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Amaranta Arcadia Aug 12
Good night my dear friends 😽 I'm tired of being social the last week, but I'm not going to stay away from you 😊!!! 💕 💕 💕
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Kierstin Aug 12
Having a really freaking good day <3
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Kristin Asker Aug 11
There was a party yesterday. I did not drink. I’m hungover.
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Pippa 1h
I'm searching for an illustrator for an upcoming project: more details can be found in the attached image. Do you know a chronically ill illustrator or graphic designer? Please do spread the word, and thank you *so* much in advance for any contributions!
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BraveHeartBraveSoul 8h
I'm so sorry if I'm not keeping up like I normally do. My shoulder isn't healing & I'm in a lot of pain. Will be seeing a specialist soon. Until I get things figured out my presence here will probably be on & off. Just be patient with me.
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April Dalaman 🌹 Aug 14
Started a new med for my IC yesterday. Had hope it’d give me some of my old life back. Turns out I’m allergic! Couldn’t even lift a pen earlier cuz of pain. At least I avoided the ER so far. Back to square 1. Staying positive is hard in general, but even harder as a . 💔
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Samantha Nachos Aug 13
I am having a downright awful Behcet’s Disease autoimmune flare. I’m back on steroids since my high dose immunosuppressants aren’t doing their job. Send nachos.
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Cat Aug 13
Had a lovely girls' day with Mom. I think this move was the best thing for us! I'm going to work on dressing up a bit more in my day to day and going back to a daily make up routine. It always makes me feel brighter & more confident! How do you pamper yourself?
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Elizabeth Stranger🐾 Aug 16
Well I managed a hour of sleep. The pain calmed down a bit. Butter Cup has come up to apply a warm compress to my achy ribs. I hope all my friends are having a better night than I.
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Erin Grey ✒️ Aug 16
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Bitchin Bear 12h
PA at my pain management office said, “it amazes me how many pain docs completely disregard the quality of life of patients. When someone clearly suffers from pain, they shouldn’t take away meds that work for them. Especially when there is no signs of abusing them”.
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Ginny "Werewolf Girl" O. 🌜 Aug 9
I think I would live in my shower if I could. My head stops hurting. (Ligaments are inflamed causing a fever, causing a headache.) But my skin would get upset (and so would my water bill, yikes.)
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🌴FlowersStorms🍹🌺 Aug 10
Right, off to the station to pick up my friend. I won't be online again until tonight so hope all my siblings have a great day x
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Related searches

#spoonies
Roly Peck Aug 16
My day was going so well... PIP report just arrived. Let's just say according to man who saw me in bed, in agony and in extreme mental distress I have absolutely no impairment whatsoever!!
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Denarii Grace 💖💜💙♿❤🖤💚 10h
Designating tomorrow for responding to emails and generally getting work and writing done. I was gonna do some today, but meh...grocery shopping and cooking is more than enough for my ass. 😩😩😩😩😩 Hold me accountable, Facebook and Twitter!
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FIGHTING THE BATTLE UK Aug 14
making life ruff but I’ve survived so far hopefully today is a better day 💕 love to all my hold on it’s ruff but we’re in this together 💕
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Julie Pintozzi Aug 13
Replying to @kaycommander
Oh, no! Darn sleep probs!
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Fight IPF Aug 17
Have you heard of ? It's a term used for people with chronic conditions, such as , who have limited energy or 'spoons' 🥄 to get them through the day. Try searching 'spoon theory' on Google to help you explain the impact IPF has on your life with friends and family.
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Laura Aug 15
Fellow chronic Illness sufferers: any tips or tricks for getting one energy??? Fatigue has been ridiculous for the past few days but having a day off to refuel isn’t an option. Any supplements etc recommendations?
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✨Alz ✨ Aug 12
Made a new twitter to engage with the community! It’s always difficult to feel like I fit in because of my so hoping to make new friends *cringes at self* who can relate
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