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Coach Rusty Nov 17
Believe it or not, there are many people I’ve known for YEARS (with whom I’m friendly but not quite friends) who don’t know I have MS. It’s still tough to talk about. Hoping twitter is a good place to get more comfortable discussing it.
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Miranieva Bee 💜 Nov 19
Having MS is hearing that you need to think positive for the illness to go away. Knowing that positive thinking doesn't remove the lesions on your brain and spinal cord 🤣🤣🤣
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Kilted MS Warrior 🏴󠁧󠁢󠁳󠁣󠁴󠁿🇨🇦 Nov 19
Today I feel a load of fear looking forward at my future. I need to get a car, so I can get to the clinic. I still haven't started on DMTs as I have been living in a world of denial. I have stopped dreaming of my future as it seems so scary.
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The Mrs Diane Kramer Nov 18
Can I get an *Amen* this morning?
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Miranieva Bee 💜 11h
Having MS is waking up and drinking coffee only to fall asleep after, sleep after you wake up and stay awake when you want to sleep.
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A Voice For Choice Advocacy Nov 16
A went blind in one eye and was diagnosed with just weeks after getting the ; employer who forced her to take the shot, later fired her for taking time off due to illnesses.
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ms_is_ms Nov 14
Count every minuscule effort as a victory. 💪
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Abigail Budd Nov 16
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Coach Rusty Nov 17
Replying to @rusty_coach
Honestly I have a ton of guilt being around people whose MS has progressed more than my own. Then I feel even more guilty for making THEIR MS about my own feelings. Basically it’s a super fun cycle
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Must Stop MS! Nov 18
Q1 – can wreak havoc on our emotions. One minute we may be just fine, but then they can change the next. Have you noticed any change in your emotions since diagnosis?
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Mark Webb Nov 16
Mostly asleep today after over 4 hours baseline physical and cognitive assessment in London yesterday. Now on a 3 year drug trial for Secondary Progessive
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Kilted MS Warrior 🏴󠁧󠁢󠁳󠁣󠁴󠁿🇨🇦 Nov 17
What symptom did you have first? Is that one still hanging about. For me, it was my right hand (yes I am right handed). I still have numbness and tingles in both my hands. Makes me clumsy as can be 🤦
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Kristen Krysko Nov 18
We are excited for our first Clinical trials in online conference this Wed Nov 20th at 2pm PST, 5pm EST, 11pm CET and Nov 21st at 9am Melbourne time. We welcome all to join! & Riley Bove.
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MSJ Nov 17
Reduced neurite density in the brain and cervical spinal cord in relapsing–remitting : A NODDI study
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Chris wing Nov 19
Posted one the other day right leg is bad leg since 2003 work has improved dramatically and knee isn't locking now raising bad leg to work balance quad hamstring hip flexor
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MS Avenger Nov 16
So. I am totally in shock. I am having a relapse on Tysabri. I wasn't expecting this. I have a couple of active lesions. The last couple of infusions have been terrible with post infusion reactions. I'm not sure where to go next.
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The MS MUSE 2h
I swear. Ain’t nobody slaving the way I am with 😑🙄. Not waiting for confirmation. I’m the S‼️.
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Abigail Budd Nov 15
Brilliant sleep! Didn’t wake up once and feel brilliant
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heather geronemus Nov 15
Tonight the recognized my mother with a Lifetime Achievement Award for nearly 50 years of research, advocacy, volunteerism, and leadership!
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Coach Rusty Nov 18
“THAT HAD NOTHING TO DO WITH MY MS!!” ~me, every time I fall down because of my MS
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