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Product catalog 12h
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Ancient Age 5h
(National Organization for Rare Disorders) Nice Video! Highlights the long struggle (time, treasure and talent) to get to the understanding we have today which is still in its early days.
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lolita amber Sep 16
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lolita amber Sep 16
VPN Premium Account Passwords
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The Millenial Falcon Sep 17
At meeting, drug lead Janet Woodcock says new data analytics platform launched today is “the best we can do” to accelerate cures of rare diseases…but says progress won't happen overnight
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C-Path Sep 17
Dr. Janet Woodcock, , delivered keynote..."People with rare diseases need treatments, we need to do what we can to make development of those treatments as efficient and effective as possible."
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NORD 16h
We are so excited we added Barre Above to our FitNOLA programming. Classic barre choreography with incorporated movements from Pilates and ballet. All levels welcome. Ages 18+. FREE! Wednesdays, 6-7 PM, Stallings St. Claude Rec Center, 4300 St. Claude Ave.
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Dave Lieb 7h
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Vape Breddaz Sep 14
smok_tech 22 AIO Starter Kit presents a beautifully integrated all-in-one vape pen system with advanced chipset to create a modern balance between performance range and ergonomic designs while utilizing the…
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Product catalog Sep 13
NORD PG-102-5A Evolt
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Chris Sep 11
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NORD 10h
Secure your spot at our first annual Fishing Rodeo at Joe W. BRown Park on Sat., Oct. 26 starting at 7 AM. Register for FREE today at . FREE to enter. All ages!
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NORD Sep 17
Our Movies in the Park Fall 2019 season continues this Friday with Ferris Bueller's Day Off at the Latter Branch Public Library, 5120 St. Charles Ave. Lawn chairs, blankets, and picnics are welcome. Free and open to all.
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Elodie MiamMiam Sep 18
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NORD Sep 17
- Strong: Works with the Prader-Willi community. We’ve been working with and the IAMRARE platform to advance an understanding of PWS. Have been lucky over the past few years to have interest from industry on treatments.
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NORD Sep 17
- Boulanger: Our registries work 1-on-1 with the community organizations as provide ways for data sharing, to reduce barriers and help develop other nonprofits.
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Sudhir Sivakumaran Sep 17
Dr. Klaus Romero: 'Heterogeneity is good - as long as we have the tools to understand and quantify the heterogeneity from high quality data'.
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Original Deer Paper Sep 18
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Michelle Morgan Sep 17
Great panel this afternoon emphasizing the importance of the patient voice.
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Lesli P. Nordstrom Sep 17
closing panel theme is collaboration, collaboration, collaboration—we need each other and partners to accelerate .
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