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Princess, The Tower Sep 11
“When I lost my job to it hurt more than the physical pain…I lost a huge part of my identity when I lost my ability to work. It took a major toll on my . I worked so hard…to have my career cut short at age 27 was so painful.”
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Princess, The Tower 15h
“I used to believe that with hard work you could achieve anything. Learning this wasn’t true was soul destroying… Speak to anyone with a who is unable to work, I guarantee you they would give anything to be well again and be able to work.”
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Princess, The Tower Sep 15
turns your brain into a pile of mush… As an academic, I struggle with this one a lot because it becomes nearly impossible to write, or to write as beautifully as I used to. It also ruins my ability to remember.”
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Princess, The Tower Sep 11
“Not a single person in my family can accept that I had to save up my energy for two days in order to make it to that doctor appointment. And they certainly can’t believe that it will take another three…to recover.”
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Princess, The Tower Sep 14
“The difference between someone with associated …if I go out…it could take a week to recover. I have to carefully plan every activity…You experience a completely different kind of tired to people with chronic illnesses.”
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Lorna Sep 17
This is so brilliant! My fellow housebound , look at this! 🤩
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Peter Morley Sep 16
They are RELENTLESS in their efforts to take away protections for 130M w/, which would also place CAPS on annual & lifetime care. When people say, "Peter, why do you travel to DC w/ when it can endanger your health?" This is WHY!
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Pain Patients United Sep 9
All the sees when they look at patients and patients are ppl trying to get high...when in reality we are ppl just trying to LIVE. The most basic human right...ever.
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Princess, The Tower Sep 10
is unpredictable. One day you’ll be thinking, “I can handle it” then bam. The next…find yourself bed-bound as the weeks fly by, wondering if it will ever let up…now…I give myself …I am doing my absolute best—and that is OK.”
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Princess, The Tower Sep 9
“I mourn the loss of who I was… may impact who I become but it’s just one of the many layers that make me the person I am… This terrible, life-altering illness…has made me more appreciative…determined…more empathetic to the world.”
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Arianne Grand Sep 14
Life with chronic illness: You wake up & feel ok enough to think you're going to be able to do something. 😃 So, you take a shower only to find that just getting undressed used every spoon for the day and the shower sent you into the red- Again.😷
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Love To Breathe Sep 16
It's that dreaded time of year again... Flu and Cold season is among us and it is my least favorite season. For those with or any a cold is never just a cold and the flu is never just the flu. Stay healthy everyone!😷❤️💉
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Princess, The Tower Sep 13
“Chronic illnesses take a huge toll on our bodies physically, mentally and emotionally… and often arise from the strain and loneliness of . may result from bad experiences with physicians.”
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Peter Morley Sep 16
I am "Peter Morley" refers to here. I've been to the Hill 25x in 2 years w/ & over 10+ b/c it's crucial to I APPLAUD Alyssa for meeting w/Senator Cruz. Conversations like these MUST happen to create change. 💪
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💖💄 Aoife ♿💜 Sep 16
Like so many of you I am beyond frustrated that I can't get a diagnosis because there are no connective tissue disorder Dr s who take Medicaid. This is NYC, this is beyond unacceptable. Just cried on my GP again bc of this.
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Jessica Sep 12
So I saw my dr and she called my rheumatologist who called my surgeon who called the radiologist for an ultrasound of my enlarged lymph nodes. All in a matter of 15 mins I'm sched for a ultrasound tom. I'm drained.
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I am not a Sanctimommy 22h
Spent Saturday in bed so could I attend two events on Sunday, but have now spent the next two days back in bed. I don't manage my time; I manage my pain threshold.
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AnotherMSWarrior 21h
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Fab NMO 37m
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MamaBear Sep 15
Replying to @esteckler2
7/ I truly feel that those w and need to stand in unity against behavior like this. It has no place.
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