Twitter | Search | |
Search Refresh
Lisa Colcutt Aug 20
Ok so had another reaction to the ATG infusion - this time a bit more severe so I’m having sepsis screen & on antibiotics. But, as ever the team are on top of it all. It’s going to be a long night but I’ve just got to get through til Fri!🤞
Reply Retweet Like
Lisa Colcutt Aug 12
1/2 I cannot believe that 1 year after my initial conversation with my consultant I’m finally having my stem cell transplant on 23 Aug. Being admitted this Friday 16th. Start with 5 days of chemo - anti rejection drug then it’s the big day! I’m nervous but hopeful.
Reply Retweet Like
georgie salt Aug 4
8 WEEKS POST-TRANSPLANT! and 2 days drug free. Only 3rd occasion in 22 years being drug free (the other 2 being for very short periods after surgeries). Date night for husband’s birthday
Reply Retweet Like
Lisa Colcutt Aug 15
Starting to feel really nervous about tomorrow but also pleased and grateful I am lucky enough to have been randomised into the clinical trial. For me, this is life changing. Less pain & a break from repeated surgeries is my dream!
Reply Retweet Like
The Bottom Line Aug 15
Chronic illness teaches us to brave but to embark on a stem cell transplant is surely courage on another level. Please join me in wishing Lisa well for what will hopefully be the dawn of a new era for her Crohn's.
Reply Retweet Like
georgie salt Aug 15
Week 10 post transplant and the whole process of hair loss and regrow has happened so quickly! I’d say the whole ‘hair’ situation is back to normal now. Everyone’s different, but wanted to send a little reassurance for others ❤️
Reply Retweet Like
georgie salt Aug 8
2/2 (April 2019) The period between conditioning and harvesting was fortunately a breeze for me. Day 1 of harvesting and over 14 million stem cells collected on this amazing machine!
Reply Retweet Like
Lisa Colcutt Aug 12
Replying to @colcuttshopper
2/2 - I know it will be tough, esp being so far from friends & family but I am focusing on the potential outcome. 4/5 weeks away from home is a small price to pay for a pain free, healthier me.
Reply Retweet Like
Charlie Lees Mar 15
For some people with the most difficult to treat 's autologous stem cell transplantation is a great treatment. is the brainchild of Prof James Lindsay ... it will provide much needed data on the effectiveness of this approach. Delighted to have Edinburgh open.
Reply Retweet Like
The Bottom Line Jul 7
Please join me in sending best wishes to as she undergoes chemo tomorrow to start her pioneering Crohn's stem cell treatment () at Barts Hospital. This treatment has the potential – quite literally – to reboot the life of a person with .
Reply Retweet Like
Justine Mower Jun 7
A year ago today I signed my informed consent for my participation in the It seems both an age ago and also like last week. Here’s to November
Reply Retweet Like
Justine Mower May 23
Been told that at next appointment (week 32) that they will pencil my first chemotherapy appointment in for my 🥂🥂🥂🥂🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻😬😬😁🎺🎺🍾🍾🍾
Reply Retweet Like
Justine Mower Nov 20
Then for Rockstar Rookie I’d like to Nominate Gastro Research Nurse Dominic Studart, he’s supporting me through my participation on the trial. He’s been an ear to listen He’s been an email buddy when it’s all been too much He’s help rescue me from a meltdown 1/2
Reply Retweet Like
Justine Mower 15 Aug 18
I’m currently on Budesonide and waiting to take part in the stem cell transplant at
Reply Retweet Like
Jonathan Macdonald Mar 15
Great news! - study now open in 🏴󠁧󠁢󠁳󠁣󠁴󠁿. Congrats & ! Brilliant time for research in 🏴󠁧󠁢󠁳󠁣󠁴󠁿 - lots collaborations, enthusiastic research teams, engaged pts. - let's publicise and promote all the great work going on!!
Reply Retweet Like
Justine Mower Oct 17
To the train travel gods and please let me get to my appointment because I’ll find out if I’ll get my stem cell transplant.
Reply Retweet Like
The Bottom Line 6 Aug 18
Reply Retweet Like
Justine Mower May 8
colonoscopy prep Eve, had fish and potatoes and cauliflower and asparagus tips.....not sure they were a good idea but knowing my bowels they will pass through quicker than a quick thing. to tomorrow! The joys.
Reply Retweet Like
Kapil Sahnan 12 Jul 18
will test whether with much lower doses of will still be effective but also much safer in . Read the & Public involvement summary
Reply Retweet Like
Lisa Colcutt Aug 16
All booked in, PICC line in and all ready for chemotherapy tomorrow. Thank you for all the lovely messages of support.
Reply Retweet Like