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Josh Farnsworth Sep 18
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Rep. Andy Levin Sep 17
The first step toward finding a cure for is raising awareness. That’s why the work by my constituent Jason Dunn is so important. Read more about my resolution designating September National Dystonia Awareness Month and Jason's story here:
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Bouquet of Hope Sep 17
September is , represented by this blue . is a common movement disorder & commonly recognized by a body part twisted in an awkward position & repetitive muscle twitching, spasms, or cramps. Please share this rose to spread awareness.
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Amanda Yarbro 10h
This happened to me. Dystonia symptoms are often misinterpreted, due to a lack of awareness among the public as well as in many medical fields.
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DMRF 11h
Victims of rare disorder need advocates to find cause, cure
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Odin Omen Sep 19
I have , , skin , bust my ass at work, and still don’t make enough money to maintain my health. It’s so expensive that I had to cancel my cancer treatment tomorrow. There are so many in way worse positions. It’s total bullshit.
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ST Dystonia Sep 16
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Brittany Smith Sep 19
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Steve Petherbridge 9h
Probabilistic sweet spots predict motor outcome for deep brain stimulation in Parkinson disease This will probably apply to for too
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Nicola 17h
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DMRF Canada Sep 18
Our thanks to for supporting and the community by supporting :
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ST Dystonia Sep 17
You are so strong! You Are Not Alone! I hope you sleep well and wake refreshed in the morning.
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Bhooma Aravamuthan 6h
ALSO - what about botox for ?? The conversation remains spasticity centric atm - understandable, but the story is MUCH MORE complicated.
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Movement Help 14h
and causes involuntary muscle movements including “Dragging leg” and uncontrollable blinking. Get yourself treated from LA’s Leading today!
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FindMeCure Sep 11
A delay in diagnosis for patients means delayed treatment – something that can not only render them unemployed but cause a lot of pain and anxiety. What is research looking into to offer better treatments?
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Gr8_Scot 2h
Please help medical marijuana bill get passed in WI and include Dystonia on list of conditions like Illinois.
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ST Dystonia Sep 18
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Brittany Smith 11h
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Nikkia Noiles Sep 16
I pushed it a lil yesterday...now to deal with pain level being higher.
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DJ LaKota 5h
‘I’m radioactive, radioactive 📻☢️‘
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