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Ohio Adults with Congenital Heart Defects 57m
Everyone Welcome! Please join us for a day developed by patients for patients! This event will be dedicated to connecting and empowering teens and adults with single ventricle circulation to feel supported and uplifted while gaining the tools to take control of their care
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PBNSG 11h
One of our friends and PBNSG member Dave Willits featured on Plant Powered Stories - 11 shock Dave! ⚡️🧡 Check out the YouTube Video:
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Lena Aug 21
Multi-tasking: driving down the road on the way to the dentist this afternoon, popping my pre-med antibiotics one by one out of the bottle --and I look over to see a horrified family watching in the car next to me. 🤣 🤘
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Stephanie Aug 22
The most important part of the journey has been to accept that our lives have been difficult, but to be compassionate and empathetic to give Z the best life he can have, within the boundaries of his existing medical and physical disabilities. It's not a journey for cowards.
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A Dad’s POV on VSD! Aug 22
Beach fun in the sun. 👍 doesn’t stop him. He does struggle to regulate his heat so needs regular shade and drinks breaks. And we only spend a few hours there, rather than all day.
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Alisha Street Aug 16
In the waiting room with my warrior for a 3-month checkup. He's okay but nervous. He has a lot of anxiety about being hooked up to the machines, and he doesn't like lying still for echos, but we promised him a toy and some steak after it's over.
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Stone Aug 20
Had my annual appointment and it went fabulous! Somehow my sinus node is managing to take back over and I’ve gone from paces 1/2 the time to 1/3 the time ❤️ I’ve also got 7 years left of battery life 🔋
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Richard Schwindt Aug 16
Replying to @rgschwindt
I consider this my best watercolor. I don't know how I even managed it. I painted it in about an hour, 6 weeks after I had a stroke. Go figure. Say what you want about ; it can be a real fucking ride.
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Stephanie Aug 20
The American Academy of Pediatrics on issue of - “the age of transition should be based not on a number but on the patient’s individual needs...physician must take into account the physical and psychosocial needs of the patient"
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Kate Marshall Aug 22
Replying to @Dissertating @UNSW
Hey hey again 👋 I’m Kate & I’m PhD Candidate at . I’m researching outcomes of people with complex & their families, & looking into how psychological care is into paediatric hospitals. I believe leopard print is a neutral😆🐆 Let's chat!
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Alyssa Ronan 7h
I’d like a wishlist option for merch so that my bfs know what to get me for holidays
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Hopeful Hearts Foundation Aug 19
When you are the parent of a child with disabilities or health care needs, the new school year is about more than backpacks, school supplies, clothing and shoes. What are some of the ways you prepare for back to school?
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Sian Edwards 17h
The amazing man who operated on Oliver, there are not enough words ...
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Joseph Matthew Aug 21
Good Evening everyone! Have a great evening and Thank you for sharing about !
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Stephanie Aug 18
Prognostic relevance of pulmonary arterial compliance after therapy initiation or escalation in patients with pulmonary arterial hypertension
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Richard James Aug 21
Replying to @ACHA_Heart
Missed opportunity in many regards- Philly is the HQ of and has a number of active advocates: what avenues will they have to engage with clinicians at this hugely significant event?
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Stockport NHS FT 13h
Big thanks to for their kind donation of three to our maternity unit, helping us to scan for heart problems in newborns which will help with treatment later on
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Richard James Aug 22
Great learning opportunity at for those interested in neurodevelopmental outcomes and social/emotional care of cardiac kids and their families
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Katie Bates Aug 22
I love this on so many levels! 1. Focus on neurodevelopmental outcomes for . 2. Clear communication tool for families. 3. Seriously wish that was my schedule today!
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Fred Wu, MD Aug 22
So far this week, I've already seen one patient who was operated on by Dr. Robert Gross and one who was operated on by Dr. William Mustard. Just highlights how young the field of heart surgery really is!
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