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Sheri (LupusDiva) (osaxy) Sep 18
What do you do when you can no longer cry because your tears make you hurt so much worse? I pray. I pray for all. ❤️❤️❤️❤️❤️❤️❤️ Love, me
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ME/CFSCoach 2h
ME CFS 5 Steps For Doing More Safely Step 5: View Setbacks As Temporary & Avoid Catastrophising
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xxxJoolsxxx #PIPAssessorsLie #FibromyalgiaisREAL 16h
Can Fibromyalgia warriors in the UK please tell me what pain killers work for you? Was swapped from co proxamol to co codamol and have got all the side affects and no pain relief. Need to ask for something else any help greatfully received.
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ME/CFSCoach 7h
CFS You know how it feels not being able to trust your body.
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ptsdandillness Sep 18
Replying to @Peter_Grinspoon
makes me extremely ticklish. It even turns my tender points ticklish so I laugh instead of scream when they are touched. It makes me smile till my face hurts, laugh till my abs hurt. I'm not sure how I put up with the
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ME/CFSCoach 6h
ME CFS 5 Steps For Doing More Safely Step 4: If you fall over, be kind to yourself
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Jennifer Brea 14h
Replying to @NIHDirector
This is heartbreaking. An initiative to study music but not a single RFA for or any other disease that I have. Sir, you are profoundly neglecting the health of the nation.
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Jackie Dillon 🏴󠁧󠁢󠁳󠁣󠁴󠁿 🍀🤘 2h
Don't usually post about my conditions but can't believe the excruciating pain in my neck, shoulder, back etc. Awaiting MRI scan for my shoulders & spine which showed deterioration in my last MRI 2 years ago then decide what to do...🙁
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🦆 🧶 Carina Hilbert✌️ 18h
I managed to get the ducks out, cleaned up, and fed, and I thought I had enough energy to pick out in the garden. That, of course, turned into weeding a spot looking for onions, and I overdid it. My stepson was helping until he went inside, sick. Poor thing. 😔
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LdyGamer ☕ 16h
Replying to @graphickat
when I was first dx'd with my dad DID say to me that I just needed more sunshine and exercise. I told him how hurtful that was. Bless him he read all he could about the disease & now understands that that kinda talk is BS. Many don't have the support from loved ones tho :(
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Dave ♿️ Esq Sep 16
As a sufferer myself, I want my GP to prescribe me so that I can see if it helps me. The chemical cosh that I take daily is not doing anything for my .
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ME/CFSCoach Sep 18
ME CFS 5 Steps For Doing More Safely. Step 5 Avoid this: "I can't relax" You can learn. I can show you how
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Belinda Humphrey Sep 17
Thank you to everyone who has supported me raising money for
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FIBRO INDIA 9h
B for Ball Guide Pillar Set! FIBRO India has brought to you the Product designed in pursuit of perfection & aiming to provide German Precision with indigenous costs benefits.
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Sam 11h
Replying to @vertigoandme
4yrs for and currently going on 6yrs for
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Oh TWIST! 5h
The most common form of has been called & in the past. Leading MDs now saying likely all Hypermobile or form of
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Myka 😺🌊🧜‍♀️💜✌ 12h
Saw Rheumatologist&went over our usual run down of fibro stuff. I told her about new painful issue with my right bottom foot & arch & right leg. She examined it & thinks it's possibly Plantar Fasciitis. She wants me to go & get an x-ray of my foot tomorrow.
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Oh TWIST! Sep 18
Peeling the Diagnostic Onion - is your doctor falling for too many red herrings and missing your ?
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Jo Ingold Sep 17
Am having a bad day but dragged myself to say hello to our new students and am faced with this. People without disabilities have no idea how it feels to be excluded.
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FibroGirl 8h
Looking forward to seeing all my friends at work today. It’s been 2 weeks but feels like years. They are so supportive with my
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