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Princess, The Tower Sep 20
“I force myself to be fine when I’m not. My body might be telling me to stop so I can rest, but I’ll pretend it’s fine because I don’t want people to see… I just prepare myself for the crash later on when nobody is around.”
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L 6h
Another morning,another trip to Northern General hospital to have a steroid injection in my left ankle. Right ankle still giving me much pain. Walking without a limp or pain is a distant memory. Please don’t take your mobility for granted
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Princess, The Tower Sep 17
“People with don’t get a break from feeling tired. We just have to keep going… The pain can be so intense that it just exhausts…physically and mentally.” When Your Chronic Pain Leaves You in a Constant State of Tiredness
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Princess, The Tower Sep 22
“I don’t have a “low pain threshold” neither do the huge majority… Whenever it’s possible to physically do so, we do things…but we often do it in such pain that if anyone else experienced it, they would demand pain relief at the closest ER.”
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Princess, The Tower 2h
“When pain and uncertainty fill your days…it’s natural to seek out some sort of stability… To have a broken boat for a permanent home is . My eyes are always watching out for the next storm…it’s just a matter of when.”
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Quell Pain Relief 5m
"If you're in , it shuts your whole life down" - Hear about Quell user Christi's experience with Quell and how "The Quell makes it a lot easier to cope with the pain"
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Eli Lilly and Company Sep 22
Living with constant pain can be life-altering. The burden of can impact nearly every aspect of a person’s life, including physical, emotional and social effects.
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Princess, The Tower 5h
simply can’t be compared to the time-limited experience of acute pain. In the aftermath of acute pain, you slowly gain progress until you get better… Pain multiplied over time becomes an entity of its own kind.”
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Rev Ree Sep 22
I’m wondering how many of you w/fibro are in constant pain/flare every day! I can’t even tell you the last time I felt good. Prednisone is only time I felt decent! I am bed ridden basically. Is this normal?
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Elise 51m
You can break my heart and crush my dreams, but you can never take my soul You can crack my stones and melt my steel, but you can never take my soul You. Can. Never. Take. My. Soul.
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The Hummingbird Sep 18
In ABC’s show The Conners the character of Roseanne, who has been depicted as a patient, is set to die of an overdose in an episode over the weekend. Many CPPs feel this is not only inaccurate, it perpetuates harmful stereotypes that negatively impacts the care & QOL
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DEE 4h
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Princess, The Tower Sep 13
“Living with frequently means having : being unable to sleep because you are in too much pain. It also means being in more pain because you didn’t sleep, thus initiating the painsomnia cycle.”
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Sheri (LupusDiva) (osaxy) Sep 22
Thank you so much to those of you that DMd me. Sorry... I'm just not doing great. Still can't get all out of my lungs from that radiator leak and still no local GP doc. I'll get on phone again next week. Remember you are loved by me! etc. 💋
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Jason jensen Sep 21
For most people with life altering debilitating pain, the potential side effects of extended opioid use pale in comparison to the pain and life limiting attribute of that pain. What kind of life is one in which people merely exist, and suffer during said existence?
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Princess, The Tower 14h
“The decision to taper should be based on whether the benefits for pain and function outweigh harm for that patient… It’s individualized, nuanced. We can’t codify it with an arbitrary threshold.”
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Princess, The Tower Sep 22
“Everything I do has to be planned out. If I am going out, I have to be sure to have my medication and my seat cushion. I need to know how long I will be in the car and how long I will be walking, sitting and standing.”
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Lindsay Baran 21h
. What a deceptive tweet. You know from your own data that most fentanyl overdoses are related to illicitly-manufactured fentanyl, not fentanyl legally prescribed for pain. Misleading statements like this are dangerous & add to the stigma folks w face.
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Princess, The Tower 11h
“'Have you tried…?' This friend did and cured themselves!’ I try to not take it personally or get offended…but I can’t help it sometimes… It makes me feel like people don’t think I try hard enough.”
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Thomas Kline MD, PhD Sep 22
Watch small words. She died from an opioid RELATED death. She died from opioid CAUSED death. Big difference. If aspirin was taken: Aspirin RELATED death. Guess who uses RELATED deaths their data - correct! the CDC! 5 points!
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