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✨Jayne✨ Sep 18
Good article about in this week’s Bella magazine
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Gayle 12h
This is just a train wreck. The damage American advocates/researchers have done mixing ME/CFS together is infuriating.
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wigglethemouse 6h
Replying to @NIHDirector
I'd love to listen to music sir. Unfortunately with music causes sensory overload. The only thing that would be music to my ears is targeted RFA's. We cannot wait get another year for another report. I lie in bed here suffering horribly. Do something.
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Lynne Webb 42m
When you desperately want to go join the climate crisis march, but can barely keep your eyes open long enough to eat breakfast. I hate this illness in new ways every week! 😵
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Veronica Jones Sep 18
NB social interaction causes ie exacerbation of symptoms too. Also, as I found out the hard way, standing still too long is very dangerous for patients
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Tom Kindlon 22h
Honoured to be finalist in ["Lifetime Achievement" & "Best in Show: Twitter"] helping to raise awareness of millions worldwide whose lives have been badly affected by My story My activism
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Alice Lewis Sep 18
Just a few short years ago 2014 Klimas had an exercise video For sale. "DVDs are no longer available." Part 1 Klimas"...if they don't exercise, they will only get worse." Part 2 "exercise approach 2 *fatigue*" 1/2
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Kristina Osobka Sep 18
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Gill 4h
Great info to help when visiting health professionals. Thank you for sharing & glad it helped you. We are so lucky that our daughter’s fully understands about
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Kristina Osobka Sep 16
Join the Rock ME Project.... It's an easy, low impact way to build awareness for . This weekend volunteers hid dozens of hand painted rocks all over the Detroit area to build awareness of a devastating disease.
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Char 🎀 Chronically Hopeful Sep 15
What Is It Like Living With ? In this post you'll see some of the bizarre effects of . Includes pictures to share.
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cut my couch into pieces this is my pillow fort 15h
sucks sucks sucks. picture This is me sick, me at my worst, and that's okay. Have a great day / night. Be kind to each other and behave.
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M. and S. Shaw Sep 18
Replying to @NINDSdirector @NIH
. It’s ironic that you shared this, Dr. Koroshetz, as you & condemn more than a million Americans w/ to exactly this abuse by grossly under-funding research. . Shame on
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🥰Fabi 🇺🇸🇧🇷 7h
Please God, put an end to this, one way or another.
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Kristina Osobka Sep 16
Low impact advocacy.... This weekend, we hit the road and hid dozens of hand painted rocks all over the Detroit Metro area to raise awareness for , a devastating neuro-immune disease that affects MILLIONS.
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TheDisabilityEnthusiast 5h
I wonder if he realizes many people with can't listen to music 🙄.
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Shelby Rallis 11h
Hey, (anyone else?) have any congratulations to add as Fauci enters the Government Hall of Fame?
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Char 🎀 Chronically Hopeful Sep 18
Frequently asked question about : What is PEM? 🤔 What is PENE? PEM = Post Exertional Malaise PENE = Post Exertional Neuroimmune Exhaustion For More FAQ visit
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balancedespitechaos 9h
Replying to @MadisonSiriusXM
Excellent show today, ! I listened from Canada. 🇨🇦 Thank you for helping to spread awareness of the debilitating disease which is (chronic fatigue syndrome) 580 K Cdns and millions worldwide live with
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M. and S. Shaw 8h
. Worse than heartbreaking. It’s prolonged abuse of more than a million Americans with . , DO SOMETHING, FOR PETE’S SAKE.
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