLETED MY BACHELOR’S DEGREE!!!!!!!! I CAN FINALLY REST. THIS IS FINALLY THE END. GUYS I REALLY DID THAT!!!!!!!! 😭😭😭
Reply Retweet Like
It'sME(Jaime) May 21
Jen is not a symbol. She is an actual human being who has no responsibility to stay sick so that she can accurately represent the average , if such a thing can be said to exist. What a world we live in, where people feel they had some kind of ownership over a woman's - oh.
Reply Retweet Like
A Journey Through the Fog 17h
Wouldn't it be great to swap bodies with a healthy person for a few days? Even better if it was with my doctor. I would get a break from the pain & exhaustion, and they would get a taste of what it's like living with . Body swaps on the ? Where do I sign up?
Reply Retweet Like
James David Chapman 🇪🇺 2h
Replying to @batteredoldbook
2) Ended a decade of work for M.E patients. I can't associate with people who attack patients as delusional! That's against everything I worked for. And I won't accept personal attacks from patients & activists: I was here to help , not act as a trash can for anger & hate.
Reply Retweet Like
Lorna May 17
I feel awkward and nervous about posting this, but my friend has helped me feel brave enough to do an post, to remind myself and other that we are so much more than our illness and that beauty and worth are not defined by our size, shape or productivity 💙
Reply Retweet Like
only ME innit 12h
My daughter being Is it my fault? ...and if we are careful that she treats herself well is it certain she won't end up like me? If my blood contaminates healthy blood that means it's my fault? My 21 year old son isn't terrific health either. Did I do it to him too? 😢
Reply Retweet Like
Kekezza Reece May 23
Replying to @nthnorfolknews
Sadly as the service advocates GET it’s not a great addition but a harmful one
Reply Retweet Like
ME is Real 🥄 May 24
It's so weird how M.E. bodies work but don't work. Like I'm having such a hard time to walk around today, but I had to put a 5 gallon water on the cooler and it felt surprisingly light. Like I still have muscles apparently?!
Reply Retweet Like
Leah McZ May 20
My least favourite tweets are fighting with other . Snark over who has "real" ME. People who call themselves advocates openly trashing other patients. Is our community so disillusioned that we can't celebrate someone's recovery? Which ever way they get there?
Reply Retweet Like
MillionsMissingNL 11h
Such wonderful news for all over the world!!!
Reply Retweet Like