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kat Jul 9
My heart rate decided to get up to 130 while I was seated and hadn’t done any activity prior. However, hours before that I overdid it. Could that affect it and it was just delayed? Any people know if fatigue can be a trigger like that?
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Sammy Jul 17
So much tension and cramping in my calves, recently. 😞 Any ideas, Twitter-lovelies? 🦓
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Fitz Jul 17
Do you drink alcohol while having or do you stay away from it? If you do drink, does it make you worse?
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Fitz Jul 9
I’ve been diagnosed with by three different specialists, 2 Neurologists and a Cardiologist. None of which can explain why I’m better in the heat, as to being worse like most, and why I have such intense muscle tightness and weakness. Any ideas?
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Fitz Jul 12
I try to keep this account positive because that’s what it’s hear for. But one thing I’ve really learned while having is that most doctors are full of shit.
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Hannah Rebekah Rice Jul 17
Replying to @CyndieRandall
I have / too, as well as . Was told I'm likely hypovolemic & must also drink ridic amounts of water/electrolytes. Was told blood volume almost never measured & can't be done most places. Would you mind sharing how you were tested? DM?
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Vociferous Eleanor Get all Thyroid tests +T3 Trial 50m
This was me on levo. I actually had a bed hat that was necessary most of the year. 2 sheepskins, 2 winter duvets, 2 blankets, socks + very warm nightwear in use all but a few weeks of the year. And heat pack. I needed in my meds for some warmth. Now I run hot and cold.
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Jess meh 19h
Me: I’m going to get up and exercise and get stuff done today!!! : hahahaha and I’ll just dislocate your knee, and maybe a shoulder, oh how about a rib! All because you’re trying to get out of bed bwahahaha! : oh I want in! Here’s some tachycardia with a side of dizzy!
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Fitz 20h
FYI I’ve changed my Twitter handle, bio, picture and name so it fits better. Initially I wanted to start a Twitter that raised awareness to but it seems much easier to simply support others while sharing my own story.
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JudeME Jul 12
How does one breathe with double compression?
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corgi 🐾 11h
Well today I feel AWFUL. Dizzy, weak, in pain... yay 😓 I just want to start IV fluids. But, if we can’t/they don’t work, idk what’s left for me to try.
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shannon linford 9h
guys I really hope you’re coming to this year because I’m starting to have meetings to prep for it and this year’s conference is going to be one of the best yet.
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A river runs through me Jul 14
Replying to @JoyOfHS
The health of my heart & nervous system is a matter of unfavorable genetic mutations, nothing I have done or neglected to do has caused or HS
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MPOC India Jul 16
The importance that Malaysia places on its trade relations with India, is emphasised by the fact that Hon. Y.B. Teresa Kok, the Minister of Primary Industries of the Government of Malaysia, has agreed to be the Chief Guest at POTS 2019.
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Narden Victor Croche 12h
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The Chronically Unimaginable Jun 30
I am a crocodile Scurrying to the deep When the heat overbears At the mercy of the sun Scaly skin, moisture sucked dry Wishing for the heat To pass me by Huddled underwater It's vital to stay cool No crocodiles allowed In the summertime pool
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stone Jul 13
I’m going to have to start declining invites to festivals. it’s so much effort I don’t have fun.
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Jess meh 18h
Replying to @sarinahoskins
Just prepped my daily’s this morning
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Nicola Jeffery 18h
I meet Steve 3yrs ago and was told at the time that because he moved in my () was no longer enough for . I have now spent 33yrs proving that I am living with to reapply, wait 7 weeks, to get this sh*t...⬇️
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Bob Simonoff 21h
New article out: Clinical neurophysiology of postural tachycardia syndrome.
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