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Jeremy Corbyn
@jeremycorbyn
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Sep 12 |
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People with cystic fibrosis in England, Wales and Northern Ireland still don’t have access to the life changing drug #Orkambi.
It's disgraceful that the NHS and patients' lives are being held to ransom by pharmaceutical companies' greed.
The government must act. #Newsnight
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Jeremy Corbyn
@jeremycorbyn
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Jun 4 |
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No child should be denied treatment because of the greed of pharmaceutical companies.
#Orkambi is a drug that could extend the lives of thousands of children with cystic fibrosis.
The government must step in and make sure it's made available for all who need it. #Newsnight
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Sarah James
@SarahCJames2
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5h |
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The little boy with cystic fibrosis who would get 'essential' drug if he lived 17 miles down the road - Wales Online
#Orkambi #cysticfibrosis walesonline.co.uk/news/health/cy…
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lisa foley
@welshlisa2
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Nov 8 |
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@RebeccaEvansAM @JulieJamesAM @MikeHedgesAM @vaughangething @MarkDrakeford @VertexPharma it is now 2 weeks since @NHSEngland secured a deal for #orkambi.The unfairness of Wales being left behind is heartbreaking for those that need these drugs now! We deserve answers?Not silence!
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James Angove
@JamesAngove
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6h |
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Christmas has come early. #Orkambi @GraceAngove
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Ian Austin
@IanAustin1965
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Oct 24 |
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This is not true.
Jeremy Corbyn did not “lead” the campaign for #Orkambi. Parents & @cftrust did.
Apart from 1 video this year, he didn’t sign the many letters, or come to any debates or meetings with ministers, Vertex or officials in last 5 years. labourlist.org/2019/10/orkamb…
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Paula Bradshaw
@PaulaJaneB
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Oct 29 |
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I am delighted to have received confirmation that funding will be made available to go ahead with #Orkambi in Northern Ireland as in England.
I await a response on some of the details, but this is wonderful news for people who have already waited too long.
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Paul Scully
@scullyp
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Oct 28 |
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Corbyn complained about Channel 4 claims that govt had talks with US pharma companies about the price of drugs despite recently demanding that @MattHancock intervene about the price of #Orkambi, a groundbreaking drug treating #cysticfibrosis supplied by a US company...
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Cystic Fibrosis Trust
@cftrust
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Oct 24 |
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A deal has been done. Finally, people with #cysticfibrosis living in England will have access to #Orkambi and #Symkevi. We thank the community for their support and campaigning to get access to #LifeSavingDrugsNow! More to follow pic.twitter.com/vv4iDFt1SN
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Mark Tami
@MarkTamiMP
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Jun 10 |
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It's not fair that patients across the EU, US and Australia have access to #Orkambi and other cystic fibrosis drugs whilst sufferers here in the UK do not. Glad to see the debate so well attended which clearly shows the strength of feeling towards this pic.twitter.com/9xx6MAxU04
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Fintan BSc (Hons.)🌹🌈
@fintanmccarthy
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Oct 25 |
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Having a high profile campaigner such as @UKLabour leader @jeremycorbyn, who raised the issue in his conference speech, thus ensuring huge media exposure, helped enormously to make #Orkambi available to #CysticFibrosis sufferers on the #NHS #ThisMorning pic.twitter.com/Q2x6FjZebJ
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David Wilkins
@david82wilkins
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Nov 7 |
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Dear @MarkDrakeford,
I appreciate you must be busy, but it has been 2 weeks since England announced access to Orkambi, 9 days since NI did the same & nearly 2 months since Scotland secured their access. Why is Wales taking so long? Can you give us any update please? #orkambi
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Benat Broderick
@BenatBroderick
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Oct 18 |
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For the past nearly 3 years, I have been on #Orkambi! A drug that has completed transformed my life!
Orkambi has improved my Weight, Height, Lung Function & My Overall health. Giving me a better quality of life!
The future is looking so positive in terms of CF!
Exciting times! pic.twitter.com/j0xatI8Kcq
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Rose Duffy
@RoseDuffy
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Oct 24 |
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Sat in work getting a little bit emotional know that people like my little brother will finally have access to #Orkambi twitter.com/cftrust/status…
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Ian Austin
@IanAustin1965
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Oct 24 |
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Today should not be the day for party political point-scoring or claiming the credit on #Orkambi.
The credit belongs to people with CF, their families & parents and the @cftrust
But if you do want to check whether Jeremy Corbyn led the campaign, read this
cysticfibrosis.org.uk/the-work-we-do…
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Tom Lawrence
@_underspaces
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Jun 4 |
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#Orkambi was given to my friend Libby when she was given 5% chance of living from complications with cystic fibrosis, she made a full recovery and went on to run a 10km. Sadly Libby died in September - but she was a fighter and Orkambi gifted her so much more life. twitter.com/jeremycorbyn/s…
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Kilburn & Strode
@KilburnStrode
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8h |
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Good news - an update on #ORKAMBI availability for cystic fibrosis patients in the UK. Kristina Cornish discusses more here: bit.ly/2Q8DNlg @cftrust pic.twitter.com/5APbc9Uaox
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Paula Bradshaw
@PaulaJaneB
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Oct 25 |
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Thrilled to receive confirmation that the negotiations by NHS England with the phama manufacturer of #Orkambi has secured the same price for Northern Ireland ... after many years of campaigning by patients and their families, they are finally going to be able to access it here 😊 pic.twitter.com/g29NlMvHxw
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Laurence Powell
@laurence_powell
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Oct 25 |
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As the news of a deal on #Orkambi has sunk in. We must remember that we’ve won the race but not the marathon. We still have a long way to go on gaining full access to #LifeSavingDrugs4CF and we won’t stop fighting until everyone has medicines which will change lives. @cftrust
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Labour Press Team
@labourpress
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Oct 24 |
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"Healthcare is a right, and big pharmaceutical companies’ greed should not control the access to life changing medicines" says @jeremycorbyn re #Orkambi
labour.org.uk/press/this-dec…
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