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Emerge Australia Mar 14
Keynote speaker Dr Ron Davis: " is one of the worst diseases you could have, and it's also the least funded." ~ Fiona
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Action for M.E. Mar 19
Oliver,12, has “Mornings are hard because my brain tells me to get up, eat breakfast & go to school. When I try my body tells me I can’t.. I wish ppl understood that just because they’ve seen me looking alright today doesn’t mean I'll be OK tomorrow”
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Hilary Best Mar 18
Please, please can you broadcast the other side of the argument about .
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17 Cytokines Mar 21
Also: For those with , have any luck with pre-biotics or pro-biotics? I heard pre-biotics are more helpful. Ring true for you? What works?
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Sonya Mar 19
I dont want apologies. I want my life back. I want to work. I want to toss a ball w my boys, to braid my daughter’s hair, to walk my dog. I want even 1 treatment for my disabling disease . I want research $ = other diseases w same prev, burden&ripeness for breakthru
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Miriam E. Tucker Mar 17
For those who have read some of the recent UK reporting and opinions about myalgic encephalomyelitis / chronic fatigue syndrome, a reminder that this is how the U.S. National Institutes of Health views the condition and what they're doing about it:
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Jamison Hill Mar 18
One of the hardest parts about being sick, for me anyway, is reconciling my former healthy self with my current sick self. I would love to know how others with deal with this — with avoiding self-pity but acknowledging the struggle
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Emma Reinhold Mar 18
Replying to @DepressionHumo1
We have. Sharpe is just incapable of bowing out gracefully, admitting that he got it wrong on . He needs to blame the fake idea of 'militant patients' to save face. Sad.
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Emerge Australia Mar 14
Ron Davis: You’re talking about a lifetime here. These people won’t get their life back, until we find a treatment or a cure. ~Simone
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Stephanie Kempson Mar 17
What kind of poor excuse for journalism is this? you should be ashamed of yourself for peddling such backwards nonsense about . I don’t wish the experience of this condition on anyone, but Ron Liddle sure deserves it if he will continue to talk this rubbish.
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Dolores 15h
Replying to @Dangermouseme
4. I’ve had thyroid issues for around 15 years. Was diagnosed with M.E 13 years ago. Now, finally, diagnosed (by the lovely Nurse Clinician) with Hypothyroidism, she goes of symptoms, presentation as well as blood results. I can’t believe I’m finally being treated!
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James C.Coyne Mar 19
Thank you, Frances Ryan, for taking a stand against the hate directed toward
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Mark Vink Mar 20
Replying to @ProfRobHoward
Why as a professor do you keep on ignoring the evidence to the contrary? and GET for is eminence and not evidence based medicine
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Tom Kindlon 18h
(House of Commons, UK) Disappointing that there will be no warnings about possible adverse effects from graded exercise therapy as a treatment for ME this year, anyway.
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Diane O'Leary, PhD Mar 16
Denmark's decision to reclassify as a medical disease is monumental - because Denmark is the home of "bodily distress syndrome" , which has "captured" contested conditions as psychiatric for decades. This leaves with pressing questions:
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ME Foggy Dog 2m
Children's update..... 3 yrs on.
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Action for M.E. Mar 20
What does feel like? “I feel like I wake up w/ a mattress on me most mornings. When I wake up w/ post-exertional malaise there's an elephant sitting on the mattress. He stays there for days. He steals my words & fills my brain w/ wet cotton wool.”
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Dr. Homeslice Mar 18
To all of the peeps who have been feeling depressed by the recent media crapstorm - a little hope: today I met two wonderful and highly respectable researchers who are in the process of leveraging resources to set up a large biomedical research project into the physiology
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Snowy Mar 16
I'd like to reiterate, most ME & CFS patients would be overjoyed if CBT or GET actually had some benefit. The idea that we dismiss these treatments because it implies the illness is mental is a deliberate mischaracterisation of our views.
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ME Association Mar 20
On Monday 25th March, The ME Show’s will speak with Carol Monaghan MP (), a staunch supporter of people with M.E. who's arranged a number of significant Westminster debates. The ME Show
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