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JTH 16h
New article: FVIIa provides platelet-dependent in disorder Keshava et al show rFVIIa also induces thrombin generation independent of in 🐭 & localized to site of injury.
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WFH May 20
Deon York, WFH Board of Directors Lay member, talks about the wide range of multidisciplinary specialities—and the importance of the patient track—at the WFH Virtual Summit from June 14 to Friday June 19, 2020. Watch the video here:
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Mara Alene 9h
Replying to @jessejohnclark
I never thought I’d find myself rooting for .
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CoalitionHemoB May 24
Join us on a Journey! We are hosting an online presentation on May 28th and May 31st on “Health Insurance Basics: Everything You Didn't Know You Need to Know.“ Dates: Thursday, May 28 @ 7PM EDT Sunday, May 31 @ 4PM EDT Sponsored by: Medexus
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Helen Lloyd May 23
Published on : Transgenic animals can produce recombinant protein for treatment of hemophilia: Hemophilic factors produced by transgenic livestock can enable alternative therapies worldwide
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MyHemophiliaTeam May 24
is discussing the pros and cons of various treatments and therapies. Learn what to expect, hear from others who have tried them, or ask a question:
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BloodStream Media 12h
*NEW EPISODE: Ask the Expert Podcast* Dr. Len Valentino of shares how NHF is addressing the current COVID pandemic, NHF’s national research agenda, and how COVID could impact the shift in treatment in . + Virtual BDC! Listen NOW:
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NORD May 24
Register today! Join us live on Tues, 6/2 @ 12pm ET for an interactive video education program about A. Hear from a panel of specialists, experts & a parent of a child currently living with the disorder. Register now:
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Hemophilia 12h
What's the bravest thing you have ever done?
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HemophiliaFederation 13h
Have questions about ? At 12 p.m. ET June 2 medical specialists & advocates answer questions live & share helpful information, presented by , & . Send questions: & register at
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Hemophilia May 21
A management plan can help you feel your best and more in control of your condition. But what might happen if you don’t follow it?
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CoalitionHemoB May 23
B community friends! Meet us in the CHB Saturday Social Zoom room tonight @ 8PM Eastern for KAHOOT TRIVIA NIGHT. Check your ✉️ email for the Zoom link. It's a lot of fun. We can't wait to see you!
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I Dream Too Trust May 21
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Michael Makris May 21
Both NovoNordisk and Roche have issue letters about how treatments with their products can affect coagulation tests which could be important if patients with are admitted with COVID-19.
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Hippocratic Notes May 22
What an amazing summer this will be: 6 days of sessions on and other bleeding disorders during the WFH Virtual Summit (June 14 to 19):
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MyHemophiliaTeam May 22
Just knowing you're not alone in your struggles with can be comforting. Instantly connect with others who are living with hemo:
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Hemophilia May 22
"Lean on those who have dealt with the disease, for they will be your best resource." - Father of a child with a rare disease
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Hemophilia May 23
What I remember as the mother of newly diagnosed children
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Pau Salvà May 23
Putting in the miles and slowly building the form again. Enjoy the process🤟🏻
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Hemophilia Ontario May 23
In case you missed it, the video of our & webinar with Dr. Jerry Teitel is now available online on our YouTube channel
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