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Jessica Winn Apr 19
How often are worsening defects missed on echos??? I am so confused at this point. I didn't think it was THAT hard yall. There are a lot of us. Don't these docs know what stenosis looks like... specifically for a parachute mitral valve
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ACHA Apr 19
Check out this informative article by : "A Patient's Guide to Congenital Heart Disease." A great read for all members of the community, and to share with your networks for awareness!!
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Jill Slattery Apr 20
Beautifully written response from a parent to . I’m in constant awe of the and I shadow, learn from & work with. They go above and beyond daily, and always will!
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Shelby Kutty, MD, PhD, MHCM Apr 19
It’s and I am going to introduce myself and follow all who RT & comment Shelby Kutty-Chief Ped Cardiology Research Interests- Life interests- Reading, Leadership
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Dr. Starry Eyes 3h
I have~$30k left after paying 14 years! Took a 30yr repayment plan. It’s a win-win for me: If I die before paying, debt dies with me. If I live long enough to pay it off, then I lived 30 years after finishing school! Of course, I’d rather live longer though! Too morbid? Lol
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Daniel Topazio Apr 23
Wow! That's a clean scar! They must have sharper scalpels than when I got mine in 1986. "Scars are just tattoos with better stories." Stay strong and keep up with your care. -42 y/o single vent
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Jessica Winn Apr 19
This pedatric card says I'm narrow enough to be causing some of my symptoms that we were calling POTS. I still apparently have POTS tho?????!!!!! yall better talk 😂😂
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Antonio Carlos L de Barros Filho Apr 24
LV and RV views of partially occluded ventricular septal defect. .
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Alexis Scott 7h
I’d do sports but I have . I’m still trying to figure out how to work out without hurting my heart. lol.
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Stone Apr 23
The last time I picked up my beta blockers I counted when I got home and the pharmacy shorted me 10 pills. Can’t do anything since it left the store. Now I’m out and they won’t let me refill it cause it’s “too soon” 🙃
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Sibley Heart Center Apr 24
There are multiple types of truncus arteriosus (TA). 60% of all types of TA are classified as Type I. Type I is corrected by closing the VSD. Additionally, a connection is made between the bottom right heart chamber and the branch pulmonary arteries going to the lungs.
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Stephanie Apr 23
Replying to @ItIsNoahE
Zakki has the new Apple watch and it's helped his congenital heart and lung defects team ❤️
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Joseph Matthew 24h
Good Evening everyone! Have a great evening and Thank you for sharing about !
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kelly stribling Apr 22
going pale and sweaty or mottled
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Ashley Totten 10h
Less than a month until his asd/vsd repair surgery! You already shine so bright Maddox, nothing will stop you, not even holes in your heart.
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Stephanie 3h
By Day, at CHOP being a heart kid and by night hanging out with a best friend for 20+ years. Zakki is older - haha. He had THE most amazing, accepting, and fun friends growing up. They all met playing T-Ball + 7-9 Baseball, and hung out at our home daily.
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Columbia Children's Health 8h
Join us on 4/30-5/1 as our uniquely qualified team provides a comprehensive overview of the management of children and adults with congenital heart valve malformations.
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Stephanie Apr 24
It's difficult for most medical providers to understand how the original heart defects and/or surgeries impact other organ systems too. Most Pediatric Doctors understand this but the adult med world is way behind on "getting it" and need to catch up on their CHD learning.
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Stephanie Apr 16
Replying to @Priyanka_Saha27
I don't think this is true. Morbidity and mortality for critical and complex is due to their heart defects in every journal article I have read (100s) and living it day to day. NOT acquired CVD but in fact Hemoptysis, Plastic Bronchitis, PH, collaterals, et al et al.
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Stephanie Apr 20
So blessed and lucky that Zakki has had such kind, compassionate, empathetic, and medically awesome care teams for his very complex medical needs and incredible congenital heart care and four other children's hospitals he has had cardiac care.
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