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Michael VanElzakker Sep 25
I appreciate the chance to tell the "NeuroImmune Axis" conference in CA about why should be added to the list of neuroimmune-linked illnesses that this field regularly studies.
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#MillionsMissingDenmark Sep 30
Karina Hansen's doctor Stig Gerdes will not get his licence back. Stig Gerdes has now made an appeal.
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Scott Ludlam Sep 19
today we make history with our presence, our placards, our bodies; thinking bout the and homebound who are with us in spirit. we see ya. you're here.
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Nina May 12
It‘s a bit ironic that most people are scared they could “end up in a wheelchair”, yet when they hear we have to live in our beds they say “that sounds kind of nice”.
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Arlette Aug 23
I get so mad everytime I have a crash this big. I'm sick an tired of feeling like this. I'm sick and tired of nobody caring. I'm sick and tired of the medical neglect. I'm sick and tired of not being heard. I'm sick and tired of being sick and tired!
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Severe ME Jul 14
Morning all. Caught Mrs Bee 🐝 in action. For everyone stuck in bed, thought I’d share....
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Kristina Osobka Sep 18
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JudeME Jul 21
is not my friend today, missing youngest 1st live gig preforming her song. This is her at the sound check thanks to hubby sending to me.
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Catherine Hale Oct 13
Right. So 20 years after the death of the leading advocate of CBT for the treatment of ME/CFS perhaps might report the scam as “unsafe” too. In the meantime, carry on closing ranks and detracting from the scandal of the
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MEAction Colorado 21h
Thank you for co-sponsoring HR399 in support of ME Awareness Day. The with Myalgic Encephalomyelitis are deeply grateful for your support and leadership.
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Eimear Forde Oct 9
You would think a 9 minute walk would induce pem in a moderate ME patient. As a severe patient a 9 minute trip in my wheelchair to get fresh air induced bad pem this evening. Made me sad.
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Charlie 🌈 (they/them) May 14
Replying to @cmackenzies
There are people who took part in last year and the year before that have never recovered to their previous baseline of health. There are people who deteriorated from mild to moderate, moderate to severe, etc. They might never return (unless we find a cure!)
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Anil van der Zee 🕺 Aug 29
LP and the healing of gays. Google translated. Oh dear...
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Jacquie Wilson 🦋 May 29
Please retweet & drown out Sharpe’s garbage. I’m super excited about - early career research day - biomedical colloquium - conference day
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It's ME Helen Jul 10
Replying to @agy_lena
Sadly, I’m having to do all the fighting for myself. I think pwME who have families fighting for them are extremely lucky. I couldn’t attend a event because I was too ill and there was no chance any family would go on my behalf, too busy 🙁
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Anil van der Zee 🕺 Sep 2
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Samuel Taylor-Bearman Jun 28
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Agy Lena Krajczynska Aug 21
It doesn’t need to be 12th of May for me to continue raising awareness of ME/CFS 20-30 million people worldwide are missing from life due to this devastating disease. I am one of them. Twice as…
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April Thompson Sep 9
Are you an artist, artisan or entrepreneur with ? Starting an online marketplace to sell your wares and tell your stories!
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TheyCall M.E. #Baepsae Oct 10
Mr. Collins, I have . I'm one of the . I've lost so much because your won't fund research to disease burden. Can you reprint a life lost to a virus because the misogynists running the show don't care to find out what that virus is?
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