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Lyell Jones MD Oct 28
On February 16, 1956, these handwritten notes from weekly EMG case conference describe a patient with weakness, decrement, and facilitation. First written description of what would become Lambert-Eaton myasthenic syndrome Notes in black from Dr. Lambert
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Autoimmune List Nov 3
FAQs About Chemotherapy and Radiation Therapy in Lambert-Eaton myasthenic syndrome. For people with LEMS, finding out that they also have small cell lung cancer (SCLC) can be frightening.
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Miss Endy Sep 5
Happy 12th Birthday to John & Alec! 🎉
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Sabrina Jul 20
Great information from the 2019 PBIS Conference. Thanks to Ms. Buser, Ms. Rudnicki, Ms. Guinn, Ms. Jones and Ms. Duley for coming along with me to get great ideas and develop a better understand of how to serve our community.
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Smarter Grid Solutions Oct 16
Valuable results in the policy review by on factors that should be considered when implementing Local Energy Markets
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Vincent Rajkumar Feb 15
Recently I wrote about a patient with . The drug for LEMS was mailed for free or low cost by Jacobus for years. Now received FDA approval for Firdapse— tiny modification of an old drug; & set price at $350,000!!! Here is the follow up: Please RT & read on👇
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Jeffrey Cranmer Jun 12
is taking on FDA’s ability to bend the law to create competition for a drug in federal court. The case will test FDA's ability to use regulatory flexibility to temper effects of orphan, new drug exclusivities, writes 's :
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Maximilian Konig Feb 10
A discovered in 1970, available for free since 1990, slightly modified with the intent to generate between $300 million and $900 million/year off a small number of patients with that depend on it. ? 💵
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Global Genes Dec 7
In November, approved 11 treatments for including Lambert-Eaton Myasthenic Syndrome (), aplastic anemia & cute myeloid leukemia. Read the up-to-date list of orphan drug approvals in 2018 at
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BioCentury Jun 12
Catalyst lawsuit challenges FDA's ability to bend the law to lower prices of drugs for rare diseases
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B E N J Sep 18
Congraaaats satin 🏐🏐💖 #1-0
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Care Considerations Feb 10
Why a once-free drug for a rare disease is now being sold for $375K a year - NBC News
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DARK SMITH Mar 15
'SAVE LEMS: PNW Only Black-owned/focused Bookstore' via
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Todd B. #IStandWithIlhan Mar 12
is a fixture in South & a particularly important & necessary institution in Seattle’s Black community. It is Washington’s only Black-owned bookstore...” ⁦ via ⁦
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Vincent Rajkumar Feb 20
An important story by @DrashmanCNN on the drug Firdapse priced at $375,000 per year and what it means to patients. We should not treat this as an outlier: Reflects the system that allows something like this to happen.
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David Hancock Jun 27
Replying to @InterSystemsUK
will be there to do and . We’d be happy to explore any other -based with other or system providers.
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Vincent Rajkumar May 7
Replying to @VincentRK
Now if Jacobus doesn’t do the right thing, and price it’s drug correctly, I will be very disappointed.
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Tshepo Khulumane Bai Jun 7
Botswana Democratic Party all the way ✊🏽⚪⚫🔴
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Patient Worthy Apr 24
Study Finds Firdapse is the Most Effective Treatment for LEMS, but it is Not The Most Commonly Prescribed
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Tag a Life Int(TaLI) Jul 3
TaLI is attending a partners meeting by for their Women Leadership programme where TaLI will be implementing the Young Women’s Programme’ which raises young women as leaders.
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