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Alessandro.Bertuccio Nov 13
Great Consensus conference and meeting
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Miriam Martin 7h
Back home after an interesting few days in Milan, some benefits to being a charity volunteer for SACA Need a week off, travelling not as easy as it used to be!
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Ramisco Maki Maki 📎 Jul 5
Brainache took me offline yesterday, what did I miss?
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junji Oct 24
I wish my illness will be cured someday. cells
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Just4Children Oct 30
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Ann Pilot Dec 23
Replying to @RareDiseases
I try & listen to my body. I accept that I need more rest. I’m more forgiving & I don’t push myself too hard bc I know I’ll pay later if I do!
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Julien Arbor, PsyD 巫 Aug 10
What about when there’s a syrinx inside the spinal cord?Does the position of the syrinx make a difference? Is this why a small syrinx can be more symptomatic than a large one? Is imaging advanced enough to obtain enough detail of a syrinx & dorsal horn?
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Louise Francesca Mar 18
In a worrying time like this, I've reminded myself of the power of positive thinking for health and wellbeing. I need to do all I can to keep myself fighting.
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Katie Barry Jul 23
Wishing all my fellow ‘Chiarians’ a summer full of good health and happiness.☺️
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Clare Rusbridge Jan 5
Replying to @neurovet_clare
Make a New Year's resolution for improving dog welfare- be part of the solution not the problem
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Medical News Today Oct 21
Everything you need to know about syringomyelia
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Theresa Manuel Oct 30
Isn't it a good thing we laugh with the pain? Tried some gentle yoga: doesn't like that! Desperate to try. Not allowed to swim according to last physio joy. Try hanging arms whilst leaning head on the wall. Laughing is only option! Whilst crying obvs.
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α b b y 🎃 k α t e Sep 18
Sooo. I’m at the heart hospital today. Literally the only, and I mean only, patient under like.. 75? 🤔🤦🏼‍♀️
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Clare Rusbridge May 16
Wow he looks so very well. Love him - a survivor
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Dipak Pukale Oct 29
Replying to @ConquerChiari
That's awesome! This is great news and motivation for and researchers to work even harder to cure these devastating disorders. Thank you!!
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scary-arsed seagull Feb 28
I forgot about this all day, which is difficult because I cannot forget I have and
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Clare Field Apr 3
Keep going keep going keep going keep going keep going keep going keep going keep going!
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Sarah Spanezich41396 Oct 21
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Chiari Medicine Aug 27
The September ASAP Connections newsletter is now online.
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Bobby Jones Chiari & Syringomyelia Foundation Nov 12
We are deeply saddened to hear of the loss of Dr. Timothy George, Senior Advisory Panel member and staunch advocate for patients with and . Our Bobby Jones CSF family extends our deepest condolences to Dr. George’s family at this difficult time.
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