| Search | Refresh |
|
Patient Worthy
@PatientWorthy
|
Oct 10 |
|
|
||
|
||
|
Bob Howse
@CH_BobHowse
|
Oct 9 |
|
#CF #NS #orkambi Ian Thompson is right. This CF drug should have public coverage. The NS govt should provide the moral, medical and humanitarian leadership so sorely needed. COMMENTARY: Picking winners & losers among CF patients | The Chronicle Herald thechronicleherald.ca/opinion/letter…
|
||
|
|
||
|
Jamie
@WalkForLarocque
|
Oct 10 |
|
Your child has a rare fatal disease and your government won’t fund specialized medication to help them. Your anger affects your daily life and depression becomes the new normal #ItsOkNotToBeOk #Ontario #Orkambi
|
||
|
|
||
|
Laura Vicinanza
@VicinanzaLaura
|
Oct 15 |
|
Two weeks ago @RichardlyleSnp asked the #ScottishGovernment what progress it had made on making #Orkambi available to people with #cysticfibrosis in Scotland.
We've just received a response from @JeaneF1MSP, Cabinet Secretary of Health and Sport. (1/2) @cftrust
|
||
|
|
||
|
Fight4Orkambi
@fight4orkambi
|
23h |
|
A little story 2 highlight the Health Inequalities between CF patients in the UK & their peers in countries who supply #Orkambi
@MattHancock @theresa_may @NHSEngland @NICEcomms
when will u resolve #OrkambiNow and give Ivy the same chance? #truestory #bittersweet #cysticfibrosis pic.twitter.com/9T9H4mA3TI
|
||
|
||
|
zo zo
@_MissMoo_
|
Oct 8 |
|
@JasonManford so,I’m a big fan of yours,dating back to when I watched u live in #Manchester #storyhouse about 10 years ago Please,retweet for me ! My daughter is 6 months old and was diagnosed with #cysticfibrosis ! We r campaigning for medicine #orkambi to be made available 👌❤️ pic.twitter.com/3WcDQcFAkt
|
||
|
||
|
|
Laura Vicinanza
@VicinanzaLaura
|
Oct 15 |
|
The Cabinet Secretary of Health & Sport @JeaneF1MSP, announced that "the @scotgov continues to call upon the manufacturer of #Orkambi, @VertexPharma, to make a new submission to the Scottish Medicines Consortium, at a fair price that allows access on the @NHS_HS." @cftrust (2/3)
|
||
|
|
||
|
Lisa McHendry
@Lisa_McHendry
|
Oct 8 |
|
@celliottability we need your help! Fight for Orkambi!!! It can change the lives of CF patients everywhere!! Fighting for my little girl!! We need your help!!! #CureCF4Avery #Orkambi #fightingforacure pic.twitter.com/J8huMBI0Rc
|
||
|
||
|
Helen Hughes
@HelenHughes_sim
|
Oct 11 |
|
I’d love to see children getting access to precision meds such as #Orkambi. Those with cystic fibrosis worry about not eating enough - do you know how many need to think about obesity. They exercise but for another reason.
|
||
|
|
||
|
Christina Walker
@Guatemalagirl
|
Oct 9 |
|
Come on @theresa_may you committed to meet Ministers re. #Orkambi & said you wanted a 'speedy resolution' on 16th May yet still no #orkambinow for CF patients. Please add your voice to the calls for urgent resolution @BrineMinister @Nus_Ghani @MattHancock pic.twitter.com/VT2v0aJmFS
|
||
|
||
|
Lisa Forman 🌹
@LisaMForman
|
Oct 9 |
|
@celliottability @CFCanada CF is a fatal, progressive disease. Canadians with CF who may benefit from this medication need it now, before their health deteriorates further. They don’t have time to wait.
#Orkambi now, Ms. Elliott
|
||
|
|
||
|
|
Helen Hughes
@HelenHughes_sim
|
Oct 12 |
|
How much #Orkambi would this buy? twitter.com/maggsmcg/statu…
|
||
|
|
||
|
|
zo zo
@_MissMoo_
|
Oct 9 |
|
@MattHancock u mentioned how your sister was “saved by the NHS” in her recent accident and how this was a devestaing experience! I have 2 daughters, one unfortunately with #cysticfibrosis Will the @NHSEngland @FutureNHS “save her sister?” by providing access to #Orkambi #now twitter.com/GMB/status/104…
|
||
|
|
||
|
Nicola Johnson
@JohnsonMNicola
|
Oct 12 |
|
|
||
|
|
Helen Hughes
@HelenHughes_sim
|
Oct 10 |
|
Giving patients access to precision meds e.g. #Orkambi will help reduce their mental health issues. When will it be available?
|
||
|
|
||
|
Sharon Barber
@sharonebarber
|
21h |
|
This short story shows how disadvantaged UK children and young people with Cystic Fibrosis are compared their counterparts in so many other countries. Please @MattHancock @theresa_may @NHSEngland @NICEcomms @VertexPharma - sort this inequality now and reach a deal on #Orkambi twitter.com/fight4orkambi/…
|
||
|
|
||
|
Emmah Evans
@CF_Mummy
|
Oct 16 |
|
Watch my latest video about the beginning of my Orkambi journey :)
@OrkambiNow @orkambi @OrkambiNews @CF_65roses @cysticfibrosis
@CFNewsAustralia @GregHuntMP @VertexPharma @CFCanada @cflounge #cysticfibrosis #cf #orkambi #cfmummy
youtu.be/mRlE9HHASGM
|
||
|
|
||
|
Ali Dillon
@Alidilly
|
Oct 16 |
|
Maybe @VertexPharma should take heed get the money back for #orkambi sooner rather than later? #getthedealdone #OrkambiandCFDrugPipeline twitter.com/nhsengland/sta…
|
||
|
|
||
|
|
Christina Walker
@Guatemalagirl
|
Oct 16 |
|
In this situation, as in UK, patients could still get #Orkambi if @vertexpharma price according to clinical benefit & stop abusing monopoly position of 'Life threatening, unmet need' as boasted of in the corporate strategy. Patients are people $vrtx @blackrock @Vanguard_Group twitter.com/Guatemalagirl/…
|
||
|
|
||
|
David Turner QC
@GreatStrides65
|
Oct 14 |
|
Why are cystic fibrosis patients in England still waiting for access to #OrkambiNow, when 1060 days and 203 potentially eligible patients have passed since #Orkambi was first licensed? Questions @MattHancock doesn't want to answer #Marr @MarrShow
|
||
|
|
||