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Gaelynn Lea 🐢 Jul 13
It's my first-ever National Conference & it feels surprisingly awesome to see so many people with all gathered in one space. 😍🤗😊
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PerfectlyImperfecta Feb 27
Tomorrow is Rare Disease Day! Please Wear Blue Jeans to show your support!
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PerfectlyImperfecta Nov 14
You can always choose to be happy.
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🌺CHARMAIGNE🌺 Mar 22
My poor girly fractured her right arm already😪, at birth it was her left arm that was fractured, and two of her legs that were broken in the womb and healed the wrong way.❤️ hoping for a speedy recovery.❤️
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Barcroft TV Apr 5
“I don’t have time to pity myself because there is nothing to feel sorry for, this is what it is. I don’t really have a choice but to be positive and live my life.” 🙌
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Service Dog Project Dec 30
Replying to @OIFoundation
(2/2) This is what we do: This video of Eve was made 6 months later. With Finn's help, Eve has remained . Eve is stronger. Her gait is more stable. She's more confident.
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PerfectlyImperfecta May 6
It’s Wishbone Day!! An international Awareness Day for those that have OI! Look who else is wearing yellow may not know its Wishbone Day but he chose a great day to wear yellow!
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Gillette Children's Jul 11
Nicknamed “Chef Caleb,” Caleb Pence loves to cook everything from cake pops to his favorite, Beefy Biscuit Cups. But often, he’s cooking while in a wheelchair or with a cast. You see, Caleb has :
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Brittle Bone Society May 9
A big thanks to all those who took part in celebrating last weekend! Take a look at some of the fabulous events that took place 😁
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PerfectlyImperfecta May 13
I’m so blessed to be his mother! Strength grows through struggles, courage develops in challenges and wisdom comes from wounds.
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🌺CHARMAIGNE🌺 Mar 24
Amelia, my strong little girl.💝
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Gaelynn Lea 🐢 Jul 13
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Mirini Kim, CPNP-PC Jul 15
Dr. Francis Glorieux, chair of the medical advisory council and provider at in Montreal shares about the Brittle Bone Disease Consortium
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VeromiaOccasionWear Jul 12
Throwback to the Red Carpet Campaign with @zebedee_management Check out the girls looking sensational in Veromia! 👗❤️
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Dan Prestegaard May 6
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Brittle Bone Society May 6
Happy everyone! Please watch and share this short video 🎥 about
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Rare Diseases Europe Feb 28
At today's event held on the European Reference Network for rare bone diseases (ERN BOND) is presenting its white paper on diagnosis including results of a survey of patients that showed the diagnosis procedure can take up to 4 years.
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PerfectlyImperfecta Jun 21
Of course Conner made friends every where we went. The locals called him “cousin”. It’s been a fabulous wish trip! Aloha Hawaii!
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Barcroft TV May 31
Meet the family who have broken over 600 bones between them, but still manage to smile and live life to the full ❤
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PerfectlyImperfecta Feb 14
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