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Sandra Spivey Sep 16
Big point to me - stage 4 patients need to process their grief before they can heal. They are grieving the future they expected to have. They need a way to get over unwarranted self guilt that they are now ill. If palliative care can do that, excellent.
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Rod Ritchie Sep 16
Hi all. Five years NED for Stage 3B BC.
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Ishwaria Subbiah, MD MS Sep 16
Replying to @stales
We're working to redefine as symptom management at any stage of illness and of any illness, cancer or otherwise! teams work side by side w primary medical teams to provide care!
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Sandra Spivey Sep 16
T4 - can Palliative care appointments happen at a distance? Skype? Phone call? I hate the thought of additional appointments. I feel like going to the medical center is my full time unpaid job - driving, cheming in, waiting, picking up meds, etc. Can’t live like that
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Renee Kaiman Sep 20
You know what sucks? Being told you have an appointment to see your oncologist. The resident comes in half an hour later and can’t answer one question! Now I’ve been waiting to see my oncologist for over an hour. My time is important too
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Sandra Spivey Sep 20
For those who are ER negative, the death curve drops substantially after 5 years- especially for TNBC where the curve is steep the first 2-5 years past MBC dx. Not so for ER+. That cancer subtype follows no rules of proper etiquette. This cancer type must be punished.
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Sandra Spivey 13h
“The cancer came back.” Was it hiding in the closet? Did it take a trip to the beach? No. It never left.
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@changingourmindset Sep 20
So I developed an allergy to the glue they used during surgery last wk..visit to ER this morning to treat my blistering skin. Meanwhile, overheard from the nurses station: “They are less likely to run if they are naked..than if they are wearing underwear. 😭😆
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Kelli Davis Sep 20
What is “complicated” about calling it metastatic?
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Susan Rahn 11h
Which is WHY - mammograms don't ”save lives” - at their best - they help diagnose cancer *HOWTHEFUCKEVER* They are NOT the best tool in finding cancer. Not all breast cancers have lumps to find. Should you skip yours? No, but don't be naive enough to believe they save lives
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Ishwaria Subbiah, MD MS Sep 16
Replying to @ErikaHamilton9 @stales
👏! Oncology visits are spent on Disease Management! There are so many more domains to a person and illness - the ENTIRE time of a appointment is devoted to these other domains (see pic!). This is why we work in PARTNERSHIP w your oncologist!
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Susan Rahn Sep 19
Lobular vs. Ductal breast cancer - site of . ILC has a unique group of the site of metastases in comparison to IDC; including the gastrointestinal & urogenital tract.
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Brave Bosom Sep 20
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Sandra Spivey Sep 20
What’s this “beside” drivel in “bench to bedside”? How many of us are treated in hospital beds? For me, maybe 5% of the time. I’d rather it be “bench to patient” or “lab to people.” Not as catchy but real world.
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Catherine Williams Sep 16
Looking for an patient advocate who can speak at the upcoming Bay Area mets conference on Saturday, October 12. I will be undergoing gamma knife rads to brain that Friday, so need a sub!
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Ramiro Bermudez-I.MD Sep 16
continue RDT after NAC
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Sandra Spivey Sep 17
Using maximum tolerated dose as the standard drug dose in phase 1 is like taking all you do to brink of disaster and considering that normal behavior. We need effective personalized doses.
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Corrie Painter, PhD Sep 16
Hi everyone, Corrie from the MBCproject. Thank you for focusing on this important topic.
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LBBC 12h
“Do not ‘should’ on yourself; be patient” - Jacci Thompson-Dodd, on fueling resiliency.
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Brave Bosom Sep 20
Best part of my night: when ⁦⁩ said she was proud of us ❤️
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