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Yoni Maisel Jun 17
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Liz Quissell 5h
Replying to @After8Club
I don’t like chocolate 😝
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CZI Science Jun 17
It was great to host at our office today and learn more about how patients can accelerate progress against . Read his story:
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Anna Laurent 5h
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CZI Science Jun 11
To cure, prevent, or manage all disease by the end of this century, we must support the power of patients. aims to support patient-led communities in their search for answers to
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Marni Cartelli Jun 17
Guess who just got final clearance from docs 2 fly out 2 Houston 4 on Friday?! They won't take stitches out bc of leak which should make the flight a miserable experience....but otherwise so excited! Looking forward 2 meeting so many new warriors
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Venus Williams Jun 11
So inspired by the growing number of patients who are pushing the boundaries on research. ’s aims to support patients’ search for treatments:
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Amelia Morgan Jun 17
Creutzfeldt-Jakob disease (CJD) is a rare, degenerative, lethal brain disorder. CDJ is caused by an infectious agent called prions that results in rapid degeneration of the host’s brain tissue.
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Christie 🐠 Jun 17
Some days it takes enormous energy to keep on a brave face.
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Knopp Biosciences Jun 17
To continue our A-Z series of terms, we have tenesmus, which is a symptom of different gastrointestinal disorders.
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Coriell Institute Jun 17
Replying to @MDBRide4Rare
Earlier this month, the cycling team rode in the 's annual Million Dollar Bike Ride () to raise money for research. We've also sponsored this great event the past couple years.
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Laura 6h
D-day celebration: 2 years ago we got a diagnostic for our kiddo. 1 year ago, as I joined as Dir of Research, I wrote "a diagnosis comes as a relief, you now know what you are dealing with but also with the devastating realization there’s no cure."
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🌈 Chan Zuckerberg Initiative Jun 17
“There’s a lot of reason to be hopeful. We as patient advocates can make it so that science is the only thing in the way of a cure.” Learn how ’s efforts helped inspire ’s Project to fight :
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Stop Gun Violence Now! Jun 15
Omg, shame on Work to get some new fucking codes then! ‘Blue Cross Blue Shield, which has refused to cover therapy visits and clinic appointments in spite of doctors’ insistence that they’re necessary. The company cited the lack of billing codes for his
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Sickle cell disease 5h
June 19th is World Sickle Cell Awareness day. Share this to raise awareness!
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Blue Matter Jun 17
Today, Blue Matter hosted its 2nd Breakfast Club meeting in Zug. We had a room full of leaders who came to hear from Nick Leschly, CEO of bluebird bio! Check back soon, as we'll be posting a summary of Nick's talk and the great insights he shared!
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Terre Jun 17
Replying to @JoeBiden
Please! I need it so badly. I’m very sick with complex regional pain syndrome I’m under insured. Workcomp won’t pay for most of my meds 😡they deny a surgery that can help me. I can’t afford my deductible. what’s wrong with this
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Terre Jun 16
Replying to @ThomasKlineMD
I once replied “ and you don’t look stupid” 😂. I was in a bad flare
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Yoni Maisel Jun 10
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Les martin Jun 11
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