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The FPIES Foundation 1h
Last Thursday, Co-Director/Co-Founder Amanda was setting up for conference, -style! Throw back to our very first FPIES community t-shirts!
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MyOnlySecret Oct 14
Tonight we passed sorghum flour.... that means Lily can eat a certain brand of gluten free food.
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Colleen Grennan Oct 14
Today is awareness day. A rare and serious food allergy condition we have never heard of before our son was diagnosed. We haven’t started food trials yet so I’ll check back in with my word to describe. I’m hopeful that it will be “coping” and “navigating.”
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David A. Hill, MD, PhD (Hill Lab) Nov 1
Please join me in congratulating Melanie Ruffner () as her paper on food protein-induced enterocolitis was just accepted to ! Congrats Melanie!
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Kelly Doran Dec 16
Replying to @ManuVarma
Thankfully, mine outgrew at age 2! But there are definitely kiddos who don’t outgrow it & have a really tough time, so I still try to stay aware. I think in general docs (including peds & certainly EM) don’t get great education on FPIES—hoping this will change!
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David A. Hill, MD, PhD (Hill Lab) May 21
Come see our posters at the CHOP research institute poster day today! Julie Dilollo presenting on (#29) and Melanie Ruffner presenting on (#118)!
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Michael J. Belaen Jun 29
Without question, is the most generous and caring company on this planet. Thank you so much for all the pumpkin. Sincerely, an parent. 🎃
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jenn kauffman Aug 2
Big shoutout to whose nutrition and ingredients is super allergy-friendly and easy-to-understand. This is the first meal out my toddler (allergic to chicken, egg, wheat) has been able to eat out along with us. YAY! 🏆
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George du Toit Feb 8
'In the young vomiting child, lethargy, floppiness, pallor without fever, and normal CRP should alert clinicians to a possible diagnosis of . A highly elevated CRP is not a feature of ' -
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MyOnlySecret Oct 14
Today is GLOBAL FPIES DAY! Go to to learn more about this food allergy.
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Katharine Spencer Sep 5
Replying to @sarahjchapman
My daughter is nearly 13 but I’m remaining hopeful that the spontaneous allergies she developed age 9, will be outgrown. I already know her will likely be here for life, sadly
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ashley irvine Apr 11
All of this! Hard to diagnose, easy to misdiagnose, no treatment other than avoidance... is a slippery sucker. More research and more awareness is needed 💜
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Clare Pain Feb 8
I have not heard of before - children under 2 profusely after oats, rice, chicken, eggs or cows' milk may have this condition
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Global Genes Oct 14
Check out what resources RARE Foundation Alliance member is sharing for Global FPIES Day!
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ourhealthyfamilylife Oct 20
Baby Girl just tried white potatoes. We'll see how this goes... The next two hours to three days will tell. What do you think will happen?
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AAAAI Feb 24
can be chronic Session 3001 Drs. Brown-Whitehorn and Cianferoni
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George du Toit Jan 22
Food Protein induced Enterocolitis Syndrome - A British Paediatric Surveillance Unit (BPSU) study is starting in the UK & ROI. Pls spread the word & report all new cases - see -
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DrLauri van der Poel Oct 18
A fact-filled FPIES session. NowakWegzryn highlights higher than previously believed pop prev (eg 0.51% in US survey), difficulties of challenge (time consuming and potentially high risk) Shout out for MartaVasquez-Ortiz for her 2017 challenge data.
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Nic Feb 1
The British Paediatric Surveillance Unit now has reporting on food protein induced enterocolitis syndrome
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Turn It Teal Sep 7
FPIES is something so many don’t even know about. We went to 6 allergists and a few GI docs before we had confirmation.
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