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It'sME(Jaime) Oct 19
Well, I'd carry out the project I've been dreaming of: 'halfway houses' for . In clean locations where breathing is easy & mold is low. Retraining for jobs you can do from bed. Clean food made for you. ME-literate docs to visit once a month. Treatment.
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batteredoldbook 11h
I think this action was very, very, wrong.
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It'sME(Jaime) Oct 19
After some hard work today I've produced an article about Per Fink at Columbia. Some new info, quote from and Lipkin, info about NY Protest. will be promoting tomorrow but for those still awake on the West Coast, here ya go.
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Dr Mark Guthridge Oct 20
This Graded Exercise paper equates the deterioration of health in after exercise to muscle soreness in healthy people research requires an understanding of the fundamental difference between PATHOLOGICAL fatigue in and PHYSIOLOGICAL fatigue healthy people
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CatEye 6h
Replying to @phrenohead
As long as the BPS fairytale is still ruling psychology they shld stay away yes. How do grief counseling when U don’t believe someone died? How offer support 2 or do studies if U don’t know what ME is? Most follow ‘BPS cult’. Often harmful like this 👇
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Jemma Lee 12h
Replying to @phrenohead
Personally, despite being denied by medical community for over 3 decades before finally getting diagnosis; have found psyche support invaluable throughout and can be effective tool w/ and right also vital
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Diwi9 Oct 20
are not making that argument. We are asking to treat the illness we have, not something we don't. I'm a mental health counselor, but the distinction is crucial. My brain is affected by ME, biologically. It doesn't make mental illness a lesser cause, just a different cause.
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Wilhelmina Jenkins Oct 19
“As patients with a stigmatized illness, we stand in solidarity with individuals who have diagnoses of mental illness. We will not debate the embodied realness of our — or any other — disease; ...we will not let Per Fink pit one disabled community against another.”
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Alison's head 15h
My pissed off o meter has reached a million. People don’t realise someone died making sure was pulled. Someone died trying to get justice for . It isn’t funny. People dying isn’t funny. White Wessely and co have blood on their hands. That is the truth.
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Dan Wyke Oct 20
'ME patients stand together against bad science and medical abuse.  No patient should be treated as Karina Hanson was treated, no matter her diagnosis — and no clinician who has made a career abusing patients should be honored or elevated.'
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Jemma Lee 16m
- I'm on Galiano island - just one of . is 2x common as MS; yet almost $0 education, funding, research into this - Canada needs 2 acknowledge, treat
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Elisha 🍂 Oct 17
My fatigue feels like its getting worse each day the past couple of weeks.... I feel so sad. 😢
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Shell Oct 18
What vitamins or supplements do you all take? I take Magnesium, Q10, Peppermint, Vit D3 and calcium. As well as a yogurt drink each morning with vit c, d and b3.
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Lisa Oct 14
Most people I talk to assume ME is a rare disease, and why wouldn’t they when they’ve never heard of it before? Most assume, like I did too before I got sick, that a disease affecting such large number of ppl with such level of severity would get more recognition.
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Terri Wilder Oct 20
WOW! Super proud of activists today. Per Fink got the message loud and clear! People on inside, outside. Thanks you graphic designers, photographers, signs makers, press releases writers, handout helpers etc. It takes a village to call out inequality.
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Jacquie Wilson 🦋 Oct 19
Replying to @LouCorsius
Per Fink organised the kidnap of Karina Hansen in Denmark, held her involuntarily for 3.5 yrs, her condition deteriorated enormously! She begged to go home. Parents initially refused access, then only on very rare occasions. He harms with flawed research based !!
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It'sME(Jaime) 7h
I know some who have become hateful as a result of their tragedies & traumas. But those I know who are still intact are so, so amazing. Proof there is resilience and fight and beauty left in the world.
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batteredoldbook 4h
Am upset watching Rosa Parks episode of Doctor Who tonight. Some consider themselves heroes within a similar struggle for M.E patients rights. In reality; M.E advocacy fails to defend freedom of thought and fails to challenge the bullying of Drs and Pts. It is unworthy.
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M.E. Australia 18h
For friends of , he’s involuntarily hospitalised in the mental health unit (I have his permission to disclose this). We are doing our best to ensure his physical health doesn’t worsen.
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Fibroadvocate 11h
So important to take care of your body as well as your mind & soul & this looks delicious!!
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