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A Journey Through the Fog Jul 16
I have been trying to sort out my room a little bit at a time, but I completely overdid it today. I am currently lying head to toe covered in ice packs. Does anyone else get so frustrated with their limitations that they just say "fuck it!" and do way too much?
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Elisha🧚🏼‍♀️ Jul 17
YA GIRL GRADUATED FROM UNIVERSITY TODAY!! 👩🏽‍🎓💘🎉✨ I’m completely drained out, have 2 new massive blisters & painful feet BUT it’s completely worth it because I had such a fun, positive & incredible experience! Went through blood, sweat & tears but I did it! 😍😭❤️
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Tweets from the Couch 5h
Well, I've cut out several of my supplements, down to eating chicken soup, salad, potatoes, and green smoothies, and taking lots of CBD, but gut and joint pain/inflammation is under control & energy levels up, so I'm counting it as a win!
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Jennifer Brea 18h
For with leg or back pain, please check out these symptoms. If you have them, it might be worth getting evaluated for tethered cord syndrome.
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Life Didn't Begin At 40 Jul 20
Does anyone else hear fizzing bubbles at base of skull? I read it's cerebrospinal fluid.
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Life Didn't Begin At 40 Jul 20
I could never in a million years at 39 thought, I'll be disabled by 40. I ran a business, a home, family, kept fit and socialised. You don't think you'll slow down or become sick when you've been so full of life. It can happen to anyone.
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Hannah M Jul 20
Found a good article about ME/CFS that explains my feels. Extra rough around the edges today.
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Life Didn't Begin At 40 Jul 19
I managed to get up, go downstairs for a bit. Daughter cooked some pizza for us. I haven't eaten well this week, sometimes my appetite goes when I'm not great.
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Dominic Took Jul 17
Hi Jen. Have you heard of herpes encephalitis and auto immune encephalitis? Could these be causing the brain inflamation in some ME patients? Do you know anyone who ever got diagnosed with them? Dr Lerners study outcome would make more sense if so?
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S4ME.info 9h
Our News in Brief post for w/c 15th July. Topics this week: * Trial By Error by David Tuller * In the media * Articles, videos, blogs, websites... * Biomedical Research * Psychosocial Research * Research recruiting participants * and Advocacy
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Fatigo_ME Jul 20
PEM (or PENE) is so strange; I’ve managed a couple of 20 minute walks this week despite with regular and manageable PEM, but An hour ago I spent 2 mins “Gardening” with shears and I’ve been in a bad crash since. Does anyone else find this?
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Kismetk8 Jul 16
Thanks UClaim4me for giving me a heart attack! PPI junk mail in a brown envelope! A brown envelope! The bane of ‘s life and many others’.
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Denise 9h
Thematically many people seem to have an issue with me right now. I've chosen to ignore them. I'm not spending my precious energy on people's perceptions and judgements of me
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Life Didn't Begin At 40 Jul 18
Got out, lovely local cafe with my daughters, sat outside, nice breeze but gently warm. Was lovely but the coffee has flared up my stomach. Think I have lactose issues, trying lactose free milk at home, it's going OK. This coffee has made me bloated & nauseous.
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Lisa Jul 18
This may sound odd to anyone without , but I just chewed gum (well, for 5 minutes) for the first time in years. I've never had the energy for that before now! Yea!
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zippy (zipster) ⭐️🍰⚽️ 🔴🤫 🤣🎗 8h
I have managed to track bf down, he’s at a car boot sale in the middle of a field. I have given him a task to find me something 🧐. I can’t go to car boot sales due to , .
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CatEye Jul 20
So I read this & i need to speak up. Jen Brea: “I wld like the frame broader then ... for all our comorbidities ... don’t yet have a frame for what to call them ... mold MCS MCAS Lyme autism ... fibro as well”
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ME Foggy Dog Jul 19
Foggy HQ isn't the same now 💔 I still miss my furry feet warmer xx
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SolveMECFSInitiative Jul 19
. is hosting a Tele-conference about updates and efforts to advance . Aug. 19, 2019 11am-12pm PST // 2pm-3pm EST. Special Guest speaker: Elizabeth Unger, M.D., PhD.
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Singlerheum ♿ Jul 19
today is managing to have lunch with Dad, my Aunty & cousin which was a joy. I'm quite broken tonight from going down to Wilts & back yest/today but this is one of those times when payback is worth it. I may now sleep for a month though 😁💜
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