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Veertje Oct 15
Today passed 4th meeting of the European Lobular Breast Cancer Consortium. Proud to be a member. It's necessary to research this understudied type of cancer for better treatment and survive
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Lori Plung Oct 15
A Shout to ⁦⁩ for speaking to us about about Cost of Care and and for ending the talk with this beautiful slide. A wonderful program hosted by ⁩ chapter of the ⁦⁩.
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CML AdvocatesNetwork Oct 17
We very much hope that leaders will be able to participate in . Watch the Agenda for Day 3: 8th November: • Update on • Building alliances and partnerships, by presenting real cases studies from community Register:
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International Gaucher Alliance Oct 15
Excited to share this news from who the IGA has an ongoing partnership with working together on the GARDIAN registry. They will also be joining us on 29th October for our digital health webinar 🙌🙌
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Shazia Ahmad Oct 16
Beautiful off so I spent it completing by my dear friend . A must read especially for those in but even beyond.
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FH Europe Oct 15
Board effectiveness training, tailored to help our Board of Trustees better serve international patients community, beneficiaries & stakeholders. Lead by the phenomenal & made possible through a capacity building grant from .
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CML AdvocatesNetwork Oct 16
The CML Horizons conference is dedicated to the development of our members as and deals with topics such as: 📍Day 1, 6th November: • The Past, Present & Future of CML • Access & Support during COVID-19
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Liberty"R"Russ Oct 15
Everyone interested in , , or simply reducing unnecessary hurdles for patients receiving other, non-opioid controlled drugs(such as benzodiazepines) should follow this guy. He seems to know his shit.
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Lianne Mandelbaum Oct 16
Wow what always amazes me are the impressions=thanks for sharing had no idea -made my night- 107.7K impressions-and I'm still watching the incredible content now
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Niki Messmore Oct 15
Hey today is the LAST DAY to take the Census!! Our census numbers is how the government distributed funding and allotments for government reps. It takes 5 min to complete and is so easy. Please make yourself counted
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Liberty"R"Russ Oct 15
Replying to @headdock @EricaWegrzyn
I believe that pain management is at the heart of . All the restrictions on non-opioid controlled drugs seem to be linked to the opioid crisis fears. People with anxiety, ADHD and even seizures have increasingly had to jump through hoops to get their medications.
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Pulse Infoframe Oct 16
The 12th annual Orphan Drugs & Rare Diseases Global Congress 2020 Europe takes place on the 20th & 21st. Dr. Femida Gwadry-Sridhar, our founder & CEO, will be the event's chairperson & deliver the opening remarks.
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Honeycomb Health Oct 14
Your voice needs to be heard 🔊. Help us raise awareness about rare diseases for a change in patients, relatives and sanitary professionals’ lives. explains all about why being an advocate can make the difference:
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MarijkeBVN Oct 17
Simcock: ‘the lived experience of patients tells us always something we didn’t know’. We have to co-design
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Liberty"R"Russ Oct 18
Replying to @ThomasKlineMD
As part of my hobby, I'm putting together a list of ways to have the uncomfortable conversations with doctors. I believe that an educated, informed and confident person advocating for themselves is the best answer to non-prescribing. Not an attorney.
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MassBio Oct 14
Everyone now knows that it's like to live with an unmet medical need. At our Summit, experts will draw lessons from the collaborative approach to addressing & how this can be applied to & patient advocacy efforts
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Saroj Niraula Oct 16
Presumptive justifications when RCT is neg. and overenthusiasm when pos. in suboptimal analysis are against . If IO in PL1+TNBC hypothesis is strong, it should be validated in a proper RCT, before promoting it to guidelines based on opinions & murky evidence.
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MassBio Oct 16
MassBio's Summit is one of the most important events of the year. Join us 11/12 as we gather experts from across the patient advocacy community to spotlight industry/ partnerships & discuss how we can incorporate the
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Fazila Seker Oct 14
It’s and , and face disproportionate rates of . This article gives a frank insight to in diagnosis and treatment, and importance of :
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Takeda Oct 16
Thank you to everyone who joined us for our interactive symposium at ! We hope you enjoyed hearing about current updates for and the importance of supporting . Missed it? Listen to our podcast here:
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