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Rachel Stanton 11h
Graded Exercise Therapy harms patients. This kind of medical gaslighting and abuse must stop!
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Eric Topol Oct 27
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Derya Unutmaz, MD Oct 27
Finally people realize is a real disease causing massive suffering! is fast becoming the corona version. We suspect similar immune/metabolic/microbiome perturbations happening in both cases.
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Jules1990 10h
Everyone in Europe has the right to basic medical care? Well, apparently not patients! Either they are advised to take antidepressants or nothing at all. Why don't they get the help they need?
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Ken 10h
People with are at an increased risk for lymphoma
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Sten Helmfrid Oct 26
Research paper: Substrate utilisation of cultured skeletal muscle cells in patients with . “The consistency of cellular bioenergetic dysfunction in different cell types supports the hypothesis that is a systemic disease.”
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Sonya 8h
Actually, , it’s not at all hard to believe this is real. I & millions of Americans who got the disabling neuroimmune disease from a virus/infection have had these exact symptoms & have been warning of this for decades. It’s just that no one listened until now.
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ME/CFSCoach 2h
What rest isn't: being on Facebook
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Sten Helmfrid Oct 23
Many doctors who are struggling with long have highlighted the parallels to and the gaslighting of patients: “ and all of the related syndromes that go alongside that population have been deeply let down by medicine.”
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Jo Hunt Oct 24
Replying to @JoElizaHunt
I'm not reassured by BACME’s ref to physiological dysregulation in – some BPS proponents will acknowledge this, then argue that BPS approaches can help (8)
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Giada Da Ros 9h
Pacing and management guide for from :
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Emerge Australia Oct 20
We’re so thrilled to announce that Emerge Australia’s first Ambassador is motorcycle racing legend and two-time MotoGP World Champion Casey Stoner! As someone in the public eye who is living with , Casey has joined us to support our Help Cure ME campaign! 🇦🇺
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James David Chapman 44m
Replying to @ahelluvabird
When the patient became an advocate & challenged Pace, the doctor part thought it wise to visit Prof Wessely and see what was what. When the doctor part of me tried to help and started to receive ruthless abuse from activists, the patient part stood up against them.
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Lana Winters 10h
"Malaise" sounds like something Anne of Green Gables would be jealous of. If it's part of , it's nothing like the name alludes to.
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Carole Bruce Oct 25
It has taken me years (still ongoing at times) to really accept that I am not to blame for my illness. It’s not a result of bad choices I made in my life, not a result of my good enough childhood. The BPS model digs deep and is often heavily disguised.
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Sten Helmfrid 10h
The biopsychosocial model for suggests that the illness is perpetuated by fear avoidance and deconditioning. Did you know that there is no theoretical or empirical support for the model? Proponents say that it is a "pragmatic" model. Whatever that means. .
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Rachel Stanton 11h
Many patients have received or want to receive supportive professional counseling, as is offered for other chronic medical conditions. What we reject is the ME/CFS-specific form of cognitive behavioral therapy designed to correct “false illness beliefs.”
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jadzia 🦇 deep sea cryptid 7h
I've been channeling my feelings into memes so here's another one, this time inspired by a certain "secondary gains" tweet from last week.
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Daniel Moore Oct 27
Men, if you're struggling with the emotional side of it's ok to seek support and get counselling/therapy. I did and it has helped me a lot. Just so some research on any prospective counselor before you embark.
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Sten Helmfrid Oct 21
Post-exertional malaise in is much more than just fatigability! A recent paper wrote: “[PEM is] all-encompassing with symptoms affecting every part of the body, difficult to predict or manage, and requiring complete bedrest to fully or partially recover.”
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