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ChronicLoveClub 2m
CLC Feature Story: Kristin’s journey with HSP/IgA Vasculitis • @kristin__elisabeth Click here to view the story on our Instagram page:
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Princess, The Tower Nov 26
“I understand how you feel because I have been there myself. We must support each other and empathize with each other because each of us is more alike than we are unalike.” ~
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Princess, The Tower Nov 28
“When we live with pain or symptoms 24/7, if we lived our lives reacting to it by constantly screaming…we would wear ourselves out even further and cause even more physical stress…more pain… We have to find some way of living with .”
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AnCan 18s
National Sarcoidosis Online Video Chat Support Group Meeting, Tues Dec 1 @ 7 pm Eastern -
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Princess, The Tower Nov 27
“I just want some relief. I’m not even asking for a “pain free” life… I just want to be able to function… so let me cry. Let me mourn. I know this will pass but today I just need to admit this illness sucks.”
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Princess, The Tower Nov 27
“Despite my diagnosis and the things people will never be able to see, one of the happiest moments during my journey has been when I found the to let go of what I couldn’t change.” : What’s Hidden Behind My Smile
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null 19h
Whenever I feel a bit... well, crazy in how I feel about my circumstances, I try to remember this quote by Viktor Frankl: "An abnormal reaction to an abnormal situation is normal behavior".
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Through the Fibro Fog Nov 29
'Pain is isolating in many ways. As well as meaning we can’t always be out and about as much, I can feel somewhat detached from others as they don’t ‘get it’ when I explain my '
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jadzia 🦇 deep sea cryptid Nov 24
I have a lot of ideas and I'm never gonna be able to pursue most of them. So here's one I'll give away: Cards for chronically ill people. Imagine getting a card that said, "congratulations on finally getting a diagnosis!"
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Megsie Nov 24
I confess that my new therapist is darn fantastic! He’s young with a great sense of humor but challenges me to think in a different way. I’m impressed. Dang it. 😉
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4q35-2! StayHomeStaySafe & SaveLifes! Nov 24
Seven days only 3 and half hour of sleep for me. I'm surprised I'm still going. I can't remember my daughter ever being like this before.
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Princess, The Tower Nov 26
“I yearn for the days when I thought hard work and determination were the only requirements for success… My body is riddled with and my soul…with frustration…No one knows I’m fraying.” The War I Fight Because of
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Allie Lightcap (she/her) Nov 25
I feel so much relief. My allergist believes me, has seen the evidence, and will treat my chronic hives. I’ve been in so much pain. Small victories.
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Princess, The Tower 1h
“A lot of people with fight a feeling of guilt when they aren’t able to accomplish all of the things… When you feel like you can’t do anything: . Focus on inhaling and exhaling… Do what you can, when you can. It will be enough.”
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Through the Fibro Fog Nov 24
'The number one suggestion from my insta friends! Heat and ice for pain relief can be really effective for , and other conditions'
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Princess, The Tower Nov 27
“Winter just amps up the and I have no temperature control so I am constantly freezing. Constantly. So I need to manage the pain but also the infernal cold.” 7 things I use to survive the winter
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Princess, The Tower Nov 25
“People are quick to assume that if you’re not continuously productive, you must be lazy. But…pushing yourself too hard can lead to burnout and even more downtime…physically you may not be able to keep going as much as others.”
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ChronicLoveClub 1m
Your best can look different each day as different days bring different challenges. Be gentle with yourself; you’re doing the best you can 💜
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Hassan Khader Ali Yusuf Nov 21
I always say ,"Tomorrow will be better ." but for sure "The perspective coming life will never be better than the past missing one if it comes at all . " said I .
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Princess, The Tower Nov 29
“Of pain you could wish only one thing: that it should stop. Nothing in the world was so bad as physical pain.” ― , 1984
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