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Willow Popplewell Sep 16
This morning i reached fracture number 75! Humerus breaks are not funny! 🙈❄️
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Connecticut Children's Medical Center Sep 19
Meet Emily L. Germain-Lee, MD, who is doing to advance treatment of & through research. @RareBoneDiseaseAlliance
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IntegraSaludTalavera Sep 21
¿Qué tal tu semana? Nosotras re-estrenamos nuestra sección con Esther Fernández de Librería Cafetería Contrapunto, hablamos de , difundimos al Día Mundial del y del en personas con (OI). 
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Kela Fpa Sep 20
Kamratstödet på hela familjens ​skurs är guld värt, säger Minna Markkula, mamma till ett barn med den sällsynta .
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Kela Fpa Sep 20
Koko perheen ​kurssilla saatu vertaistuki on kullanarvoista, toteaa harvinaista ​a sairastavan lapsen äiti Minna Markkula.
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As.It.O.I. Sep 20
Nostalgia delle vacanze? Oggi ci pensiamo noi a portarvi (virtualmente) in viaggio, raccontandovi attraverso una breve intervista il viaggio da sola in California di Anna Decandia!
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Jane Hash Sep 19
So, this is a really good time for you to go and to my YouTube channel...
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Tim Kroesbergen Sep 19
Steven is about to run for to raise money to improve the quality of life of people with . Most people are familiar with the fact my bones break easily, but OI can break me in other ways too, for example the fact I don't ha…
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Connecticut Children's Medical Center Sep 19
“Patients with rare bone disorders often feel as though they do not have a voice. I want to help by being their voice.” Meet Emily L. Germain-Lee, MD, who is advancing treatment of & through research. @RareBoneDiseaseAlliance
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Connecticut Children's Medical Center Sep 18
Our world-renowned clinicians and researchers are doing to transform care for children from around the world with rare diseases like , and . Meet a few of our experts at .
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IntegraSaludTalavera Sep 18
Los estudios están de acuerdo en que el está presente en la (OI), es problemático y persiste a pesar de los intentos del afectado por paliarlo, explica Rubén Muñoz, psicólogo de la @FundaciónAhuce 
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Kela Fpa Sep 17
FPA ordnar familjekurser i för 38 olika sjukdomar. En av dem är den sällsynta benskörhetssjukdomen som 6-åriga Neela lider av, . Läs artikeln om familjens kurserfarenhet!
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Kela Fpa Sep 17
Kela järjestää perhekursseja 38 eri sairauden kuntoutukseen. Yksi niistä on 6-vuotiaan Neelan sairastama harvinainen luustonhaurastumistauti . Lue juttu perheen kurssikokemuksista!
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Jane Hash Sep 17
Have you to The Holistic Vitality Education Channel yet? A gets posted every two weeks! There's a tiny , a and and it's !
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AHUCE Sep 17
El Encuentro de Apoyo Psicológico de ayer en Bilbao fue un éxito. Un momento ideal para juntarnos y mantener el contacto, pudiendo trabajar los aspectos psicológicos de la OI junto con Tamara Ahuce.
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FUNDACIÓN AHUCE Sep 16
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Love, Chris ♿️🏳️‍🌈🇬🇧🇪🇺 #EGX2018 Sep 15
I swore to myself I wouldn’t get any more hats. Then I saw this hat... I haven’t bought one yet, but I’m really, really tempted..!
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Anang YB Sep 15
Mendadak ingat Calvin. Tertarik membacanya kisahnya? Pesan cetak khusus ke WA 08159904562 (40 rb + ongkir) .
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Love, Chris ♿️🏳️‍🌈🇬🇧🇪🇺 #EGX2018 Sep 13
This is the body that gave me. It’s the one that I was born with, one that I’ve accepted and one that I’m happy with.
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Sarah Zak Sep 13
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