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Lucibee May 18
Lines for False illness beliefs do not cause ganglionitis False illness beliefs do not cause ganglionitis False illness beliefs do not cause ganglionitis False illness beliefs do not cause ganglionitis False illness beliefs do not cause ganglionitis
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Not Just Tired May 18
Inside I'm still the person who wants to rush around getting jobs done before I allow myself to rest. Having to rest, pace myself & turn a blind eye to most jobs, is sometimes sooo frustrating, yet absolutely essential in managing life with .
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Claire Lagan May 15
After a year and a half of being totally neglected by my doctor she finally came 5 mins out to my house. Refused to do bloods 'that's for 90 year olds' and did I want to join a gym. I'm bedridden with severe M.E and barely able to speak. disgusting
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Sten Helmfrid May 18
The pathologist that made the autopsy of 21-year old ME-victim Merryn Croft said that there was low grade ganglionitis. ME-victim Sophia Mirza also had ganglionitis. Two other ME victims had nodules that suggested previous ganglionitis (Cader et al, J Neurol Sci, 2009).
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🌼Hayley Date🌼 May 18
Son been crashing for 2wks after attempting a 2hr a day schedule at school. He's now got insomnia as one of his symptoms which is new for him. Does anyone know of any herbal sleeping tablets he could take? He's 14 and nearly all I've seen are for over 18
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Rachel May 15
Had a great meeting with and staff discussing CFS/ME awareness and research! Thanks for your support as we work toward finding a cure!
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Courtney A Miller May 15
On the Hill for today. TY for signing NV delegation ltr to last fall. Pls cosponsor Sen Resolution now.
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SolveMECFSInitiative May 15
A very special thank you to for speaking up biomedical research and Awareness at our Capitol Hill reception.
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JudeME May 15
My GP I have seen for last 13yrs is retiring this week 😪 already aware other GP’s in the surgery are not knowledgeable & accepting, looks like I gonna have a battle on my hands
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SolveMECFSInitiative May 15
. you are a beautiful, powerful and fearless advocate and we are thrilled that you joined our Washington DC advocacy day. Thank you for helping us
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Rob May 18
Doctor - The tests didn't find anything,you must be ok. Me - I don't feel ok. Maybe the tests are inadequate and fail to sufficiently diagnose the problem. Doctor - You're silly. I believe in numbers on a screen. Not patient input. Now off you go!
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Beth Mazur May 17
"...[Maureen] Hanson reported she was able to identify 95% of ME/CFS patients correctly using 41 metabolites. Her search for metabolomic subsets failed – suggesting perhaps that metabolic problems are at the core of ..."
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Dr Mark Guthridge May 16
widely misunderstood, suffer from 'post-exertional malaise' (PEM) where even moderate activity causes a worsening of symptoms patients should avoid PEM as it increases proinflammatory cytokines and may delay potential recoveries
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Sten Helmfrid May 17
Resolution in the American Senate affirms the commitment to improve the availability and quality of care for patients with , to discover the cause of the illness, and to develop a cure.
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Sally Clare R 🌻 May 18
A friend is popping over this afternoon and she asked if she could bring anything from the shops for me because she had read my latest article on how to help a loved one with 💜 She is now hunting for a present for my husband for his birthday 💜
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AMMES May 19
Merryn's post-mortem revealed "low grade inflammation in the nerve roots off the spinal cord and in the ganglia, low grade level of inflammation in the membranes around the brain. There was also a destruction of the nerve fibres."
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Dutch Ruppersberger May 15
’s Kendall met w/ patients + and caregivers w/ championing research for aka chronic fatigue syndrome. Thanks for your advocacy
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Jennifer Brea May 11
May 12th is and International Awareness Day. There are millions of us around the world missing from our lives. Support science. Support the on our day of action.
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Cort Johnson May 17
Montreal ME/CFS I: Metabolism – the Main Matter? More Exercise Issues Plus Bad Brain Motor?
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Chris✞chronicpainDAD May 17
May Is Awareness Month Please support those of us battling everyday. Thank you💜
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