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Judith Taylor Jul 26
Link to the presentation I gave about patient information materials at organised by in Frankfurt.
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The Thyroid Trust Jul 24
have a read of our new blog post - a write up of the , which Lorraine and Judith attended earlier this month...
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MDS DK Patientstøtte Jul 6
Ready for first real Day of in Frankfurt.
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TCA Thyroid Cancer Jul 8
Get on your running shoes!
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Lorraine Williams Jul 7
Follow tweets and if you're interested in what cancer patient advocates from all over Europe are up to in Frankfurt this weekend (and tomorrow). Gratuitous city forest skyline at night pic:
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TCA Thyroid Cancer Jul 8
TCA board member Carmen Villar joined us this morning at
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Hans Scheurer Jul 5
Tomorrow is the start of the first in Frankfurt, organised by the Workgroup of European Cancer Patient Advocacy Networks (WECAN). Around 100 patient advocates attend the lectures and workshops on the SmartStart or Masterclass level.
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Gilliosa Spurrier Jul 8
and the importance of integrity in Cancer NGOs
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Judith Taylor Jul 8
Props are really helpful in getting attention!
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WECAN Aug 20
Reading original scientific literature is the fastest and most reliable way to find out what is going on in your field. Check here the presentation about basics of statistics, reading scientific papers and publications given in the 2019
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merel hennink Jul 7
Great workshop about how to read a research paper! A sheet for non-drug TRIALS?
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Lorraine Williams Jul 8
Will miss this lovely lot. Intense three days of learning in Frankfurt. Huge thanks to the organisers and speakers
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The Thyroid Trust Jul 8
So much useful info being shared at .
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Bregje Verhoeven Jul 8
Patient organizations share the same challenges when it comes to e.g growth & finding the right (board) people. Lots of questions and discussion in the room at the .
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Steve Pointon Jul 8
Really has been a fantastic opportunity and a real learning experience. Thank you to all concerned.
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WECAN Jul 8
Day 3 of 2019: 4 days, 105 patient advocates plus faculty from 26 countries, 24 training sessions on advocacy skills & tools, healthcare systems, policy & access and research and data
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Zack Pemberton-Whiteley Jul 7
Replying to @ZPWLC
Bettina: Science changes. What was correct yesterday is not today. Look for mistakes, question everything
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Bregje Verhoeven Jul 7
Goodmorning! 3rd day of where and inform 100 European Patient Advocates on managing NGOs, ensuring transparency and integrity.
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carmen villar Jul 8
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EORTC QoL Group Jul 8
Happy to hear about the positive response to the EORTC Item Library. We hope that this will be helpful for your advocacy needs.
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