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Juan-Manuel Anaya Aug 25
With Minor Salivary Gland Biopsy in Sjögren's Syndrome, Is a Negative Result Possible?
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Susan Murphy Apr 24
Yesterday someone in my FB support group DIED of Pulmonary Fibrosis in the UK. A woman not that old. When will Drs realize this disease KILLS people, it's just not dry eyes & mouth. I'm lucky ,it only attacked my CNS. Wake up, Doctors...
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Kaela Mar 21
I’m so tired of my body working against me. I got into stinging nettles and it threw me into a flare.
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E-Lee Love ❤️💋❤️💋 Apr 1
and all the other MONSTERS living with us!!! ROUGHHHHH DAY at the Docs & for what?!!! More tests, nothing for severe pain yada yada!!!!! Sorry for the neg Nancy side as I don’t like to show this side... just venting...
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Peter Morley Jul 13
I understand, I have too. I have great difficulty swallowing. In fact, during the hearing, I choked on water and had to stop the hearing to ask if I was alright. He has incredible compassion (I was fine). Thank YOU for sharing this and for your kindness.
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Leticia S. Lewis Aug 1
I can relate when Venus says took professional tennis from her for a while. The condition almost took away my career too. In fact, I think it has done some irreparable damage to it. But I am very grateful for what I have and won’t give up!
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Lucia Martin Gutierrez Jun 7
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HarmonicSS Jul 3
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Rebecca Feb 28
I wear them indoors sometimes! Bright light hurts my eyes
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Jury Lab Jun 7
And the best part of the day- discussions with people with and to find out what they think about our research ideas! So interesting that we over ran...
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InsEYEghtful Barbie May 26
More awareness needs to be raised about the ‘most common’ disease that nobody has ever heard of.👩🏼‍💻
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Alfred Miller,M.D. Mar 7
Burgdorferi ( Disease) must be rulled out in all Rheumatological Diseases - i.e. , Arthritis,, Rheumatica,,,, Cell arteritis,etc.
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Sheri (LupusDiva) (osaxy) May 31
Hang on you got this no matter what you're going through, more tests or medications even hospital admission you can do. Hang on strong and keep being YOU!
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Elvira Chocano Jun 7
It's been a pleasure and a lovely experience to organize and to have been involved in different activities during our event today. A huge thank you, on behalf of my colleagues and myself, to the & patients who attended and shared their experiences with us.
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Anastasia Kalea Jun 7
We are showing people with or our research on the diet and lupus with and the amazing work from our MSc Nutrition students at
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Audrey Renée Sep 27
This is my life daily...if you know someone who goes through this try your best to be understanding 💜
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Sheri (LupusDiva) (osaxy) Aug 28
What do you do when your world falls apart? How do you cope? Well, there is one thing I've learned. You never give up hope.
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Looms4Lupus May 4
Many patients are also diagnosed with overlapping conditions such as . Thank you for educating us on sjogrens.
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Sjögrens Soc. Canada Sep 29
Systemic manifestations of primary Sjögren's syndrome out of the ESSDAI classification   "More than a quarter of patients with primary SS may have systemic manifestations not currently included in the ESSDAI"
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Janet Church Jul 16
I wrote this for you :) Reminding me that sharing my experiences can help others as well as myself!
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