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Rai FG πŸ‡ͺπŸ‡Ί Feb 14
My stomach has been on the cusp of nausea all week and I'm getting rather fed up with it. Might not be an thing but it sure doesn't help matters.
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Dr. Homeslice Feb 11
Challenge: if you could design a disability sport suitable for , what would it be? It has to be an actual sport, but without exceeding anaerobic threshold. You can creatively adapt existing sports. Board games/eSports don't count. Nor does yoga.
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Becky Hatfield Feb 15
in the UK, time to make your voice heard
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ColeeSee 2h
Irony of Mr Brine's statement! Guidelines & 'Specialist CFS Clinics' excluded with previously clinically confirmed diagnosis & those with lifelong illness. Other specialists outside unlikely to accept us. Comorbid treatable conditions are neglected.
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James David Chapman πŸ‡ͺπŸ‡Ί Feb 13
The following tweets address some of the issues recently raised by .
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James David Chapman πŸ‡ͺπŸ‡Ί 16h
Replying to @batteredoldbook
Trouble is, Respect is a two way street. Or at least it should be. Only if your aim is to bully and dominate is respect directed one way: towards you.. And then, it's more fear than a true respect. Healthy relationships are founded on mutual respect, something need to find.
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Nevra Elis A. 19h
How have your experiences been with D-ribose do you think it can help me gain weight?
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James David Chapman πŸ‡ͺπŸ‡Ί 16h
Replying to @batteredoldbook
And, to be very clear: M.E patients are to be respected. Their entire life is lived on the downward escalator. If they are exceeding your healthy mental or physical capacity it is because they are running more than twice as fast as you.
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James David Chapman πŸ‡ͺπŸ‡Ί 16h
Replying to @batteredoldbook
Respect. Huh. Just a little Respect. After 25yrs of illness a family member pulled a 180, treated me as a lazybones & told me they'd never believed in my illness. A large part of my advocacy was fuelled by my resulting anger & my desire to ensure no other suffered this hell
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James David Chapman πŸ‡ͺπŸ‡Ί 16h
Replying to @batteredoldbook
Pulling the rug out from a is a dangerous business. People with M.E are already weakened by their years of battle with chronic illness. They are often in a poor state mentally, physically, financially and socially. I believe a sudden volte-face can cause them terrible harm.
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James David Chapman πŸ‡ͺπŸ‡Ί 17h
Replying to @batteredoldbook
My tweet on "Rest" was also more than simply biased, it was blind too. As an advocate in common with many other online: I wasn't resting, I was working my ass off for M.E patients, trying everything I could to raise awareness, encourage science & meet people who might help.
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James David Chapman πŸ‡ͺπŸ‡Ί Feb 15
Replying to @batteredoldbook
Well. These things (and more) are all true. Rejecting abuse is tough on many levels, however at the end of it, your community would emerge, as I have done, about a bajillion times stronger. And that, when you think about it, is one of the things really, really need to be.
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James David Chapman πŸ‡ͺπŸ‡Ί Feb 15
Replying to @batteredoldbook
I ask the question, but I do understand just how difficult it is for to answer. If you stand against abusive behaviour, I know you will likely receive abuse and be branded an abuser. It is far easier to remain silent.
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Alice Lewis 20m
Replying to @Northstr5 @JRE1138
Some do. We need them to stand up βž• speak up for us ... .
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Daniel Harris 19h
has anyone else tried LDN and if so when does the insomnia side effects wear off?
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James David Chapman πŸ‡ͺπŸ‡Ί Feb 15
Replying to @mtonksuk
I like to think my view of pace is increasingly balanced. As an advocate it was really not. It's tempting for advocates and to draw negative conclusions about the study without then pressing on into the fog to find all the good things about it. Well worth the effort tho.
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Kirstie Sivapalan 22h
Replying to @pryogi
Hi Jo. Thank you for your perspective. Indeed sometimes it is about saying no. In my exeprience this doesn't always work.Sadly, due to the nature of it's difficult to pinpoint one way that works for everyone and what works one day does not necessarily work the next
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Math Is Beauty Feb 15
Replying to @r4i7
I find ginger chews can help.
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Christina ReedπŸ‡ΊπŸ‡ΈπŸ§›β€β™€οΈπŸ§šπŸ»β€β™€οΈπŸ¦‹β™₯οΈπŸ’œπŸ’™β€οΈπŸ’—πŸ’–πŸ’‹ Feb 13
Found out awhile ago that I am allergic to the cold. Is anyone have this with ME?
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James David Chapman πŸ‡ͺπŸ‡Ί 16h
Replying to @batteredoldbook
It is truly awful a stigma is so often applied to those who are too weak to defend themselves. However as things turned out, would not accept oppression. I ended the above relationship & I joined with other to challenge stigma & gain the respect M.E patients deserve.
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