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NORD Jun 22
has officially landed on the moon. 🌝
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Family To Family Jun 22
Honored to be speaking on education at
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NORD Jun 22
Chief Strategy Officer, Pamela Gavin presents our final award for the evening, the Abbey S. Meyers Leadership Award, an award given annually to a NORD Member Organization.
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NORD Jun 23
Our final panel of the weekend shares what’s on the horizon for with panelists Dr. Brendan Lee and Board Chairman, Dr. Marshall Summar.
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L. Marie Asad Jun 22
Howdy, from the 's in Houston, Texas.🦓 Special thanks to for the scholarship for Mom & I to attend this special gathering of people living with rare diseases to gain insights and practical tools.
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NORD Jun 23
Board Chairman Dr. Marshall Summar encourages families to work with their medical teams as equal partners and to continuously work to foster that relationship.
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Tommy Boxeo 3h
It's Bonne Fete St.Jean Baptiste at the Eleonore cafeteria today! (To my American followers, it basically means Quebec Day here in Canada)
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NORD 3h
FREE Summertime meals at select NORD rec centers for youth ages 0-18 starting at 4pm, Monday through Friday.
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Mallinckrodt Jun 21
We'll be listening to patients and families impacted by rare diseases share their stories at the this weekend! We hope to have the chance to meet you there.
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Lydia L. Seiders Jun 22
Calling all patients and families. We're forming our own breakout session to connect with others like us! Find us before lunch at the Rare Action Network booth, next to the NORD booth and Registration! Photoed here! #…
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Lydia L. Seiders Jun 22
"There is hope. You're not alone." 🙌♥️💪🦓
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Vastuullisuusuutiset 17h
lawmakers: 2 'a terrible mistake'
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Lydia L. Seiders Jun 22
Newly diagnosed patients and families learning about genetics at ' .
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Tommy Boxeo 2h
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Perthes.org Jun 21
So excited to be with 500+ zebras this weekend!
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SandiMc Jun 23
Nurse Practitioners preparing to provide up to date care across the country.
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Mark Mosher Music Jun 23
Here is a song I released 2 years back called "Space-Time Distortion at Track Near Track #8" featuring field recordings from Chicago. . Single is available on all the major outlets plus bandcamp name your price.
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NORD Jun 19
is thrilled to share its new Rare Disease Video Library, launched with support from . This new resource features videos on & related topics for patients, caregivers, students, professionals and the public.
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Hope the Zebra Jun 21
So excited to be in Houston!
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Jobs in Germany Jun 23
Want to work at TJX Companies, Inc.? We're hiring in , BY! Click the link in our bio for details on this job and more: Filialleiter / Storemanager (m/w/d) Raum Nürnberg
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