Twitter | Search | |
Search Refresh
Persatuan SLE M'sia Sep 17
Attention. Haze is getting worse and there's evidence that air pollution may cause SLE flare. What to do? - Go see doctor if your condition is worsen - Hydrate yourselves - Wear N95 mask if outdoor
Reply Retweet Like
Lupus Foundation of America Sep 13
Do you battle with 'brain fog'? Learn more about how affects your cognitive function and various things you can do to help you better cope.
Reply Retweet Like
Lupus Foundation of America Sep 12
Earlier today, the Senate Appropriations Committee advanced their 2020 Defense funding bill which includes as a priority condition eligible for research funding! Thanks to every lupus advocate who spoke out in support of this critical funding! #LupusAdvocacy#RisingVoices
Reply Retweet Like
arrghgtr Sep 14
Replying to @DanLairdMD
I'm so effing sick of docs arguing with me about how I feel. The bad blood between docs and patients has festered. It is now a plague. The healing will take decades If not CENTURIES.
Reply Retweet Like
Gina Sep 17
Non scale victory for today๐Ÿ˜ƒJust realized that Iโ€™ve made about four trips up the stairs into my office today without using a handrail. That means Iโ€™m getting stronger, my balance is improving, and my knees are healing from all those years of inflammation. I love .
Reply Retweet Like
Laurent ARNAUD Sep 9
How do you prescribe in case of failure? Do you reduce the daily dose of when patients are in ? Please take this 5-min to help us understand the use of and LINK TO THE SURVEY:
Reply Retweet Like
Lupus Foundation NE Sep 14
A childrenโ€™s book published by Hospital for Special Surgery (HSS) for youngsters with not only explains the illness, but offers a message of encouragement and hope.
Reply Retweet Like
Ava Meena Sep 12
When my pain levels get so high that my body can't handle it then I just start to shut down and often fall asleep. Does this happen to anyone else? Thankfully hubby came home for a long lunch break & this guy was really happy about it. I'm doing better now.
Reply Retweet Like
Lupus Foundation of America Sep 15
Latino women are at a higher risk for developing , so it's important to understand what lupus is and how to take control of your health. Check out our campaign developed specifically for women of color, & learn more about how lupus can affect you.
Reply Retweet Like
Dungeonista Tahina ๐Ÿ’œโ™ ๏ธ๐Ÿ–ค 11h
"Just imagine, that everytime you come see me, I sneak attack your b-lymphocytes, till they get the message and behave" "Let's see if this treatment drops your to 0 HP" My rheum Doc everyone๐Ÿ˜‚ She's into the idea ๐Ÿ˜Š
Reply Retweet Like
Jantien Schoenmakers Sep 13
Me: I'm gonna get so much shit done on Friday after my mum is gone again. My body: Hahaha here is your flare prepare to not move all day and feel absolutely miserable.
Reply Retweet Like
Peter Morley Sep 14
It's an honor to advocate for in every single meeting I've been to in Congress. is so CRUCIAL to a cure. Purple is the color of Lupus & kindly supplied me w/wristlets to hand out. Every Rep honored me by wearing them(as did below).
Reply Retweet Like
jennifer perkins Sep 15
Reply Retweet Like
Lupus Foundation of America Sep 15
From warriors to loved ones and friends, we want to wish all of our Team Make Your Mark runners, joggers and walkers good luck as they make their miles matter at the Philadelphia half marathon, 7.6K and 5K today! Let's give them all a cheer!๐ŸŽ‰๐ŸŽ‰๐ŸŽ‰
Reply Retweet Like
Lupus Foundation NE 18h
A highly gender-biased disease, afflicts females some nine times more than males. Because of the disease's debilitating flares the risks of which are elevated in postpartum women females with the disease are often advised to avoid pregnancy.
Reply Retweet Like
Lupus Foundation of America Sep 17
While there is no diet, it's known that Omega-3 fatty acids have anti-inflammatory effects that 2019 Finzi Fellow, Kathryn, is studying to learn how they could help suppress lupus flares! Watch this video to learn more about her project.
Reply Retweet Like
๐Ÿ๐Ÿ…œ๐Ÿ…ž๐Ÿ…๐Ÿ…ก๐Ÿ…ž๐Ÿ…”๐Ÿ Sep 13
I havenโ€™t been on twitter much because I have been getting weekly Chemo infusions for the last 6 weeks that left me feeling like crap! Going forward, Iโ€™ll get them once a month! & suck! Praying these meds finally work! Side effects are worse than the disease sometimes!
Reply Retweet Like
Dungeonista Tahina ๐Ÿ’œโ™ ๏ธ๐Ÿ–ค 15h
Huzzah! Almost through! In case you were wondering - for this I get a mix of infusions and injections (over 18 months). The people in the "infusion ambulance" are the nicest ppl ever, and they have the best coffee! Also, this chair! Can I take it home? ๐Ÿ˜…
Reply Retweet Like
AskGeeves๐Ÿ—จ Sep 16
Find a Doctor that fits your lifestyle & personality it's vital. I'm blessed that my Rheumatologist & medical team are so amazing & work together. I credit Yale hospital for keeping me alive & healthy as possible. Traveling to them is worth it.
Reply Retweet Like
Tom Oโ€™Reilly Sep 9
So tired of being sick! Months of chest pains, lung issues, passing out spells, weak limbs, and painful joints. Docs say looks like lupus but not sure. Asking for a prayer to feel better.
Reply Retweet Like