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Patient Worthy Oct 10
Cystic Fibrosis Drug Rejected in Canada
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Bob Howse Oct 9
Ian Thompson is right. This CF drug should have public coverage. The NS govt should provide the moral, medical and humanitarian leadership so sorely needed. COMMENTARY: Picking winners & losers among CF patients | The Chronicle Herald
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Jamie Oct 10
Your child has a rare fatal disease and your government won’t fund specialized medication to help them. Your anger affects your daily life and depression becomes the new normal
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Laura Vicinanza Oct 15
Two weeks ago asked the what progress it had made on making available to people with in Scotland. We've just received a response from , Cabinet Secretary of Health and Sport. (1/2)
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Fight4Orkambi 23h
A little story 2 highlight the Health Inequalities between CF patients in the UK & their peers in countries who supply when will u resolve and give Ivy the same chance?
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zo zo Oct 8
so,I’m a big fan of yours,dating back to when I watched u live in about 10 years ago Please,retweet for me ! My daughter is 6 months old and was diagnosed with ! We r campaigning for medicine to be made available 👌❤️
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Laura Vicinanza Oct 15
The Cabinet Secretary of Health & Sport , announced that "the continues to call upon the manufacturer of , , to make a new submission to the Scottish Medicines Consortium, at a fair price that allows access on the ." (2/3)
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Lisa McHendry Oct 8
we need your help! Fight for Orkambi!!! It can change the lives of CF patients everywhere!! Fighting for my little girl!! We need your help!!!
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Helen Hughes Oct 11
Replying to @MattHancock
I’d love to see children getting access to precision meds such as . Those with cystic fibrosis worry about not eating enough - do you know how many need to think about obesity. They exercise but for another reason.
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Christina Walker Oct 9
Come on you committed to meet Ministers re. & said you wanted a 'speedy resolution' on 16th May yet still no for CF patients. Please add your voice to the calls for urgent resolution
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Lisa Forman 🌹 Oct 9
CF is a fatal, progressive disease. Canadians with CF who may benefit from this medication need it now, before their health deteriorates further. They don’t have time to wait. now, Ms. Elliott
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Helen Hughes Oct 12
How much would this buy?
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zo zo Oct 9
u mentioned how your sister was “saved by the NHS” in her recent accident and how this was a devestaing experience! I have 2 daughters, one unfortunately with Will the “save her sister?” by providing access to
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Nicola Johnson Oct 12
While our youngsters with are dying at a rate of 3 a week while sits on a shelf, anger will be directed at all who have the power to change this.
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Helen Hughes Oct 10
Giving patients access to precision meds e.g. will help reduce their mental health issues. When will it be available?
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Sharon Barber 21h
This short story shows how disadvantaged UK children and young people with Cystic Fibrosis are compared their counterparts in so many other countries. Please - sort this inequality now and reach a deal on
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Emmah Evans Oct 16
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Ali Dillon Oct 16
Maybe should take heed get the money back for sooner rather than later?
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Christina Walker Oct 16
In this situation, as in UK, patients could still get if price according to clinical benefit & stop abusing monopoly position of 'Life threatening, unmet need' as boasted of in the corporate strategy. Patients are people
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David Turner QC Oct 14
Why are cystic fibrosis patients in England still waiting for access to , when 1060 days and 203 potentially eligible patients have passed since was first licensed? Questions doesn't want to answer
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