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Mary Gelpi Sep 18
1 petition. 51,000 signatures. 2,300 pages of names. 500 pages of stories, feedback, & comments. 350 empty pills bottles in lieu of packing peanuts. One HUGE box. Everything inside, 50 lbs. $100 to ship. Friday evening, we sent to Thank u ALL. We did it!
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ME Association 3h
Dr Shepherd on behalf of the ME Association has today responded to the advice column in the Mail on Sunday.
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ME Foggy Dog Sep 18
Oops. Here's the whole video! So cross. Official letter of complaint will be sent too
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Jennifer Brea 22h
Just updated: with work by Higgins on intracranial hypertension in . I know many patients pursue treatment for intracranial hypertension, however, I could not find similar studies in EDS. Can anyone point me in the right direction?
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Shell Sep 21
You know that my aunties best friends cousins husband tried this and now he’s cured! You should try it!
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ME Foggy Dog 21h
Oooh now feeling sinus-y and normal human fluey. Is a bug coming or is this just weird payback? It's a mystery!
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Lucy Fox 5h
Replying to @jenbrea
I had to educate myself and continually push the suggestion that I had until my doctor finally listened. She was a rookie GP, so her willingness to concede that she didn't know was a huge help to being diagnosed.
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Mak Wilson 21h
My wife took me up to our favourite place on the / border at . It will be worth the payback that's sure to come my way.
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ME Foggy Dog Sep 23
Ok Gravity, you win. I give in. I'm giving up being vertical and heading up to BED.
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Jennifer Brea Sep 21
I’m starting a new hashtag, , specifically to connect people with . However, all are welcome!
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Mike Munoz Sep 19
So I turned my living room into a 2nd bedroom so I could escape my room during the day. My house has officially become a hospital. It is nice to move to a bigger room with big windows during the day and my trusty sidekicks give it two paws up.
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Lucy Fox 5h
Replying to @jenbrea
To get my diagnosis, I sourced the ICC and CCC online, as well as the Aust. Guidelines, and took them with me to a doctor's appointment after she'd tested me for literally everything else. 1/
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Sten Helmfrid Sep 22
Dr David F Marks on the shortcomings of psychology. There are many “theories”, but the underlying studies don’t meet the criterion for authentic science and there is no general theory. The treatment of people with is an example of bad psychology.
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@secazar · @hhsgov
Sten Helmfrid Sep 22
Dr David F Marks on the pseudoscientific theory that unhelpful beliefs perpetuate : “Perhaps Psychologists need to turn the Psychological Theory of unhelpful beliefs upon themselves.”
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MillionsMissing Deutschland 1h
David Tuller talks about the largest treatment trial for - the , the & , parallels to , changes & developing, as a fascinating story, a challenging thing & he talks about by
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LieseInWonderland 55m
Stream schedule for this week: Tuesday 25th: Alien: Isolation Thursday 27th: Creative/Harry Potter Lego (I’m going to be very tired) Friday 28th: Multiplayer The Forest 2pm GMT ish (depending on the old ) *hides in a cupboard*
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Ellie Hicks Sep 19
My ears are too tired to hear.
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AMMES 2h
Excellent post by David Marks: The PACE Trial: A Catalogue of Errors.
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Soothsayer 21h
Brain: "Hello Body, it's brain here. There was something I was going to ask you to do but I have forgotten." Body: "F@ck off, I am not doing it anyway."
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Anna Sep 22
Would like to thank you & the many people I follow for helping me keep up with developments in a way that I never could on my own. Thank you!
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