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nomadliz Sep 15
It took me almost two years, but my medical debt is almost paid off! Suck it tumors!
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Sam Blackman Sep 12
Congratulations to my dear friend, and former colleague, , and to the entire team for this remarkable achievement! You are going to make a big difference for patients with and tumor!
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SpringWorks Sep 19
The 2019 NF Conference is taking place September 21-24 in San Francisco. We look forward to attending the largest gathering of scientists and clinicians! See this year’s agenda:
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NCI CCR Pediatric Oncology Branch 3h
The 2019 Conference, hosted by is Saturday 9/21 - Tuesday 9/24 in ! POB Cheif Dr. Widemann will co-host Session 1 on Natural History of Neurofibromatosis & Dr. Wolters will present data from the SPRINT study
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Neurology Today Sep 18
The clinical presentation of 2 () during the first decade of life via .
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Kelly Fox Sep 11
Trying to explain be like...
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Tumour Foundation of BC Sep 16
New copy of the Inspire magazine is here filled with raw & powerful stories of life with .
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يزن الصاحب Sep 16
California man with 'Elephant Man' syndrome once joined circus, has had over 30 surgeries: 'I was dead inside' - Fox News
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Nerve Tumours UK Sep 19
Fashion Blogger and an amazing voice for Nerve Tumours community , recently left her mark on the Bustle Booth, further discussing her career, hopes for the future and her Read more here:
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Sarah Johnson Sep 19
Polishing lecture to present to 1st year med students of tomorrow. Very excited to share insight into patient care and additional concepts for those with .
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Sal Jemente Sep 11
Thanks to "Chief" (Tio Mecho) for making a "Walking Stick" for Mya! ❤💚💙💚
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TCAG2M Sep 16
Interested in learning about the of , and this fall? Check out the schedule for Genetics and Genomics Grand Rounds at
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LesleyDougan 🧜‍♂️🏳️‍🌈 🧜‍♀️ 9h
Brilliant news Joseph you're a ambassador
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~NESH~ Sep 13
Are wall that thin? Note I'm half deaf. ********* Care so much what's going on in my room but not in my health or life. You have your story, I stood away to write mine.
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Neurology Advisor Sep 17
As most young children with type 2 do not initially present with vestibular schwannomas, it is important to consider this diagnosis in children with the characteristic abnormalities or a .
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NF Hope Sep 11
Stay iNFormed about everything by joining the e-mailing list at:
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Neurofibromatosis 2 Updates Sep 13
Gamma Knife radiosurgery for treatment of growing vestibular schwannomas in patients with Type 2: a matched cohort study with sporadic vestibular schwannomas.
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MIT Hacking Medicine Sep 13
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Aria Ahrary Sep 17
what the hell? is NOT the Elephant Man disease. How many times do we have to educate you? Joseph Merrick had proteus syndrome. He may have had NF, but it was beyond NF. even had a guests pissed NF=Elephant Man
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MIT Hacking Medicine Sep 13
. co-director Freddy Nguyen will be mentoring and speaking at this weekend’s & ! Excited to help & be a part of the ecosystem!
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